Hi everyone, We have recently moved and need to put in a bathtub for Addie. She get's jittery, scared, and sometimes seizes with showers particularly if she...
sorry, I don't know anything about these bathtubs, but am I ever glad to hear from someone in the group. I've been looking every day, and just 5 minutes ago...
HI this is dave ashleys dad she is 14 now,she has not got her period yet but soon im sure,does anyone have information about the spells and behavior at this...
MANEEXP@...
Feb 8, 2003 12:11 am
2345
Hi, my Ashley 14 yrs is OK with a very warn room and shower, but a quick bath in very warm water is OK, if she gets cold its not good. All the kinds need to be...
MANEEXP@...
Feb 8, 2003 12:16 am
2346
Hi Hannah, It has been exceptionally quiet lately. I was just commenting on the same thing. Has anyone heard from the research group regarding the publishing...
thanks David, We too find Addie's trigger to be that point were she moves out of the bath and is exposed to colder temperature. She still loves water just...
Hi Karen, We've put a portable heater in the bathroom so when Alex gets out of the bath its not a shock to his system. We also find an extended period in the ...
Hi everyone, This is Karen V, mom to Addie Rose, 3.5yrs. Addie has had a very tough last 4 weeks. She came down with cold that worked into bronchitis then...
Although every child is different, when Jennie, now 15 got her first period at age 14 we saw no real changes in her disorder. We see some of the other typical...
Marica,thanks for the info,I was just curious if any changes were normal or not,but its good tat things are as usual for you,stay well --Dave and Ashley ...
MANEEXP@...
Feb 8, 2003 3:28 pm
2352
Hi Dave, Laura is about to turn 16 and has been getting her periods for four years now. The only problem she has is an outbreak of pimples... and I mean,...
Hi -- Abbie got her period last summer just after she turned 13. Nothing has changed with regard to her AHC -- as a matter of fact, she's been doing great and...
KathHurl@...
Feb 9, 2003 4:53 pm
2354
Sorry to hear shes having such a rough time. What type of seizures does she have again? When Chad get's sick he doesn't run a fever either but gets the shakes...
What is Gabitrol? I haven't heard of it. We are trying to get off Lamictal...seems like an almost impossible task. Everytime she gets ill or has a seizure,...
Hi, for those who replied to my question about girls 14 I thank you.Ive been working with her in all area of being comfortable about this time for her.Your...
MANEEXP@...
Feb 12, 2003 3:28 pm
2358
Did anyone respond to Karen V ..........."Has anyone heard from the research group regarding the publishing of their AHC treatment guidelines?" Does anyone...
cbarnett@...
Feb 12, 2003 4:09 pm
2359
Dear Families and Friends, The International Meeting will take place July 26-27, 2003 in Salt Lake City, Utah. We will be sending a letter in the next few...
HI, It has been a litle quiet around here lately. I was hoping to get some input from a few of you with older children. Alaina is turning three in April and I...
Hi -- I also wanted to mention that prior to when Abbie turned age 3 I was fortunate to have found a Day Care Center whose owner/operator was the mother of a...
KathHurl@...
Feb 18, 2003 9:52 pm
2362
I'm not sure about other states, but I know that in Massachusetts the public school system is required to provide all required therapies beginning at age 3....
KathHurl@...
Feb 18, 2003 10:04 pm
2363
Hi Jennifer, My advice would be to try and have your daughter attend the closest school possible to your home, try to have a job that allows you to be...
Hi Jennifer, Our daughter, Jocelyn, is in her second year of preschool through our school district. She receives OT/PT/SP during preschool. Because it is...
Hi Jennifer, Alaina will love preschool! Addie loves to be with the other kids. She started a special education collaborative preschool. She is in a class...
We plan on attending and will probably be there prior to July 26. Mary Kay Riley...
Mkderks@...
Feb 21, 2003 2:34 am
2367
This is Mary Kay Riley and my son Nick is 13 years old. Nick started out in a home daycare when he was eight months old and my biggest consideration was how...
Mkderks@...
Feb 21, 2003 3:03 am
2368
Hi everyone, I found the following site on the International Workshop of AHC that just took place in Paris in December. I thought everyone would be...
Hello this is Mindy mom to Hailey 6 yrs old with AHC Hailey has not had a really really bad attack for over a year and a half...really bad meaning both...
MandM421@...
Feb 23, 2003 10:10 pm
2370
Hi, IM sorry to hear your fears are getting to you,however,this to will pass. You have been lucky, a long time without spells you should feel blessed, this to...
MANEEXP@...
Feb 24, 2003 12:13 am
2371
Mindy, My daughter Amanda (11) has episodes that run every 18 months to 2 years. It's very frustrating, because nothing seems to be different. I can tell...
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