Greetings Mindy,
Thanks for responding and Happy Birthday to Hailey!I think you are
right about the vomiting being associated with headaches. By sharing
Hailey's experience, you've presented a pretty clear picture of a
possible future for Ian. As you say, she appears fine, but there are
some things that she cannot do. The same goes for Ian, and they are
things that most people would never notice unless they spent some
time with him.
As for your "french", I think you said it pretty well and I agree! :)
Best,
Paula
--- In afha@yahoogroups.com, MandM421@a... wrote:
>
> Paula
>
> My name is Mindy and my daughter Hailey has AHC...she will be 9
this month
> (Jan.) ( Hard to believe we've made it this long)
> I just read your letter and there are lots of thing that you say
Ian doe
> that my daughter does...there are plenty of times when she is in
an attack (as
> we call it) and she vomits...other times that she is in an attack
and doesn't
> vomit...I think the ones when she vomits are ones where she must
get a
> migraine also....(you know how they say AHC can be migraine
related) the other
> times she must not get the bad headache.( Hailey won't tell me how
she is
> feeling though)
> Like you we spent several times in the ER...until she was
diagnosed at 10
> months..........I live in Jersey and was unable to attend the
conference this
> time...If you saw Hailey you would not even know she was sick...if
you saw her
> walk you might think she has a bit of CP....other than that she
talks to us
> like anyone else...knows her ABC's, can count, knows her colors,
shapes, she
> can't write though...she has a hard time holding a pen or
pencil.......she
> can't read......she eats very messy....
> I don't know what I really am trying to say..just trying to
explain I
> guess........I know it's hard and I remember wanting to find out
what was wrong
> with my child so bad and then finding out and it is this rare
disease that know
> one can really help us with (excuse my french) But it just
SUCKS....
> What you said about him banging his head......whenever Hailey gets
hurt she
> has an attack...not always a bad one (bad ones to us are the one
that effect
> her whole body...the not so bad ones are the one sided
attacks.............
> oh well please feel free to ask as many questions as you like...
> Hang in there
>
> Mindy Jonkoski
>
>
> [Non-text portions of this message have been removed]
>