Mary Kay, Thank you for the information. My son's school district is Robbinsdale. We live in Plymouth, Minnesota. Could you tell me what your son's school...
Nandana Perera
nandanap@...
Mar 1, 2003 5:53 pm
2388
We're real close. We live in Loretto which is just west of Plymouth -- 5 - 15 miles depending where you are in Plymouth. Nick is in the Delano school ...
Mkderks@...
Mar 3, 2003 1:38 am
2389
Hi Jennifer, I think it's great Alaina loves riding. My older son started 2 years ago and he loves it. He thinks he's John Wayne! Addie loves horses and...
WE are thrilled to hear about Nick. I am sure we are very close to each other. Our zip code is 55441 and the phone # is 763-383-6011 Vishwa, my son is not one...
Nandana Perera
nandanap@...
Mar 3, 2003 4:03 am
2391
I may have asked this before but I was wondering if anyone of the list has ever had their child diagnosed with Raynauds phenomenon. Raynauds is basically...
SJ Law
6laws@...
Mar 3, 2003 12:39 pm
2392
TJ was given that diagnosis, sort of....spasming of the blood vessels usually occurs when the autonomic system (the part of your body that does stuff...
Hi, Karen Thanks for the good information. I will definitely follow up with the ideas you have provided. Because Alaina's 3rd bday falls in April, we are able...
Hi thumper, what part of Canada are you in. We're in T.O. and yes this winter has been hard on Ryan too. ... From: thumper To: afha@yahoogroups.com Sent:...
Our phone number is 763-479-3881 or you can call me at work 763-765-4515. I think it would be great to meet you. I would suggest sometime this weekend but...
Mkderks@...
Mar 7, 2003 2:24 am
2397
I am Teddy,I am from Roumania, Diana's father. Some of you have heared of me. I need your help because I have flunarizine for only two weeks. And my source...
Association Française Hémiplégie Alternante Dominique PONCELIN - Président A.F.H.A 4 chemin de la sablière 91180 St Germain lès Arpajon - France Hello...
Dominique Poncelin
d.poncelin@...
Mar 12, 2003 1:16 pm
2399
OK , I will send it to you next week at the following adress: teddy dumitrescu Str. Prelungirea Ghencea, Nr.28, Bl. C5, Sc. B, Et.10, Ap.79, Sect. 6, ...
Dominique Poncelin
d.poncelin@...
Mar 13, 2003 8:44 am
2400
Hi, I am in Belgium currently and I found a pharmacy who will sell me some if need be, let me know* Mylynda ... From: "Dominique Poncelin"...
Mylynda Schlesinger
mschlesi@...
Mar 13, 2003 11:38 am
2401
Hi Lynn- It's Kelly Costedio. Our family will be attending the meeting. Myself, Brad, Alec, Max and camryn. Max has recently been diagnoised with AHC....
Renny001@...
Mar 17, 2003 12:39 am
2402
Hi everyone, My daughter, jocelyn, is now 4 1/2 yrs and has been having ahc attacks every other week for the last 2 yrs. She has one side, full body, other...
Hi, this is Ashleys dad,she is now 14,Well sounds like most kinds with AHC,we still go through the same things,some days better than others,some meds that keep...
MANEEXP@...
Mar 18, 2003 4:11 pm
2404
Hi Dave, She has the feeding tube for her other dx, eosinophilic esophagitis (EE)and she doesn't eat or drink. She now has five foods she can eat but won't. ...
TJ, who is 10 (will be 11 on the 31st), still does this also, but he has learned to walk with only one side working....sure i might need to hold his hand...
Dave Again,well she is on dipacoat three times a day 250 mil. adavine and a new one for temperment,moods,behavior.Ill get the name and tell you,ash goes the...
MANEEXP@...
Mar 18, 2003 4:58 pm
2407
Hi, Heather. Alaina seems to have episodes about as often as Jocelyn. Alaina is getting ready to turn 3 years old (April 7) and we have seen both an increase...
Hi Heather, Addie will be 4 yrs in July. She too, can only handle so much physical activity. She will "run laps" around are house but if I let her go too...
Heather Alec, Max and Camryn all have very frequent but very short attacks. My husband brad always tells me to let them do whatever they feel they can even if...
Renny001@...
Mar 19, 2003 1:19 pm
2410
Kelly Wait I'm taken back a bit...you have three kids with AHC??? Mindy [Non-text portions of this message have been removed]...
MandM421@...
Mar 19, 2003 4:03 pm
2411
Hi Mindy yes, Maxwell was just diagnoised this year in January. The other two everyone already knew about (Alec and Max) Kelly...
Renny001@...
Mar 19, 2003 4:30 pm
2412
Hi, I was just reading about Alex and the other two children in the same family who have AHC.Can u tell me there ages and names,Im curious of any history in...
MANEEXP@...
Mar 19, 2003 7:50 pm
2413
David Alec 5-Max31/2-Camryn(Cami) 20 mo. This is still very new to us there is no known family history as of right now. I am in the process of talking to ...
Renny001@...
Mar 19, 2003 11:27 pm
2414
Hi, Kelly. I remember your beautiful kids and meeting you and your husband at the meeting in Chicago. I also remember Camryn had just started walking. :-) I...
Thank you all for your responses! You are all in my prayers. Jennifer, Alaina also sounds similar in her attacks to Jocelyn. I remember in chicago that she...
Karen, Hi. Jocelyn also can't go long with activities. Preschool is 2 1/2 hrs and she is exhausted afterwards. She almost always has a small attack after ...
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