I think it was in Mylynda's reply to a specific email from me about making arrangements for a vacation to Utah. I had told her that I might be able to ...
2335
SJ Law
6laws@...
Jan 2, 2003 7:28 pm
Hi, sorry for the confusion, I also asked Mylynda about exchanging a time share week that we have. I meant to delete that part of her response. Joan ... ...
2336
Hannah Garnet
hannahgarnet
Jan 6, 2003 10:39 pm
Hi everyone, I've been off the e-mail for a number of months. Ryan had his first grand mall seizure in October. Never had one before, he's 22. This has...
2337
popcornkcv@...
popcornkcv
Jan 7, 2003 1:48 am
Hi Hannah, My 3yr old, Addie, has seizures. Currently I would say Addie deals more with seizures than with AHC. They can last for hours before medicine works...
2338
Hannah Garnet
hannahgarnet
Jan 10, 2003 12:45 am
Hi Karen, thanks for replying. What you describe sounds like Ryan's episodes related to Alternating Hemiplegia Syndrome, minus the breathing difficulty. Also...
2339
Hannah Garnet
hannahgarnet
Jan 15, 2003 8:20 pm
Hi everyone, I'm trying to get back into the group where letters from everyone are read. Is this it? Hannah [Non-text portions of this message have been...
2340
Marcia Perkins
marcia_perkins
Jan 15, 2003 8:31 pm
Hannah, Yes, this is the bulletin board where everyone signed up sees what you send and can respond. Welcome back. It has been pretty quiet for a few months...
2341
Hannah Garnet
hannahgarnet
Jan 15, 2003 9:30 pm
Thanks Marcia for letting me know I'm in the right place. It used to be that I would log on and see tons of letters. I guess everyone is busy. thanks again....
2342
popcornkcv@...
popcornkcv
Feb 7, 2003 2:17 pm
Hi everyone, We have recently moved and need to put in a bathtub for Addie. She get's jittery, scared, and sometimes seizes with showers particularly if she...
2343
Hannah Garnet
hannahgarnet
Feb 7, 2003 9:09 pm
sorry, I don't know anything about these bathtubs, but am I ever glad to hear from someone in the group. I've been looking every day, and just 5 minutes ago...
2344
MANEEXP@...
Feb 8, 2003 12:11 am
HI this is dave ashleys dad she is 14 now,she has not got her period yet but soon im sure,does anyone have information about the spells and behavior at this...
2345
MANEEXP@...
Feb 8, 2003 12:16 am
Hi, my Ashley 14 yrs is OK with a very warn room and shower, but a quick bath in very warm water is OK, if she gets cold its not good. All the kinds need to be...
2346
popcornkcv@...
popcornkcv
Feb 8, 2003 12:23 am
Hi Hannah, It has been exceptionally quiet lately. I was just commenting on the same thing. Has anyone heard from the research group regarding the publishing...
2347
popcornkcv@...
popcornkcv
Feb 8, 2003 12:26 am
thanks David, We too find Addie's trigger to be that point were she moves out of the bath and is exposed to colder temperature. She still loves water just...
2348
Carol Presunka
sunplace95008
Feb 8, 2003 12:42 am
Hi Karen, We've put a portable heater in the bathroom so when Alex gets out of the bath its not a shock to his system. We also find an extended period in the ...
2349
popcornkcv@...
popcornkcv
Feb 8, 2003 12:46 am
Hi everyone, This is Karen V, mom to Addie Rose, 3.5yrs. Addie has had a very tough last 4 weeks. She came down with cold that worked into bronchitis then...
2350
Marcia Perkins
marcia_perkins
Feb 8, 2003 2:17 pm
Although every child is different, when Jennie, now 15 got her first period at age 14 we saw no real changes in her disorder. We see some of the other typical...
2351
MANEEXP@...
Feb 8, 2003 3:28 pm
Marica,thanks for the info,I was just curious if any changes were normal or not,but its good tat things are as usual for you,stay well --Dave and Ashley ...
2352
Sakareassen Family
gambel2000au
Feb 9, 2003 10:24 am
Hi Dave, Laura is about to turn 16 and has been getting her periods for four years now. The only problem she has is an outbreak of pimples... and I mean,...
2353
KathHurl@...
Feb 9, 2003 4:53 pm
Hi -- Abbie got her period last summer just after she turned 13. Nothing has changed with regard to her AHC -- as a matter of fact, she's been doing great and...
2354
Todd Creech
runwild_30
Feb 10, 2003 2:18 am
Sorry to hear shes having such a rough time. What type of seizures does she have again? When Chad get's sick he doesn't run a fever either but gets the shakes...
2355
popcornkcv@...
popcornkcv
Feb 10, 2003 11:55 am
What is Gabitrol? I haven't heard of it. We are trying to get off Lamictal...seems like an almost impossible task. Everytime she gets ill or has a seizure,...
2356
popcornkcv@...
popcornkcv
Feb 11, 2003 12:37 am
[Non-text portions of this message have been removed]...
2357
MANEEXP@...
Feb 12, 2003 3:28 pm
Hi, for those who replied to my question about girls 14 I thank you.Ive been working with her in all area of being comfortable about this time for her.Your...
2358
cbarnett@...
Feb 12, 2003 4:09 pm
Did anyone respond to Karen V ..........."Has anyone heard from the research group regarding the publishing of their AHC treatment guidelines?" Does anyone...
2359
Lynn Egan
laegan6
Feb 18, 2003 1:32 pm
Dear Families and Friends, The International Meeting will take place July 26-27, 2003 in Salt Lake City, Utah. We will be sending a letter in the next few...
2360
Jennifer & Anthony &l...
jejeant
Feb 18, 2003 9:13 pm
HI, It has been a litle quiet around here lately. I was hoping to get some input from a few of you with older children. Alaina is turning three in April and I...
2361
KathHurl@...
Feb 18, 2003 9:52 pm
Hi -- I also wanted to mention that prior to when Abbie turned age 3 I was fortunate to have found a Day Care Center whose owner/operator was the mother of a...
2362
KathHurl@...
Feb 18, 2003 10:04 pm
I'm not sure about other states, but I know that in Massachusetts the public school system is required to provide all required therapies beginning at age 3....
