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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)
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Messages 2999 - 3028 of 7529   Oldest  |  < Older  |  Newer >  |  Newest
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2999
Hello this is mindy ...Hailey's mom......I have a quetion....don't some of you get you flunarizine from Mexico????? If so, where? ..my father lives in ...
MandM421@...
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Feb 1, 2004
9:14 pm
3000
Hi Mindy, We get our flunarizine from Mexico. A gentleman we know lives in El Paso, TX and buys it for us in Juarez. He gets it over the counter at the...
Carol & Kevin Prunty
cprunty79
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Feb 1, 2004
9:33 pm
3001
Hi Mindy, When we were in Mexico we found it in any pharmacy there. The pharmacists had it behind the counter, however they tended not to have huge...
Carol Presunka
sunplace95008
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Feb 1, 2004
10:03 pm
3002
dad here is another response mindy [Non-text portions of this message have been removed]...
MandM421@...
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Feb 1, 2004
10:52 pm
3003
don't pay attetion to what i just sent sorry mindy [Non-text portions of this message have been removed]...
MandM421@...
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Feb 1, 2004
10:53 pm
3004
Hi, Thank you fro replying quite some time ago now but my daughter has not been at all well these past few weeks. She is 3 years old and we see Prof Neville....
jennifer Pearsall
abilissa2000
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Feb 3, 2004
8:02 pm
3005
My name is Jennie and I have a little girl called Melissa who is 3. We live in West Sussex, near Brighton. Please write back soon and I will check my letters...
jennifer Pearsall
abilissa2000
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Feb 3, 2004
8:04 pm
3006
Hello, Has anyone had problems with their children holding their breath during episodes? We have seen some of this through the years (our daughter is 22) but...
Don/Janet Kilpatrick
kilpatri@...
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Feb 6, 2004
2:54 am
3007
My four yr old did not hold her breath but had much difficulty moving air for the last 2 yrs during severe episodes. It was hard to tell what caused the ...
popcornkcv@...
popcornkcv
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Feb 6, 2004
1:06 pm
3008
Hi, this is Dave Ashley's dad, she is 14, It is my feeling that all throughout Ashley's life during a spell she had shallow breathing and could not swallow but...
MANEEXP@...
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Feb 6, 2004
3:23 pm
3009
Hi, and thanks for your answers. Actually, I don't think shallow breathing is the problem. She actually holds her breath, and has to be reminded to let it out...
Don/Janet Kilpatrick
kilpatri@...
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Feb 6, 2004
5:34 pm
3010
My daughter Mary will do this during the very bad stiffening attacks. When everything is just so stiff and so painful.You wonder if she is ever going to take a...
Carol & Kevin Prunty
cprunty79
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Feb 6, 2004
6:30 pm
3011
Hi Janet & Don, Emily is 11 now, and has done that sometimes, when she was younger it was more often with the spasms, we call the chuckies, (because she used...
lee
homesofia
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Feb 7, 2004
7:06 pm
3012
Hi, hope everyone is doing well. I was wondering if some of you from the U.S. would be willing to share some of the experiences you have had regarding...
Jennifer
jejeant
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Feb 19, 2004
6:24 am
3013
Hi Jennifer, We have an HMO that so far has covered everything for Addie. She has orthotics but not wheelchair, etc. After age 3 yrs in Massachusetts it is...
popcornkcv@...
popcornkcv
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Feb 19, 2004
1:26 pm
3014
Hi, Jennifer, Emily has had a Wheelchair since kindergarten, and she wore smo's, then afo's for about 5-6 years, they were always picked up by medical if I...
lee
homesofia
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Feb 19, 2004
4:30 pm
3015
Hi Jennifer, Our insurance did not cover hippotherapy or speech, however they did cover her AFO's, stroller's and most recently, flunarizine. Kathleen...
Lynn Egan
laegan5
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Feb 19, 2004
4:52 pm
3016
Hi Jennifer, We too have had a walker, stroller, AFO's and therapies covered by our insurance with a Medi-Cal (Institutional deeming) picking up what our ...
Carol Presunka
sunplace95008
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Feb 19, 2004
5:03 pm
3017
Hi this is Dave Ashley's dad, how did u get flunarzine covered---D [Non-text portions of this message have been removed]...
MANEEXP@...
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Feb 19, 2004
9:56 pm
3018
Hi Lynn, How did you get your insurance to cover flunarazine???? I am told no one will cover it b/c not FDA approved in US. thanks-Karen V [Non-text portions...
popcornkcv@...
popcornkcv
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Feb 19, 2004
10:49 pm
3019
Hi! Thanks so much for all the responses. Would some of you mind telling me what insurance company you have that cover these items? The company Ant and I work...
Jennifer & Anthony
jejeant
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Feb 20, 2004
4:24 am
3020
Hi, Dave We don't have any help with the Flunarizine cost. We pay all. Now this is new to me if there is any assistance with Flunarizine. I was under the...
Jennifer & Anthony
jejeant
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Feb 20, 2004
4:26 am
3021
Hi Jen, Our insurance is not national HMO (Harvard Pilgrim Health Care). I have heard BlueCross/Blue Shield has some great plans but more expensive. Also...
popcornkcv@...
popcornkcv
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Feb 20, 2004
12:08 pm
3022
Hi, Our insurance is Blue Cross of California. As for getting the flunarizine covered, after submitting a letter from Kathleen's doctor, a letter from us...
Lynn Egan
laegan5
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Feb 20, 2004
2:39 pm
3023
Hi, i must have misunderstood u, we don't have coverage either,sorry---D [Non-text portions of this message have been removed]...
MANEEXP@...
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Feb 20, 2004
3:25 pm
3024
Hi Lynn, I admire your perseverance! I would like your information on Flunarizine. I would like to argue my case in front of my insurance company. Perhaps...
popcornkcv@...
popcornkcv
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Feb 20, 2004
5:49 pm
3025
We have Blue Cross PPO ... From: Jennifer & Anthony [mailto:jejeaja@...] Sent: Thursday, February 19, 2004 8:24 PM To: afha@yahoogroups.com Subject: Re:...
Carol Presunka
sunplace95008
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Feb 20, 2004
8:08 pm
3026
Hi Lynn, did u get your flunarzine covered, if so how, let me know----Dave [Non-text portions of this message have been removed]...
MANEEXP@...
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Feb 20, 2004
8:55 pm
3027
Lynn 'Hello, it's Mindy Jonkoski.....could you also send me a copy of all the paper work for the ins. I was denied with my old insurance and fought and fought...
MandM421@...
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Feb 21, 2004
12:40 am
3028
Another option for saving some money towards it is this: some companies allow you to have pretax money set aside for medical expenses that you know are going...
JIMMYAHC@...
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Feb 23, 2004
4:02 pm
Messages 2999 - 3028 of 7529   Oldest  |  < Older  |  Newer >  |  Newest
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