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Keppra/behavior/prepuberty   Message List  
Reply | Forward Message #7177 of 7583 |
Re: [ahc] Keppra/behavior/prepuberty

Joce hasn't used ativan since Dx except last hospitalization. When we
used to use it she would get agitated. How much does Abbie take a day?
Does she have anxiety issues?
Heather

KathHurl@... wrote:
>
>
> Are any of the children on Lorazepam or Ativan?? Abbie has been on it
> since she was about 4 -- she is now 20.? She doesn't have any
> behavioural problems now, but she could get pretty cranky when she was
> much younger.? We think that the lorazepam helped.
>
> -----Original Message-----
> From: Kelly Andrasco <kelly_andrasco@...
> <mailto:kelly_andrasco%40ameritech.net>>
> To: afha@yahoogroups.com <mailto:afha%40yahoogroups.com>
> Sent: Wed, Jun 17, 2009 5:02 pm
> Subject: RE: [ahc] Keppra/behavior/prepuberty
>
> Hi Heather,
>
> Kiley is 8 yrs old and is not on Keppra. I remember talking to Dr.
> Silver about her behavior when she was 5 yrs old and it has steadily
> gotten worse over the years. So in our case it has nothing to do with
> Keppra and I don't think puberty either due to the age it started.
> Kiley is somewhat similar to Jocelyn with the potty training in that she
> doesn't want to bother with it if she is playing or in the middle of
> some other fun activity. She definitely has trouble controlling the
> poop as opposed to pee. Also, we find that just before and during
> episodes, she can't control the toileting. We have an appointment with
> Dr. Silver next week and another doctor at the end of the month
> regarding the behavior.
>
> Kelly
>
> (mom to Kiley)
>
> -----Original Message-----
> From: afha@yahoogroups.com <mailto:afha%40yahoogroups.com>
> [mailto:afha@yahoogroups.com <mailto:afha%40yahoogroups.com>] On Behalf Of
> Heather
> Sent: Wednesday, June 17, 2009 3:30 PM
> To: afha@yahoogroups.com <mailto:afha%40yahoogroups.com>
> Subject: [ahc] Keppra/behavior/prepuberty
>
> Hi all, I've been reading the recent posts and we've been dealing with
> behavior issues for last year or so. We are trying to sort out what is
> behavior due to puberty beginning and "normal" bucking the
> parents/acting out behavior and what could be Keppra. As I've written
> before, we put her on Keppra after a severe AHC attack that put her in
> the hospital. The neuro thought it might help It's been 2 yrs since we
> put her on it and still are not at max dose (been on 5.5ml 2 x day) but
> decided to slowly up it (per Neuro plan) to full max dose of 9ml 2 xday
> and see if it helps attacks. If not we were going to take her off.
> Wellllll, the behavior of hitting, kicking, yelling has come and gone
> over the last year, but over last week has gotten bad. She reacts badly
> to every request of going to the bathroom to change pants (potty trained
>
> now with peeing, not pooping) or stopping activity to go (even with
> warning her in advance or if know she pooped). It's like reactive
> behavior of a 2-3 yr old.
> My question, do you who have kids on Keppra think it's the Keppra,
> puberty behavior, or what? I know people have said their girls attacks
> changed (hers are more frequent and the cycles are blurring together
> with too many triggered attacks). The anxiety is also over the
> top.(which I've read can be a bad side effect of Keppra) If anyone would
>
> like to share or be willing to talk over the phone, I'd appreciate it!
> Heather, mom to Jocelyn (10 1/2 yrs)
> hgates@buckeye- <mailto:hgates%40buckeye-express.com> express.com
>
> [Non-text portions of this message have been removed]
>
> [Non-text portions of this message have been removed]
>
>
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>



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Thu Jun 18, 2009 3:54 pm

hossanova2000
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Forward
Message #7177 of 7583 |
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Hi all, I've been reading the recent posts and we've been dealing with behavior issues for last year or so. We are trying to sort out what is behavior due to...
Heather
hossanova2000
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Jun 17, 2009
8:31 pm

Hi Heather, Kiley is 8 yrs old and is not on Keppra. I remember talking to Dr. Silver about her behavior when she was 5 yrs old and it has steadily gotten...
Kelly Andrasco
gandrhotmailcom
Offline Send Email
Jun 17, 2009
9:04 pm

Are any of the children on Lorazepam or Ativan?? Abbie has been on it since she was about 4 -- she is now 20.? She doesn't have any behavioural problems now,...
KathHurl@...
Send Email
Jun 17, 2009
9:16 pm

Joce hasn't used ativan since Dx except last hospitalization. When we used to use it she would get agitated. How much does Abbie take a day? Does she have...
Heather
hossanova2000
Offline Send Email
Jun 18, 2009
3:55 pm

Abbie takes .5 mg twice a day, which is a pretty low dose for a grown woman (she is almost 20 years old now) -- but her neurologist has said that even in low...
KathHurl@...
Send Email
Jun 19, 2009
3:02 am

Hi Heather, I am so glad you wrote.  This is EXACTLY what we are going through.  Addie has been on Keppra since 4.5 yrs old.  We have always had to go up...
kcventi
kcventi1
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Jun 18, 2009
1:28 am

Kelly, Joce finally has been peeing consistently on the potty for over a year, but it wasn't until few months ago she could feel when she had to go and tell...
Heather
hossanova2000
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Jun 18, 2009
3:53 pm

Karen, thanks for posting. I'll give you a call sometime tonight if that's okay (or if weekend is better let me know!). Funny you mentioned Skype. I thought...
Heather
hossanova2000
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Jun 18, 2009
3:57 pm

When we've used valium or ativan, outside of a seizure, Addie gets very agitated and revved up as well.  Karen V. ... From: KathHurl@......
kcventi
kcventi1
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Jun 19, 2009
12:56 pm

Hi all We have had terrible experience with Aivan and it is a definately not the drug for Sunna. Before Sunna was diagnosed with AHC at 14 mo. she was thought...
Siggi Jóhannesson
sunnavaldis
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Jun 22, 2009
11:25 am

Hi again Just wanted to correct myself. We do use Chloral, I wrote do not. Thanks Ragga ________________________________ From: Siggi Jóhannesson...
Siggi Jóhannesson
sunnavaldis
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Jun 22, 2009
1:12 pm

Hello to all of you.  I have been reading your post about behavior/prepuberty. Kristen(15) did have issues in the beginning.  We had a few years of behavior...
Sylvia Ockman
sockman1253
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Jun 25, 2009
3:06 pm

Sylvia, How did you know to try a different drug? Was it that it had no effect on her behavior, so you tried another? Kelly (Mom to Kiley, 8 yrs. old) ... ...
Kelly Andrasco
gandrhotmailcom
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Jun 25, 2009
9:31 pm

Kelly,   The dr. is the one who suggested that we try something different.  When we would start one we gave  it a couple weeks.  At first things would go...
Sylvia Ockman
sockman1253
Offline Send Email
Jun 29, 2009
3:09 pm

Thank you, Sylvia. We see the psych tomorrow. Kelly ... From: afha@yahoogroups.com [mailto:afha@yahoogroups.com] On Behalf Of Sylvia Ockman Sent: Monday, June...
Kelly Andrasco
gandrhotmailcom
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Jun 29, 2009
4:19 pm

Kelly,   Good luck.  Does your child have issues with being compulsive?  Kristen would pick her finger nails until they would fall off.  My advice would be...
Sylvia Ockman
sockman1253
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Jun 29, 2009
5:49 pm

Sylvia, I think she is more impulsive and she is obsessive, as in she won’t let things go or get off of a topic/question, especially if things don’t go her...
Kelly Andrasco
gandrhotmailcom
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Jun 29, 2009
9:21 pm

Kelly,   Kristen is the same way.  But now with the meds she will give in faster than before.  If I give her an answer that makes since she will now say ok...
Sylvia Ockman
sockman1253
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Jul 1, 2009
3:59 pm

Has anyone used Trileptal for stablizing moods? I know it is an anti-epileptic drug, too. ... From: afha@yahoogroups.com [mailto:afha@yahoogroups.com] On...
Kelly Andrasco
gandrhotmailcom
Offline Send Email
Jul 1, 2009
4:39 pm
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