Hi Jennifer, the newsletter is almost finished and will be mailed out soon. As for the website, I plan to have all of the newsletters up by mid January. ...
Dave, Emily has been through the same thing, I have found out from her that sometimes she doesn't feel when she is going to the bathroom until it feels wet on...
Hi Lee thank you so much for taking the time and writting.How old is Emily, what medication is she on, and what about spells how r they and how often, Where do...
MANEEXP@...
Dec 3, 2003 3:29 pm
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Hi Dave, Emily is 11, she isn't taking any medication, and her episodes are usually mild, a weakness of a side or partial loss of use. About once a month, ...
hi again,well the full moon is comming and ash is acting out and as it gets fuller i can see your point,the full moon thing is kind of funny,thanks D [Non-text...
MANEEXP@...
Dec 3, 2003 11:56 pm
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Hi Dave: David is 14 and sounds alot like Ashley. He still isn't totally independent in the bathroom, needs help wiping, and does not bathe himself etc. We...
Hi,Deanna,thanks for your detailed message, yes I think all our kinds are alike. Another question is how is his attention to one topic or task, does he go from...
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Dec 5, 2003 3:32 pm
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Hi, Alaina was sick with flu-like symptoms starting the day before Thanksgiving (11/26), well, after a week she still had a fever so I took her back to the dr....
Hi Jennifer, If you can't get Alaina to drink fluids I recommend you get in touch with your doctor right away and don't wait. I have requested IV fluids for...
Hi, Karen. Thanks for your response. How does that work with the IV fluids? You go to the dr's office and they administer? I'm interested in this, because, I...
I am glad Alaina is doing better. Usually the doctor will call ahead to the hospital. The IV fluids are given to Addie either in the ER or in an outpatient...
Jennifer I have a daughter Hailey who is 6 years old...........she also whenever she gets sick...which she gets a sinus iffection almost every other ...
MandM421@...
Dec 7, 2003 1:02 pm
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Jennifer, Hi! I agree with Karen You may want to have something in place at your ER or Outpt. Clinic to give Alaina fluids. Because of Jocelyn's other ...
HI, Mindy. Thanks so much for your email and your input. I have used Pediasure in the past and wish I would have had it in the house! Alaina is doing better...
Hi, Heather. Hi, Karen. Alaina is getting better today. I'm going to talk to Alaina's pediatrician when we go in for the follow up on the ear infection and...
Jennifer, Our daughter Jennie, now age 16, never had a problem with antibiotics. As far as nutrition, have you ever given her Ensure? Jennie drank Ensure on...
Dave, Marie and Ashley: Thanks for reponding to my letter. I'm glad it helped some to see the similarities in our children. David also has a very short...
Hi Jennifer, Lee here Emily's mom (11), she has very bad reaction to antibiotics also. I haven't tried many, Cefizil, Erythromycin, Amoxicillin, (I don't...
Hi Jennifer It's Mindy again.I was just wondering if Alaina is your only child or do you have others? you said she was 3 right? when did you fing out...
MandM421@...
Dec 9, 2003 1:55 am
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Hi, Marcia Hope you and Jennie and your family are doing well. I have heard of Ensure...I will have to see what the difference is between that and Pediasure...
Hi, Mindy Alaina is our only child. She is 3.5 years old and will be 4 on April 7th. She was diagnosed at 9 months and I totally agree...I think one of the...
Hi, Lee. thanks for the email. I think the juicer is a great idea! I think we would even enjoy that as a family. I will have to investigate....see which ones...
I'm glad to hear Alaina is doing better. It is such a relief to have the worst over. Addie is turned 4 in July and our experiences are similar. It is so hard...
Hi Everyone, Holiday are very rough. The excitment, changes in schedules etc. My daughter Amanda (12) had the same problem. Our neuro put her on .5 mg of...
Hi Jennifer, I am glad to hear Alaina is feeling better, sometimes it gets really hard to tell just what to do...an when. I think we can all relate to that...
HI Karen, Emily had her first Christmas opening her own presents last year. Me and Ron got so excited, I actually cried. Usually she would go into full body ...
Jennifer It's me Mindy again..We live in New Jersey.Where do you live???????? Yes Hailey goes to school.she has been going well forever..as soon as I found out...
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Dec 10, 2003 3:54 am
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Hi All, Just thought I would let you know that Joel (20 months)is trialling a herbal medicine called "Fever Few". He has only had it for one week, with good...
Brenda, I believe that there is great hope Joel will only be physically affected with his AHC. Jennie, now age 16, spent the first six years of her life...
It is good to hear Joel is doing so well. David was quite severely delayed from about 3 months on we could really see the difference. He also was not diagnosed...
