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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)
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Is she spoild ?   Message List  
Reply | Forward Message #7222 of 7529 |
Re: [ahc] Is she spoild ?

Tyler tells me now that he has head aches and also that his legs arms or what
ever r all tingly Tyler is so aware now of all that goes on and this helps us to
slow him down and have him take a rest and take deep breaths Tyler sometimes
does not slow down in time so that means a spell, I thank God everyday for the
school helping Tyler be aware of his body and helping him control his behaviors
wich than helps him be ready for learning I have a great suport team wich is
what everyone needs to fight for it is or childrens rights!!!!!!!
    I think Alexia is just going through the stage of waiting Mommy nothing u
have done it just takes our children a little bit longer to grow out of stages,
just have to start off with rocking her in a rocking chair and than laying down
with her reading her a book and letting her fall asleep and than gradualy
dropoing laying down before she falls asleep and she will cry but maybe not for
along time it is so hard not coddling to our children cause we love them so much
but CONSISTANCY is the key to our children Tyler thrives on concistancy its his
key to living!!!! he has been doing ok with out i try to switch things up to
have him learn do to the fact that life cant always be the same, he seems to do
well! well i have to get ready for work Tylers playing wii right now hes so gosh
darn cute!!!!
Erika Misenti
email me at emisenti@...




________________________________
From: natchalexia <natchalexia@...>
To: afha@yahoogroups.com
Sent: Monday, June 29, 2009 12:35:12 AM
Subject: Re: [ahc] Is she spoild ?





I Erika, Alexia she was more independet before when she wanted to take a nap and
she was playing in the floor she would just lay down and sleep but now I guess
she got used to the rocking thing and she wants to be rocked to sleep even when
she is not having the spell. Thats is my concern I dond't want her to be like
that I want her to be more in the floor when she is good so she can catch up and
learn new things but I am afraid to let her cry a little bet because she might
get the spell. so I guess I am spoiling her a little but what can I do? lol she
is my little special baby I get mad sometimes because I am so tired and stressed
but is so hard to see your baby following you all around the house grabing your
legs and pulling herself up. But thank god she is progresing and I hope she will
learn to walk pretty soon. The only down thing is when she have the spell she
goes back again in her development.
How frequent does Tyler has the spells? Alexia was having every 10 to 15 days
and it lasted for 3 days. but now we started flunarizine and she didn't have one
for 20 days. I guess she could had more days without the spell but since she had
ear infection and coughing and snizing so she couldn't sleep for a week so that
trigger the spell.
What do they feel when they have the spell? My daughter can't talk yet so its
hard for us to know what is she feeling.

take care.
Thais

--- In afha@yahoogroups. com, erika misenti <emisenti@.. .> wrote:
>
> well when Tyler was that little and actualy still to this day i have him in my
lap he is 11 now i cant stand and rock him way to big but when tyler was that
little that is what soothed him and yes if i stoped or tried to put him down he
would wake up not all the time but some of the time,Does Alexia have to be
rocked like that when she is not having a spell?  but she is only 18 months
bless her little heart.  Its hard to say u r doing whats best for her the pain
or children go through is un explainable major migrains and pain all over so i
think u r doing just fine and u love her what is ur heart telling u?
> Take care
> Erika
>
>
>
>
> ____________ _________ _________ __
> From: natchalexia <natchalexia@ ...>
> To: afha@yahoogroups. com
> Sent: Monday, June 22, 2009 11:26:51 PM
> Subject: [ahc] Is she spoild ?
>
>
>
>
>
> Hi my name is Thais my daughter Alexia is 18 months old and everytime she gets
an episode it last for 3 days and I have to be holding her in my arms and
walking, and if she sleep and I try to put alexia in her bed she will feel that
is not in my arms and she wake up, and again I have to hold her the funny thing
is that I have to be moving if I stop moving she start crying and her eye stard
moving wierd and I try to do everything so she can relax and dont get stress.
> But I don't know if she is doing that because she feels better in my arm or is
she spoild and she is manipulating me.
> Does anyone have a similar problem?
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>







[Non-text portions of this message have been removed]




Tue Jun 30, 2009 1:37 pm

emisenti
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Message #7222 of 7529 |
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Hi my name is Thais my daughter Alexia is 18 months old and everytime she gets an episode it last for 3 days and I have to be holding her in my arms and...
natchalexia
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Jun 23, 2009
3:27 am

Thais My daughter Sunna is 3 1/2 yr old and when she gets an episode I too have to hold her in my arms. In my opinion Alexia  is definately not spoild and...
Siggi Jóhannesson
sunnavaldis
Online Now Send Email
Jun 23, 2009
10:12 am

This is exactly I had to handle Nick's episodes when he was that age (he is now 19). During the three or four day episode he was either sleeping or held by me...
mkderks@...
mkderks
Offline Send Email
Jun 23, 2009
12:00 pm

My son Hunter C is the same way. When he has a full body episode he cries and hurts. I have to walk him around, push him in a stroller or drive around. It is...
harcompton@...
harcompton
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Jun 23, 2009
3:46 pm

Hi Thais, our daughter Jocelyn (10 yrs) needed to be held while walking around and then driving around as she got into the first year. A year before her...
Heather
hossanova2000
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Jun 23, 2009
12:43 pm

This is Mary's mom, Carol. She is now 23. We used to have to always rock her in the rocking chair to get her to relax and sleep during episodes. We did this up...
Carol & Kevin
pruntys79@...
Send Email
Jun 23, 2009
1:31 pm

Thais, My daughter experienced the same need for walking. The progression as Emma aged was from holding & walking, to walking in a stroller, and finally...
Platt, Vicky
ahcplatt
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Jun 23, 2009
3:14 pm

well when Tyler was that little and actualy still to this day i have him in my lap he is 11 now i cant stand and rock him way to big but when tyler was that...
erika misenti
emisenti
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Jun 26, 2009
2:07 am

I Erika, Alexia she was more independet before when she wanted to take a nap and she was playing in the floor she would just lay down and sleep but now I guess...
natchalexia
Offline Send Email
Jun 29, 2009
4:35 am

Tyler tells me now that he has head aches and also that his legs arms or what ever r all tingly Tyler is so aware now of all that goes on and this helps us to...
erika misenti
emisenti
Offline Send Email
Jun 30, 2009
1:39 pm
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