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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)

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Messages 2333 - 2362 of 10565   Oldest  |  < Older  |  Newer >  |  Newest
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2333 popcornkcv@...
popcornkcv Send Email
Jan 2, 2003
5:39 pm
What does "book your time share" mean? Karen V...
2334 KathHurl@... Send Email Jan 2, 2003
5:57 pm
I think it was in Mylynda's reply to a specific email from me about making arrangements for a vacation to Utah. I had told her that I might be able to ...
2335 SJ Law
6laws@... Send Email
Jan 2, 2003
7:28 pm
Hi, sorry for the confusion, I also asked Mylynda about exchanging a time share week that we have. I meant to delete that part of her response. Joan ... ...
2336 Hannah Garnet
hannahgarnet Send Email
Jan 6, 2003
10:39 pm
Hi everyone, I've been off the e-mail for a number of months. Ryan had his first grand mall seizure in October. Never had one before, he's 22. This has...
2337 popcornkcv@...
popcornkcv Send Email
Jan 7, 2003
1:48 am
Hi Hannah, My 3yr old, Addie, has seizures. Currently I would say Addie deals more with seizures than with AHC. They can last for hours before medicine works...
2338 Hannah Garnet
hannahgarnet Send Email
Jan 10, 2003
12:45 am
Hi Karen, thanks for replying. What you describe sounds like Ryan's episodes related to Alternating Hemiplegia Syndrome, minus the breathing difficulty. Also...
2339 Hannah Garnet
hannahgarnet Send Email
Jan 15, 2003
8:20 pm
Hi everyone, I'm trying to get back into the group where letters from everyone are read. Is this it? Hannah [Non-text portions of this message have been...
2340 Marcia Perkins
marcia_perkins Send Email
Jan 15, 2003
8:31 pm
Hannah, Yes, this is the bulletin board where everyone signed up sees what you send and can respond. Welcome back. It has been pretty quiet for a few months...
2341 Hannah Garnet
hannahgarnet Send Email
Jan 15, 2003
9:30 pm
Thanks Marcia for letting me know I'm in the right place. It used to be that I would log on and see tons of letters. I guess everyone is busy. thanks again....
2342 popcornkcv@...
popcornkcv Send Email
Feb 7, 2003
2:17 pm
Hi everyone, We have recently moved and need to put in a bathtub for Addie. She get's jittery, scared, and sometimes seizes with showers particularly if she...
2343 Hannah Garnet
hannahgarnet Send Email
Feb 7, 2003
9:09 pm
sorry, I don't know anything about these bathtubs, but am I ever glad to hear from someone in the group. I've been looking every day, and just 5 minutes ago...
2344 MANEEXP@... Send Email Feb 8, 2003
12:11 am
HI this is dave ashleys dad she is 14 now,she has not got her period yet but soon im sure,does anyone have information about the spells and behavior at this...
2345 MANEEXP@... Send Email Feb 8, 2003
12:16 am
Hi, my Ashley 14 yrs is OK with a very warn room and shower, but a quick bath in very warm water is OK, if she gets cold its not good. All the kinds need to be...
2346 popcornkcv@...
popcornkcv Send Email
Feb 8, 2003
12:23 am
Hi Hannah, It has been exceptionally quiet lately. I was just commenting on the same thing. Has anyone heard from the research group regarding the publishing...
2347 popcornkcv@...
popcornkcv Send Email
Feb 8, 2003
12:26 am
thanks David, We too find Addie's trigger to be that point were she moves out of the bath and is exposed to colder temperature. She still loves water just...
2348 Carol Presunka
sunplace95008 Send Email
Feb 8, 2003
12:42 am
Hi Karen, We've put a portable heater in the bathroom so when Alex gets out of the bath its not a shock to his system. We also find an extended period in the ...
2349 popcornkcv@...
popcornkcv Send Email
Feb 8, 2003
12:46 am
Hi everyone, This is Karen V, mom to Addie Rose, 3.5yrs. Addie has had a very tough last 4 weeks. She came down with cold that worked into bronchitis then...
2350 Marcia Perkins
marcia_perkins Send Email
Feb 8, 2003
2:17 pm
Although every child is different, when Jennie, now 15 got her first period at age 14 we saw no real changes in her disorder. We see some of the other typical...
2351 MANEEXP@... Send Email Feb 8, 2003
3:28 pm
Marica,thanks for the info,I was just curious if any changes were normal or not,but its good tat things are as usual for you,stay well --Dave and Ashley ...
2352 Sakareassen Family
gambel2000au Send Email
Feb 9, 2003
10:24 am
Hi Dave, Laura is about to turn 16 and has been getting her periods for four years now. The only problem she has is an outbreak of pimples... and I mean,...
2353 KathHurl@... Send Email Feb 9, 2003
4:53 pm
Hi -- Abbie got her period last summer just after she turned 13. Nothing has changed with regard to her AHC -- as a matter of fact, she's been doing great and...
2354 Todd Creech
runwild_30 Send Email
Feb 10, 2003
2:18 am
Sorry to hear shes having such a rough time. What type of seizures does she have again? When Chad get's sick he doesn't run a fever either but gets the shakes...
2355 popcornkcv@...
popcornkcv Send Email
Feb 10, 2003
11:55 am
What is Gabitrol? I haven't heard of it. We are trying to get off Lamictal...seems like an almost impossible task. Everytime she gets ill or has a seizure,...
2356 popcornkcv@...
popcornkcv Send Email
Feb 11, 2003
12:37 am
[Non-text portions of this message have been removed]...
2357 MANEEXP@... Send Email Feb 12, 2003
3:28 pm
Hi, for those who replied to my question about girls 14 I thank you.Ive been working with her in all area of being comfortable about this time for her.Your...
2358 cbarnett@... Send Email Feb 12, 2003
4:09 pm
Did anyone respond to Karen V ..........."Has anyone heard from the research group regarding the publishing of their AHC treatment guidelines?" Does anyone...
2359 Lynn Egan
laegan6 Send Email
Feb 18, 2003
1:32 pm
Dear Families and Friends, The International Meeting will take place July 26-27, 2003 in Salt Lake City, Utah. We will be sending a letter in the next few...
2360 Jennifer & Anthony &l...
jejeant Send Email
Feb 18, 2003
9:13 pm
HI, It has been a litle quiet around here lately. I was hoping to get some input from a few of you with older children. Alaina is turning three in April and I...
2361 KathHurl@... Send Email Feb 18, 2003
9:52 pm
Hi -- I also wanted to mention that prior to when Abbie turned age 3 I was fortunate to have found a Day Care Center whose owner/operator was the mother of a...
2362 KathHurl@... Send Email Feb 18, 2003
10:04 pm
I'm not sure about other states, but I know that in Massachusetts the public school system is required to provide all required therapies beginning at age 3....
Messages 2333 - 2362 of 10565   Oldest  |  < Older  |  Newer >  |  Newest
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