HI Vicky,

Does the flunarazine actually help in seizure control? Joel has
been on Flunarazine since 1 yr old for the AHC, but I was speaking
to the Dr today about weaning him off it once his seizures are under
control because I wasn't really sure it was helping (AHC has been
pretty bad for a few months) and he is taking too many drugs - I
worry about long term damage to his liver. I do worry that if I do
wean him off, I will find out it was working, and he will be much
worse off.

If the flunarazine definately helps with the seizures, I will have
to rethink this plan of attack.

regards

Brenda
--- In afha@yahoogroups.com, "Platt, Vicky" <vaplatt@...> wrote:
>
> Emma(4.5) also experienced an increase in seizure activity shortly
after
> her 4th birthday. We finally got them under control using Topamax
and
> Flunarizine.
>
>
>
> I wish you great luck in finding something that works for Joel.
>
>
>
> Vicky Platt
>
>
>
> ________________________________
>
> From: afha@yahoogroups.com [mailto:afha@yahoogroups.com] On Behalf
Of
> brendals76
> Sent: Thursday, October 05, 2006 8:01 AM
> To: afha@yahoogroups.com
> Subject: [ahc] More Seizures & Epilim
>
>
>
> Hello again,
>
> Tonight, Joel (4) is back in hospital with more seizures, he had
> four in a short period of time, so they decided to admit him. (he
> only came home yesterday after having seizures Tuesday night -
> ARGH!!! I thougth AHC was bad enough until the seizures
started!!!).
> This time, his Dad is staying over with him - which feels really
> strange as I have always stayed with him. Yesterday, Joel started
> taking Epilim, on top of his tegretol and other drugs, for
> seizures. Can any one tell me if they have had any success with
> Epilim and Tegretol as a combination? (or any bad affects that I
> should keep my eye out for?)
>
> Thank you for all of the advice and responses to my previous
posts,
> it is fantastic to be "speaking" with people who truly understand
> what we go through, and to people who can help me understand what
> Joel goes through.
>
> thanks
>
> Brenda
>
>
>
>
>
> [Non-text portions of this message have been removed]
>