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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)
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Messages 3 - 33 of 7549   Oldest  |  < Older  |  Newer >  |  Newest
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3
Hi, I'am philippe Jourdain from AFHA. (http://www.afha.org) French AHC Assocation I'am the moderator of this list. We are 5 on the list but it's just the...
Philippe Jourdain
philippe.jourdain@...
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Feb 4, 2000
12:03 pm
4
Hello, I just received the new address. I was wondering if it works like the other one? Does the mail go to everyone or just one person? If so how do we log ...
yvonne3
yvonne3@...
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Feb 6, 2000
5:11 am
5
Hello Yvonne, Yes It works like the old Mailing list.... Mail goes to everyone.. on the list.... The moderator Philippe, ... From: yvonne3...
Philippe Jourdain
philippe.jourdain@...
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Feb 5, 2000
10:25 am
6
I am just trying this out. Is this our new way of communicating with each other? Has anyone else signed up yet? Donna [Non-text portions of this message have...
Bob or Donna Busby
rbusby@...
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Feb 7, 2000
6:21 pm
7
Hi Donna, Just signed up this morning. Also forwared Philipp's message to all email address' I had. Hope all will soon sign up. Take care, Lynn...
Laegan@...
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Feb 7, 2000
6:52 pm
8
Hi, If you want some informations about the Mailing list (subscriber) go to http://www.onelist.com/community/afha. Ps Lynn, Thank you for the list of E.mail. ...
Philippe Jourdain
philippe.jourdain@...
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Feb 6, 2000
7:04 pm
9
Hi everyone, I hope that everyone had a great New Years. It seems like forever since I last heard from anyone. I'm glad to see some new names on the list...
Becky
couger@...
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Feb 8, 2000
3:47 am
10
Hi, This is Richie and Laurie here at the Foundation Office in Michigan. We were offline for quite a while and are so happy to be back up and writing and...
richard.p.george@...
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Feb 8, 2000
10:55 pm
11
Hello to all the members of the new list! Let's hope that more and more people will join it. My son Alberto (almost 7) does have bahavioural problems: in...
Serenella Vavassori
svavass@...
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Feb 13, 2000
8:36 pm
12
It's been a while since we talked. Hope the new year finds you and your family well. Kyle's annual IEP is scheduled this next month; it also includes his in ...
D. McGinley
davidmc@...
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Feb 16, 2000
11:59 pm
13
Hi DeAnne, My son Jayme is 13 now. He wasn't completely toilet trained until about the age of 10. It was a real struggle. He didn't care if he went in his...
Bob or Donna Busby
rbusby@...
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Feb 17, 2000
2:09 am
14
Thank you for the words of encouragement. Kyle does show potential but still lacks the motivation for toilet training.. I particularly like the idea of the...
D. McGinley
davidmc@...
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Feb 17, 2000
2:42 am
15
OUR DAUGHTER HALEY HAS HAD SOME REAL STRUGGLES WITH TOLIET TRAINING ALSO...WE STARTED TRYING WHEN SHE WAS ABOUT 2 AND NOW SHE IS 8!...SHE HAS GOOD DAYS AND...
dehn_1
dehn_1@...
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Feb 17, 2000
3:24 am
16
Hi everybody, I'm Philippe Jourdain from France (for who don't know me)...... I'm the moderator (supervisor) of this new AHC Mailing list...... The old AHC ML...
philippe jourdain
pjourdain@...
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Feb 17, 2000
2:49 pm
17
My daughter Allison is 9 ½ and is toilet trained during the day. Nighttime is another story. She wears pullups every night and wakes up the next morning...
Laurie Baker
lbaker@...
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Feb 17, 2000
2:04 pm
18
Dear DeAnne, Kathleen has been trained since she was 5-1/2. But.....it was not without constant reminding to go, frequent accidents because she waited too...
Laegan@...
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Feb 17, 2000
2:26 pm
19
Hi all, I am glad to hear.....well not glad to hear but I think you know what I mean that some else is having problems with trying to toilet train there child....
Region10JL@...
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Feb 17, 2000
3:04 pm
20
I'm so glad to hear from everyone! Jake is 8 1/2 and at one time was almost completely trained in regards to bladder control, however he has never been able to...
Becky
couger@...
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Feb 17, 2000
10:35 pm
21
Hi, I was really interested in reading the recent mails about toilet training. Vishwa is 10yrs old now and this was one problem area for us. What bothered us...
nandana
nandanap@...
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Feb 18, 2000
3:09 am
22
Dear DeAnne, I read your e-mail and I have the same problem with Kristen. She is 6 and has no interest in the bathroom. I have tried everything. But she ...
yvonne3
yvonne3@...
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Feb 19, 2000
6:47 pm
23
Yvonne, Vishwa had the same problem and I think at the age of 6 hardly a few minutes passed withou him wetting his trousers. Now he is 10 and has come out of...
nandana
nandanap@...
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Feb 20, 2000
12:36 pm
24
Dear Nandana, I tried e-mailing you the other day and couldn't get your address to work. How have you and your family been doing? I didn't know if you had ...
yvonne3
yvonne3@...
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Feb 22, 2000
12:01 am
25
Hi everybody, I thought all of you would like this for a change! Regards, Nandana. I N S T R U C T I O N S F O R L I F E 1. Take into account that...
nandana
nandanap@...
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Feb 24, 2000
12:09 am
26
Hello everyone, I am Ashleigh Powells mum, she has AHC and is 8 years old. I haven't sent an email before but my husband has.I noticed the email recently from...
TPowell
tpowel6@...
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Feb 28, 2000
8:32 pm
27
Hi, I am Nandana, Vishwa's father. I read your message today about your daughter Ashleigh's episodes and the experience at the Great Ormond Children's...
nandana
nandanap@...
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Feb 29, 2000
7:35 am
28
Hi, I am Teddy and I need help. There is anyone who used ATROPINE for a eys control. I hear that in AHC to use ATROPINE is forbidden. I need your advice....
Tedy Dumitrescu
teddy@...
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Mar 1, 2000
9:33 am
29
Hi Nandana, I forgot to mention that Ash is also taking Flunarazine for her AHC. The Depakine Chromo(Sodium Valproate) and Carbamazepin are for her epileptic...
TPowell
tpowel6@...
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Mar 1, 2000
6:12 pm
30
Dear friends, just a little bit of Italian news for you. Last year, in April, we founded an association, it's called AISEA, and I am its president. We are 13...
Maria Rosaria Vavassori
mrvavass@...
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Mar 8, 2000
10:31 am
32
The previous message was not for the AHC mailing list... The username and the password have been changed, due to this mistake..... SORRY Rosaria.....but your...
Philippe Jourdain
pjourdain@...
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Mar 8, 2000
11:12 am
33
Don't worry Philippe, you are doing a great job for us anyway. We trust you completely. It's me who has to be sorry for the extra-work I am asking to you. ...
Maria Rosaria Vavassori
mrvavass@...
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Mar 8, 2000
4:01 pm
Messages 3 - 33 of 7549   Oldest  |  < Older  |  Newer >  |  Newest
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