This is unbelievable! Thanks for posting. ... From: Siggi Jóhannesson To: afha@yahoogroups.com Sent: Thursday, October 29, 2009 9:42 AM Subject: [ahc]...
Hi Fran, When I read your description of your daughter as a baby, it brought back memories of Laura. She too, would turn her head to one side and her eyes...
I was so excited to be able to meet the Gates family yesterday. They are here in Utah for the drug trial. It was nice to be able to talk to someone that has...
My son Matthew (27 months) has been on flunarizine for 6 months now. I placed the next order nearly 2 weeks ago with the only pharmacy my doctor (Spencer...
I'll be glad to overnight you some tomorrow.We have plenty Mary takes the Apo-flunarizine now, not the original Sibelium since we can't get that anymore. How...
Carol & Kevin
pruntys79@...
Nov 2, 2009 1:54 am
7500
Hi Carol, I have had a few other responses with the actual Sibelium, so I think we are good for now, but bless you for the response :) Jeff ...
Hi Jeff We can send you some from Iceland, it might take few days though All the best Ragga, Siggi and Sunna 3 1/2 yr. ________________________________ From:...
Hi--in my reading on AHC, sleep is supposed to help symptoms. My daughter has been waking up every morning for the last several days with weakness on one side...
Hi Fran, Again...sounds just like my kiddo. At one point, my son woke up with hemiplegia and no speech everyday for 3 months, but it went away for 10 a.m. or...
Fran, just reading your posts (New and this one). Our daughter can have attacks of hemiplegia (weakness) within sevreal minutes of waking if in a cycle of...
Cassie, has your son been scoped (endoscopy) for Eosinophilic Esophagitis (EE)? When I saw he was on Neocate and trouble with proteins it raised huge red...
Thanks Heather. I guess one of the last questions would be about the developmental delay--I'm not sure hemiplegic migraine has that. I also just read your...
Hello all, I own a retail shop in St. Louis, Mo. As part of our 3rd anniversary this month, we are holding a silent auction fundraiser for AHC foundation. I...
Brooke, I'm not sure if there are any general brochures done up for the foundation, but I know for the Chicago Walk a couple of committee members made up...
Hi there, I have been trying over the past two months to get in touch with someone from the foundation and have had no luck. It has been really frustrating, ...
Hello Katrina and Delaney Our daughter first saw Dr. Andermann 26 years ago at the Montreal Neurological Hospital, and we have continued to see him on an...
Don Kilpatrick
donkilpatrick@...
Nov 5, 2009 2:59 pm
7512
Katrina and Brooke, You can send donations to 31250 Plymouth Rd, Livonia, MI 48150 and contact Richard George at (888)557-5757. We do not have a pamphlet, ...
You can also contact Lynn Eagan (her info is on contact page on ahckids.org) for information. Heather ... [Non-text portions of this message have been removed]...
Katrina, Sorry to hear about your frustrations with the foundation. I am happy to forward files for the materials I created for the Chicago Walk. You are...
Since there has been some discussion about raising money for the foundation lately, I thought I would pass along some good news. In September we held our 4th...
Vicky, That is really amazing, congratulations to you and everyone involved. I know how much work is involved and I want you to know we appreciate it. Thanks, ...
Hi Vicky, My sister lives in Chicago so we would love to be a part of the walk next year. Please let us know the dates! Katrina and Delaney ... [Non-text...
Free Health Care Clinic Detailed Information About The Following Topic Cosmetic Surgery <http://healthcareclinic4u.blogspot.com/2009/06/cosmetic-surgery.html>...
Ergent reply, so is anyone or has anyone had there child get the flu and H1N1 shot? I want to know i watched that video that was sent and it has worried me...
Hunter had the shot and did fine. He is three. Our doctor said it was very important Hunter get one because only about 400 people have died from H1N1 but 90%...
Thanks so much for the input i am just always so scared to get any thing for Tyler? I will check with the school and hope its the shot if its not than I will...
Hi everyone Just wanted to let you know that Sunnas (3 1/2 yr) neurologist highly recommended the H1N1 vaccine for Sunna. She has very low tolerance for any...
Abbie, age 20, has recieved both the regular flu shot and recently the H1N1 shot. So far, everything is fine. Also, one of the children in her residential...
KathHurl@...
1:39 pm
7524
Erika, I have chosen not to get the H1N1 vaccine for Hunter. After doing some research I don't feel that it is safe. I am however using homeopathic...
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