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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)
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Messages 2517 - 2546 of 6737   Oldest  |  < Older  |  Newer >  |  Newest
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2517
Hi all, We have just had the best five days with Joel (13 mnths old). He has been so well and happy, with no episodes (touch wood). I have felt on top of the...
brendals76
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May 4, 2003
10:45 am
2518
Kathleen has experienced non growth over the years. For two years when she was 6 and 7 she maintained a steady weight of 42 pounds. Then we saw some steady...
laegan6
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May 4, 2003
3:56 pm
2519
Hi, Alex stayed at 30 lbs for a couple of years. He grew like mad his first year and then coasted. He had another growth spurt the 4-5 year range where he...
Carol Presunka
sunplace95008
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May 5, 2003
1:15 am
2520
Lynn, My family is keen to attend the meeting in Utah. I would appreciate if you could clarify the following. 1. When do you want the final word from the...
Nandana Perera
nandanap@...
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May 5, 2003
1:30 am
2521
Brenda, Jake is 11 and a twin. He and his brother's weight changes remained pretty much the same until they were about 7. They were of normal size when born...
Joe&Becky
take2xcess
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May 5, 2003
2:35 am
2522
Thanks for your reply Becky, Joel was always known as a chubby baby, but I think it was more his big cheeks and round head that gave people that impression...
brendals76
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May 5, 2003
11:13 am
2523
Hi Lynn, You have summed me up pretty quickly, my husband keeps pushing me to take each day as it comes and stop presupposing what Joel "may" be like.I on the...
brendals76
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May 5, 2003
11:18 am
2524
I have never noticed any periods of time where Abbie did not show normal growth. As a matter of fact, at age 13, she has grown to 5' 6" and is well on her way...
KathHurl@...
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May 5, 2003
3:22 pm
2525
Hello Nandana, I am happy to hear that you will be attending! I have just put a letter in the mail with the information for the meeting. I am working with...
laegan6
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May 6, 2003
1:12 pm
2526
Lynn, I wonder if you have my mailing address correct. We have been moving often and (will be moving again on June 31!) Our present address is 12105, 41st ...
Nandana Perera
nandanap@...
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May 6, 2003
1:36 pm
2527
Not the address I had! I will make the change as I have the pile of letters sitting right here. Thanks for the update! Take care, Lynn ... From: Nandana...
laegan6
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May 6, 2003
2:06 pm
2528
Hi All, I am Adele Caruso, my son Louis is now 18 years old and I have a question about the children that have started taking Paxil. It seems Louis has been ...
ADCAR@...
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May 8, 2003
11:57 pm
2529
Hi, Adele -- my daughter is not on flunarazine but she does take ativan every day. It is an anti-anxiety med and was originally prescribed to her for ...
KathHurl@...
Send Email
May 9, 2003
3:06 pm
2530
Hello, I have an enquiry about flunarizine - Joel started Flunarizine 2 weeks ago. He has just had an episode that was his shortest and least severe. I was...
brendals76
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May 10, 2003
10:06 am
2531
Hi, this is Dave ashleys dad she is 14 yrs.It may have worked but either way you r luckey to get a mild spell,but it does take the sting out of the long hard...
MANEEXP@...
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May 10, 2003
2:26 pm
2532
Ok another med question,Ash is on paxil,20 mil a day 10 am-10pm.she was good early on,she is on this dosage about two weeks,started out on 10 then 15 now 20,at...
MANEEXP@...
Send Email
May 10, 2003
2:30 pm
2533
HI THIS IS CARRIE ,HALEY'S MOM.I HAVE BEEN READING ABOUT ALL THE KIDS ON PAXIL.I MYSELF TAKE PAXIL 30 MG FOR PANIC ATTACKS.IT IS VERY IMPORTANT THAT THE...
CARRIE DEHN
dehn_1
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May 11, 2003
6:38 pm
2534
HI, Joel (13 months), is to start Physiotherapy on Monday at the recommendation of his nuerologist. The therapist is not sure what she will need to do with...
brendals76
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May 14, 2003
11:31 am
2535
Hello again, I have just tried to create an album and add some photo's of Joel. I have never done this before so please let me know if you can view them. ...
brendals76
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May 14, 2003
12:50 pm
2536
Hi Brenda, Alex has had PT since he was 11 months old. We've had many Physiotherapists since then and noone seems quite sure the best way to work him. He's...
Carol Presunka
sunplace95008
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May 14, 2003
4:01 pm
2537
Hi Brenda: My name is Lee Sofia, I am new on this site. I remember all to well that it is scarry when they are so little and they have to do all this medical...
LEE
homesofia
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May 15, 2003
12:31 am
2538
Hi Lynn, Considering all the discussion about behaviour problems, would it be a good idea to have a psychologist/behavioralist to the presenters list at Salt ...
Carol Presunka
sunplace95008
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May 17, 2003
4:42 am
2539
Hi everyone, I must have misssed something but where exactly is this meeting going to be held once we've arrived in Salt Lake City? Hannah ... From: Carol...
Hannah Garnet
hannahgarnet
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May 17, 2003
12:24 pm
2540
Hi Brenda, This is Glenda. I have just been re-reading your posting below. You ask the question, "Have other people experienced this at Joel's age and then...
Sakareassen Family
gambel2000au
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May 17, 2003
2:54 pm
2541
Hi all this is Dave Ashleys dad she is 14.We have now used paxil for about 6 weeks and the dosage is 20 mil once a day in AM,she has shown much improvement in...
MANEEXP@...
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May 17, 2003
9:08 pm
2542
Dave It's mindy hailey's mom....i'm meeting with hailey's nero. in 2 weeks to discuss paxil...( sorry i'm typing with a baby in my arm) so i hope he will...
MandM421@...
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May 21, 2003
6:31 pm
2543
Hi, its dave Ashelys dad,Well i hope you can get paxil,ash still has her behavior problems at times but is much more focused and does not drool,bathroom habits...
MANEEXP@...
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May 21, 2003
7:57 pm
2544
The photos are beautiful...I wish that more people would put pictures up. Jake enjoys seeing them. Becky...
Joe&Becky
take2xcess
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May 21, 2003
9:05 pm
2545
what do I do to see the photos I don't see anything on there to click on thanks Mindy [Non-text portions of this message have been removed]...
MandM421@...
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May 22, 2003
5:25 pm
2546
You have to log in by using your yahoo login and password. The pictures of Laura are great too! How old is she? Becky...
Becky
take2xcess
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May 23, 2003
2:15 am
Messages 2517 - 2546 of 6737   Oldest  |  < Older  |  Newer >  |  Newest
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