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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)

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Messages 2773 - 2802 of 10531   Oldest  |  < Older  |  Newer >  |  Newest
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2773 cassiedawes Send Email Sep 1, 2003
9:29 am
Hi all firstly i am starting to toilet train Gus (4.5yrs). His OT came over today and measured up for a step and rails. Now i know Gus knows when he needs to...
2774 popcornkcv@...
popcornkcv Send Email
Sep 1, 2003
1:02 pm
Does anyone receive routine flu shots for their children? Do they help? Addie had left lower lobe pnuemonia 2 yrs in a row by January after numerous colds and...
2775 Mkderks@... Send Email Sep 1, 2003
1:41 pm
Nick, age 13, has had flu shots for the last five years without any problems. Prior to that when he would get the flu, it seemed to last longer than with the...
2776 LEE
homesofia Send Email
Sep 1, 2003
2:11 pm
Cassie, Emily (11) has had runny nose and loose stool, she is potty trained, but she still wears pull ups when she is in episode, We use a shake mix with...
2777 hourmom2003 Send Email Sep 2, 2003
4:02 pm
Cassie: David has had loose bm's in the past and after consulting with his Dr. we came to the conclussion that he had a lactose intolerance. Reducing or...
2778 hourmom2003 Send Email Sep 2, 2003
4:07 pm
Karen: David also gets alot of cold's and flu, but usually gets a less severe case than the rest of us so we have not tried flu shots. my middle daughter who...
2779 SJ Law
6laws@... Send Email
Sep 3, 2003
1:21 pm
Lynn, what address do we send the check to for the tape. Also, should we make it out to AHC or to you? Thanks again. Joan and Steve Law...
2780 MANEEXP@... Send Email Sep 3, 2003
2:18 pm
hi,this is dave ashleys dad,what is the cost of the tape and when can I get it,please advise---Dave [Non-text portions of this message have been removed]...
2781 hourmom2003 Send Email Sep 6, 2003
1:56 am
Hi everyone: I hope all your kids are adjusting to the new school year. We are very frustrated already. We started David back into full days because he was...
2782 Lynn Egan
laegan5 Send Email
Sep 8, 2003
2:04 pm
Dear Families, Sorry for the delay in getting a price to you for the video tape from Salt Lake City. Vacation and getting kids back to school sort of took...
2783 Don Kilpatrick
kilpatri@... Send Email
Sep 8, 2003
2:09 pm
Thank you for the update Lynn. Looking forward to seeing the tape. Don ... From: Lynn Egan <laegan6@...> To: afha@yahoogroups.com...
2784 cbarnett@...
seanpaul832002 Send Email
Sep 8, 2003
2:42 pm
Lynn, Please send me a copy of the video tape of the Salt Lake City meeting. Thank you, Charlotte Barnett and Sean Paul (son with AHC) 15223 Rio Plaza Drive ...
2785 Alsemb1234@...
alsemb Send Email
Sep 8, 2003
3:41 pm
Deanna, Amanda 12, had similar trouble. We asked the teacher to reduce the lighting in the room. The teacher went one step further and changed all the light ...
2786 LEE
homesofia Send Email
Sep 8, 2003
5:13 pm
Hi Deanna, Emily started middleschool this term. New environment, same teacher same aide. So far the transition has been great. the preparation was thought...
2787 Hannah Garnet
hannahgarnet Send Email
Sep 8, 2003
10:49 pm
Hi Lyn, I asked for a copy but probably not to you directly, and my request was missed. In any case please send to Hannah Garnet, 202 Pannahill Rd. Toronto,...
2788 Carol Presunka
sunplace95008 Send Email
Sep 9, 2003
10:23 pm
Hi everyone, I'm looking for some advice for a chair for Alex's (6 years old) classroom. The teacher is looking for something that will keep him more upright...
2789 LEE
homesofia Send Email
Sep 9, 2003
11:51 pm
Hi Carol, Emily used a rifton chair and a slant board or her Wheel chair tipped with the lap board attached,, she graduated to a trip trap chair, still uses...
2790 Joe&Becky
take2xcess Send Email
Sep 10, 2003
12:32 am
Jake, aged 12, has the exact same problem!!! It has gotten to where we don't go shopping much anymore...even grocery shopping. Becky...
2791 Carol Presunka
sunplace95008 Send Email
Sep 10, 2003
5:57 am
Thanks Lee, we use a Tripp Trapp chair at home now and love it. The school seems hesitant on using it though. Do you use the slant board on the TT tray? ...
2792 LEE
homesofia Send Email
Sep 10, 2003
4:12 pm
Carol: when necessary, but mostly at her desk. Lee ... From: afha@yahoogroups.com Date: Wednesday, September 10, 2003 01:57:08 AM To: afha@yahoogroups.com ...
2793 hourmom2003 Send Email Sep 10, 2003
5:31 pm
Caterine and Lee: Thank you for responding to my cry for help. School is getting worse and David now seems to be getting a cold and possibly heading for a big...
2794 MANEEXP@... Send Email Sep 10, 2003
6:01 pm
Hi, this is Ashleys dad dave,she is 14 first yr at high school,(special needs school) but as always there is the stress,however,medication can and does help...
2795 popcornkcv@...
popcornkcv Send Email
Sep 11, 2003
10:57 am
Hi Lynn, If you get the newsletter done in time that would be great. Do you want me to 'post' help wanted items that are in the website? Are these still...
2796 R Creech
runwild_30 Send Email
Sep 12, 2003
6:05 pm
I thought we were alone on the cleaning smells. Chad can't tolerate any strong smells, clorox etc. In order to really clean the house. He has to be away for...
2797 Deanna Huizing
hourmom2003 Send Email
Sep 12, 2003
6:19 pm
Dave: David is on Risperdal-a very low dose as he gets very tired on higher dose and has to have long afternoon naps. He is also on a low dose of Epival-...
2798 popcornkcv@...
popcornkcv Send Email
Sep 12, 2003
8:08 pm
does anyone feel or hear from their kids that the lights etc give them pain like migraines? [Non-text portions of this message have been removed]...
2799 LEE
homesofia Send Email
Sep 12, 2003
8:42 pm
Emily says yes, sometimes she gets migraine type headaches from bright lights, if she can't get away from it. She says only sometimes. Lee ... From:...
2800 Lynn Egan
laegan5 Send Email
Sep 13, 2003
1:50 pm
Hi everyone, I am writing on behalf of a family who's child is currently in ICU on a respirator. Has anyone had the experience of their child having to be on...
2801 Carol & Kevin Prunty
cprunty79 Send Email
Sep 13, 2003
2:40 pm
Hello, Mary has been on a respirator at various times over the years. We have had both good and bad experiences. When she was 3 we had a very hard time getting...
2802 popcornkcv@...
popcornkcv Send Email
Sep 14, 2003
1:09 am
Addie was first intubated in the emergency in January 2002. She had been sick over the winter with a cold-flu-cold cycle that wore her out and resulted in ...
Messages 2773 - 2802 of 10531   Oldest  |  < Older  |  Newer >  |  Newest
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