Hi Mindy, I meet Dr. Zupanc in Seattle in 1997. She's very knowledgable with AHC as she has seen many patients. We talked on a regular basis prior to her...
243
MandM421@...
Feb 1, 2001 4:51 pm
Marcia I'm just leaving for Disney and checking my mail...I'll be back in a week and send you her address then......It's not by me right now Mindy...
244
pascal bruder
celpas.litom@...
Feb 11, 2001 10:24 pm
HI all parents, today our daughter Lili who has 2 years old had decided leave us for an other world . She doesn't wake up this morning . She 's dead. We think...
245
Lynda Burnham
lynda.burnham@...
Feb 12, 2001 1:26 am
Pascal & Celine: God Bless you both. May you have peace in your hearts knowing that your little one is on the hands of God. Keep in touch with us. Only time...
246
Bob or Donna Busby
rbusby@...
Feb 12, 2001 2:08 am
Dear Pascal & Celine, Pleas accept our deepest sympathy in the loss of your little daughter Lili...You are in our prayers..Please keep in touch with all of us....
247
KathHurl@...
Feb 12, 2001 1:37 pm
Dear Celine and Pascal, I am so sorry for your loss. God bless you both and please know that we all share in your grief and our prayers are with you and your...
248
Marcia Perkins
marcia.perkins@...
Feb 12, 2001 1:46 pm
Pascal and Celine, Your email was so touching I don't even know what to say. You are in my thoughts and I wish you strength in getting through this very hard...
249
stan
surge52@...
Feb 12, 2001 2:44 pm
Dear Celine and Pascal, we are so very sorry to hear about your little girl LILI,please know that she is in a better place now She will be in our thoughts...
250
Laegan@...
Feb 12, 2001 3:31 pm
Dear Celine and Pascal, My deepest sympathy at your loss of Lili. Our thoughts and prayers are with you during this time. Lili is now at peace and in the...
251
Rachel Salway
rachelsalway@...
Feb 13, 2001 10:31 pm
My sincerest apologies go out to you and your family. You are in my prayers and deeply in my thoughts. May God comfort your every step. Rachel Salway ... ...
252
MANEEXP@...
Feb 14, 2001 7:51 pm
We are all so sad at the passing of LILI,My I have details,if anyone knows of what complications she died of and did she have other problems other than ...
253
Rosaria Vavassori
mrvavass@...
Feb 14, 2001 10:31 pm
Dear Celine and Pascal, we had just begun to know about Lili and you from your first messages to the list; and at once you came to belong to the great family...
254
MandM421@...
Feb 15, 2001 2:27 am
Pascal and Celine Just wanted to say how deeply sorry we are to hear about your loss......our prayers are with you ......... Mark and Mindy (parents of...
255
ADCAR@...
Feb 15, 2001 2:52 am
Pascal and Celine, We just wanted to express our deepest sympathy on the loss of your precious little girl. Our thoughts and prayers are with you and your...
256
pascal bruder
celpas.litom@...
Feb 15, 2001 12:09 pm
Dears Parents and Members of international community of AHC, Please ,translate this letter because it's too difficult for us to write in english. Dčs le jour...
257
stan
surge52@...
Feb 16, 2001 2:56 am
... From: Pavol Galambos To: Barbora Majdekova Cc: stan ; Palo Kacer ; Lucia Bielicka Paulíková ; Lubo Murgaš ; Jan Kucera ; Jan Jozefak ; Ivan Kilian Sent:...
258
Todd and Roberta Creech
creech@...
Feb 16, 2001 3:04 am
would someone please translate this. ... From: "pascal bruder" <celpas.litom@...> To: <afha@yahoogroups.com> Sent: Thursday, February 15, 2001...
259
Laegan@...
Feb 16, 2001 5:12 am
HI, My mom is translating the message and it should be available by tomorrow. Lynn [Non-text portions of this message have been removed]...
260
stan
surge52@...
Feb 16, 2001 2:15 pm
... From: Rene Royer <renroy12@...> To: <surge52@...> Sent: Friday, February 16, 2001 3:25 AM Subject: Re: Hi Rene please translate this for me...
261
McGinley, David L
David.McGinley@...
Feb 16, 2001 2:43 pm
Here is a "quick" translation using an on-line translator. A more thorough translation is needed but this is a start....
262
McGinley, David L
David.McGinley@...
Feb 16, 2001 3:11 pm
Please accept our sympathy for your loss. We should never take for granted the blessings that we have with our children! Our prayers are with you.... David...
263
MANEEXP@...
Feb 16, 2001 5:24 pm
Hi,Im curious about the complications of LILI.If AHC was involved in the cause of death please advie with a few details as this may help others avoid this sad...
264
stan
surge52@...
Feb 16, 2001 5:26 pm
... From: Rene Royer <renroy12@...> To: <surge52@...> Sent: Friday, February 16, 2001 3:25 AM Subject: Re: Hi Rene please translate this for me...
265
yvonne3
yvonne3@...
Feb 17, 2001 4:15 am
Celine and Pascal, Our family wanted to let you know that we are thinking of you and your family during this time. Know that we are here if you need to talk. ...
266
Dana Tasi
dtasi@...
Feb 17, 2001 7:48 pm
I have a friend who has a son who may have AHC (still questionable it me be a secondary diagnosis). She asked me to find out if there are any AHC children who...
267
Lynda Burnham
lynda.burnham@...
Feb 18, 2001 12:20 am
Yes, Leslie was on Neurontin for over a year. During this time, she was experiencing lots of pain in her legs and joints. Her feet were also giving her...
268
mwmmtlc@...
Feb 18, 2001 5:38 am
Hello, My name is mary mother of Tanner. Tanner is 13 years old. Over the years I have noticed that when he is going to have a spell his breath gets a real...
269
Rosaria Vavassori
mrvavass@...
Feb 18, 2001 1:17 pm
Dear Pascal and Celine, I just wanted to thank you for your brave and hopeful words to all us AHC parents; I can hardly imagine how much they have cost you....
270
Cole, Alex
Alex_Cole@...
Feb 19, 2001 8:57 am
Dear all, First of all I feel for the Bruder's this morning. It is a week since I opened their message about Lili and a week since she died. Alice is well this...
271
Bob or Donna Busby
rbusby@...
Feb 19, 2001 3:48 pm
Hello, My name is Donna, Jayme is 14 and we have noticed this breath odor with him too. Even after he brushes his teeth he will still have an odor in his ...
