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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)
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Messages 2704 - 2733 of 6737   Oldest  |  < Older  |  Newer >  |  Newest
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2704
Lynn, we would love to have the information also. Joan and Steve, Clark 13...
SJ Law
6laws@...
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Aug 1, 2003
11:40 am
2705
Karen, Jennie goes to a regular public High School - the daily living skills classes are offered by the school for special needs kids. Marcia ... From:...
Marcia Perkins
marcia_perkins
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Aug 1, 2003
12:21 pm
2706
Hi Lynn I would like a copy of the video please Kelly Costedio...
Renny001@...
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Aug 1, 2003
11:04 pm
2707
Hi Lynn, I would like to receive a copy of the Video, along with the paper copies of the presentations. Thank you so much. Dana and Rich Tasi...
Dana Tasi
dtasi@...
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Aug 2, 2003
7:40 pm
2708
hi lynn this is mary tischler tanner's mother. i would also like to have a copy of the video tape and paper copy of the meeting. please let me know how i can...
mwmmtlc
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Aug 3, 2003
2:35 am
2709
hi everyone my name is mary tischler and my son tanner is 15 yr old now. im try to find out if any of the other children have spells that just effect the...
mwmmtlc
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Aug 3, 2003
2:56 am
2710
Hi Mary, This is Dana Tasi. My daughter Brooke is 12 years old. She does not have spells that just effect her mouth only, however, I can help you with ideas...
Dana Tasi
dtasi@...
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Aug 3, 2003
10:18 pm
2711 popcornkcv@...
popcornkcv
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Aug 4, 2003
12:24 am
2712
Hi Mary My daughter Addie, just turned 4 yrs old, and in fact had a predominantly mouth only attack today. She has slight tremoring and slight weakness in her...
popcornkcv@...
popcornkcv
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Aug 4, 2003
12:28 am
2713
Hi Mary, Karen again. Regarding the school and communication devices, I recommend you find a well qualified speech/language evaluation center that can work...
popcornkcv@...
popcornkcv
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Aug 4, 2003
12:31 am
2714
Hi, all. We just came off of one of Alaina's worst episodes yet. It lasted over a week and was moving from one side to the other with episodes of limpness and...
Jennifer & Anthony
jejeant
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Aug 4, 2003
3:04 am
2715
Jennifer, I have always been under the belief that the attacks are coming from the body trying to fight off the infection, the cold, or whatever the child is...
Marcia Perkins
marcia_perkins
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Aug 4, 2003
12:33 pm
2716
Hi, this is Ashley's dad she is 14 yrs, well the feed back I have received over the years is that the attacks can come for any reason, illness is not the ...
MANEEXP@...
Send Email
Aug 4, 2003
1:25 pm
2717
Hi Jennifer, Lee, Emily's mom (11), The first time we gave Emily antibiotics she was 8 months old and she had her first AHC full bodies episode. The next...
LEE
homesofia
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Aug 4, 2003
6:54 pm
2718
Hello My daughter is 6yrs old. (Hailey) We always seem to think the episode was happening from being sick..colds.etc....but who knows ??It's not fun not ...
MandM421@...
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Aug 5, 2003
1:36 am
2719
I have a son 13 years old. May times we have thought antibiotics and other drugs have somehow contributed to the frequency and severity of Davids episodes....
hourmom2003
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Aug 5, 2003
4:15 pm
2720
Hi Mary Alec 5 and Cami 2 have episodes that only effect the mouth. We took sign language and the kids both use it. The state of Ma offers a class for...
Renny001@...
Send Email
Aug 5, 2003
4:57 pm
2721
Dear Lynn: I would like to be put on the list for copies as well, if you need anything let me know. And how would I go about getting Emily's included in the...
LEE
homesofia
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Aug 5, 2003
5:22 pm
2722
Hi Deanna: Lee here, Emily is 11 now, and we have found out the hard way also that she is very sensitive to many things, not just medications. Some of her...
LEE
homesofia
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Aug 5, 2003
6:07 pm
2723
We have experienced somewhat similar situations with our son Kyle (12). He was initially considered by the public schools as non-verbal because he did not...
McGinley, David L
kanpoke
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Aug 5, 2003
9:56 pm
2724
Hi Lee, I have added your name to the list of families for the tape. I will try to get it out to you before I leave for vacation next Tuesday, Aug. 12. You...
Lynn Egan
laegan5
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Aug 7, 2003
3:12 am
2725
Hi Lee Deanna here. We have also found David very sensitive to things in his environment and foods as well. He had many food allergies when he was ...
Deanna Huizing
hourmom2003
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Aug 7, 2003
3:27 am
2726
Hi, this is Dave ashleys dad, she is 14.I have lived with AHC in ashley since she was 6 months,I have sceen it all and yes also tried to link spells with ...
MANEEXP@...
Send Email
Aug 7, 2003
1:43 pm
2727
hi Dave, and everyone I too have tried over the last 11 years to figure out what causes TJ's episodes, if there is a pattern, what I can do to prevent...
Wendy Walker
lyxana
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Aug 7, 2003
2:08 pm
2728
Wendy Great Job and I agree....How old is TJ? Mindy (mom to Hailey 6yrs.)...
MandM421@...
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Aug 7, 2003
3:43 pm
2729
Wendy Great Job and I agree....How old is TJ? Mindy (mom to Hailey 6yrs.)...
MandM421@...
Send Email
Aug 7, 2003
3:43 pm
2730
Hi Wendy, I agree with you wholeheartedly. Sometimes things bring on an episode with Alex and other times not. We refuse to let it impact his life. We've ...
Carol Presunka
sunplace95008
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Aug 7, 2003
4:21 pm
2731
Bravo Wendy lee ... From: afha@yahoogroups.com Date: Thursday, August 07, 2003 10:08:21 AM To: afha@yahoogroups.com Subject: RE: [ahc] to deanna and other...
LEE
homesofia
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Aug 7, 2003
6:22 pm
2732
I think that even though we all have accepted the ablilities our children have. We can't help but hope that one day we will stumble along a missing link that...
LEE
homesofia
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Aug 7, 2003
6:38 pm
2733
to all parents We too have discovered that letting David participate as fully as possible in life is best. His behaviour however makes this hard at times. The...
Deanna Huizing
hourmom2003
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Aug 9, 2003
2:16 am
Messages 2704 - 2733 of 6737   Oldest  |  < Older  |  Newer >  |  Newest
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