David, Jennie reads at about a third grade level but doesn't enjoy reading at all. As far as math she is working on mastering counting money. She has even...
David -- Abbie only takes a very small dose of Ativan each day - .5mgs twice daily. It was prescribed for her about 8 years ago because she was exhibiting...
KathHurl@...
Mar 1, 2002 2:42 pm
1061
To Lynn Egan ... Dear Lynn, I have lost your new email address. Would you mind sending it to me again? Thank you. Rosaria, Italy...
Rosaria Vavassori
mrvavass@...
Mar 1, 2002 5:32 pm
1062
To Lynn Egan ... Dear Lynn, I have lost your new email address. Would you mind sending it to me again? Thank you. Rosaria, Italy...
Rosaria Vavassori
mrvavass@...
Mar 1, 2002 5:33 pm
1063
Hi again, Ash is at the same level reading and math, yes money is getting there, she is almost good at it. Sports she wants but if she works to hard she will...
MANEEXP@...
Mar 1, 2002 7:53 pm
1064
Carol. IM sorry to hear that the seizure hurt your daughter in that way, How old is she at this point in real years. How many spells does she have a month or...
MANEEXP@...
Mar 1, 2002 9:43 pm
1065
David, Mary is 15 years old. She has now, and always has had, hemiplegia attacks about once a week. Originally, and for many years, they would last 2-3 days,...
Kevin Prunty
prunty58@...
Mar 2, 2002 1:03 am
1066
The following web site is pictures of our son at the special olympics county games here in florida. He loves it. He was down with an ahc attack on the rt side...
Hi, I tried to go to the page for the pic of your son,no luck,if you could forward them or what ever but I would like to see them---David and Ashley [Non-text...
MANEEXP@...
Mar 2, 2002 5:06 pm
1068
Hi Roberta, Thanks for sharing your photos of Chad at the Special Olympics Country Games. I was delighted to see them. Congratuations on coming 2nd and 3rd...
Carol My daughter Margaret tried Depo Provera for a year or so. I'm not sure if it helped with the episodes, but we weren't impressed with the control (or...
Don Kilpatrick
kilpatri@...
Mar 5, 2002 10:02 pm
1070
Thanks for the newsletter.My daughter is hoping to join the kids group. Do you know the easiest way to send money from England for the newsletter? Sue...
Sue, If you send a check and write next to the amount US dollars. This makes it a lot easier for me, then I don't have to worry about the exchange rate here. ...
Kevin Prunty
prunty58@...
Mar 7, 2002 9:56 pm
1072
Hi, I hope someone out here can help me. I have an 11 year old daughter, Brooke, who had gone the longest time without having an episode (3 months and 2...
Dana Tasi
dtasi@...
Mar 10, 2002 12:49 am
1073
This question is to the familys that have boys. This is a tough question to ask. But I'm going to ask it anyway. Lately when my son is completely down unable...
Our daughter is only 2.5yrs. She recently had several bad colds in a row. By the 3rd one she did lose her ability to walk after about 10 minutes of being on...
We had a similar episode when Jennie, now age 14, was younger. She spent part of the week in the hospital because she was undiagnosed at the time and the only...
Hi Dana, I have twin boys, they will be13 in September, both with AHC, sad to say both my boys have had similar "bad attacks". Marcus was only two years old ...
Hi, my daughter Amanda had an episode about 1.5 years ago. The episode lasted approxiamtely 4 week. Unable to speak, swallow, no upper or lower body...
Alsemb1234@...
Mar 11, 2002 5:08 pm
1078
Hi, is she on any mediction,if so what ones,how old is she,any other problems.Yes it is frustrating but hang in there and work with her,support her and love...
MANEEXP@...
Mar 11, 2002 5:49 pm
1079
Hi,well our daughter Ashley 13 is always changing her attacks,some short and only part some hard and long some just a speck and gone.now its like every day or...
MANEEXP@...
Mar 11, 2002 6:09 pm
1080
Amanda is 10 years old and on flunarizine,5mg a day, 1mg Ativan nightly, imprimine (for seizures) and lithium (aggressive behavior). We have daily bouts of...
Alsemb1234@...
Mar 11, 2002 7:19 pm
1081
Jennie, now 14, has had a MacLaren stroller since about the age of 6. It has come in handy in many occasions as it is more durable than a regular stroller and...
Hi, this is Ashley's dad Dave, we took her of one of the meds,she is still on dipicoat and Flunarizine each day but the other drug was not helping, she started...
MANEEXP@...
Mar 18, 2002 8:30 pm
1084
Dave Jennie is always worse when she is sick and it always takes a long time for it to clear up. Even just a cold takes alot out of her. Does Ashley have...
Hi there, I've been reading about the debilitating effects sickness seems to have on our kids. Alex (4) had one really bad flu two years ago which set him...
Hi, Marcia. That is really nice of you to offer your stroller! My daugher, Alaina who will be two on April 7th is too young for the stroller, but I am sure we...
Marcia, We would be interested in the stroller. Our daughter is 3 1/2 yrs, goes to preschool, and she has attacks every other week that last for 5-9 days. ...
Hi My son Alec is almost 4. Recently his attacks have increased. The length of them as well as the length of the paralysis after. Does anyone know if this ...
