Hi everyone! We need some help dealing with Ashlynn's preschool!!!
Ashlynn, 3 years old, has not been to school since the first week of
October. We had a few paperwork issues that resulted in Ashlynn not
being able to attend. In the middle of October we moved to another
part of the county and Ashlynn was to start school at a new one on
October 24. That has come and went and we still do not have her in
school.
The public nurse in this area does not like our Health Care Plan and
has been trying to get us to change it. The Health Care Plan states
that if Ashlynn becomes paralyized, I am to be called immediately and
they are to wait 30 minutes before giving Clonazepam. During this
time they are to hold her and watch her for breathing problems. We
also have that they are to call 911 in the event she goes into full
body paralysis, because she always needs oxygen at that time. The
nurse wants to give Ashlynn the medicine right away and call 911
immediately for any episodes. We do not think that would be the right
to do and have refused to change our Health Care Plan. She has
paralysis almost every day so 911 would be constantly at the school
and due to other experiences will treat her as having a seizure. The
Health Care Plan is now being reviewed by the Health Department's
Public Nurse. We have been told that they may not accept our Health
Care Plan and it will have to be changed accordingly to her
recomendations. I did not think that they can make us change her
medication regime and deny her services if we did not change it. Are
we wrong?
The school is also not going to provide Ashlynn an aide. There are 7
other children with varying degrees of disablity and only 2 teachers.
I am concerned that there is going to be a safety issue for Ashlynn
and the other children due to Ashlynn may need the attention of one
teacher and then the other teacher will have the other 7 children to
herself. Or that they will miss all the signs of paralysis and
Ashlynn starts to have problems breathing. There are so many things
that could go wrong that I am terrified to send her to school once
they accept her. I just don't know what to do now. If anyone can
help, I would really appreciate it!!!
Hi everyone! We need some help dealing with Ashlynn's preschool!!! Ashlynn, 3 years old, has not been to school since the first week of October. We had a few...
My suggestion would be to contact PACER. This is a Parent Advocacy group and is based in Minnesota but they can direct you to the appropriate agency in your...
Hi Angela, My 6 yrs old is similar. We have a health care plan. We also have a nurse in her kindergarten who helps in the class after Addie goes home. She...
Karen, Thank you for the idea that the school should be providing at home services for Ashlynn! We had not thought of that and I was becoming concerned that...
PS. I also think the school needs to supply you with compensatory at-home services for the time she is missing if your daughter is in a state with public ...
Thanks for the website info! I got on there and it pointed me to someone local. Tomorrow I will be contacting someone there. Ashlynn has a case manager but...
The Health Department nurse just denied Ashlynn's Health Care Plan. They want to be able to give her medicine (Clonazepam) as soon as she goes into paralysis....
What about getting a note from the neurologist? What about having the neurologist or family doctor attend the meeting? What about having the neurologist...
if your child has chance of being overmedicated, you may consider seeing if you qualify for nursing hours or personal care attendant hours that could be used...
Angela- Emma, 3 1/2, is in preschool and receiving excellent services. While this doesn't help with your immediate problem, maybe you could ask the group to ...
Vicki Thank you for taking the time to respond to my email. Do you have an aide for Emma? What is your Health Care Plan? Thanks again, Angela Sparks:0) ... ...
I am so sorry to hear of your struggle! We have been lucky in the team that helps us support Cameron because they have always been eager to help in the very...
Thank you for your response! I have told the school from the beginning that I will come to school and stay with Ashlynn for as long as needed because I know...
Sure. For the record, Cam's school also does not have a full time nurse. The nurse who works in his school travels through the district and is in his school...
Hello My daughter, Hannah started preschool this September. We had a problem with the plan too, but we finally got the neurologist wrote the letter with it....
Hello all Just thought i would let everyone know that TJ has been put on a new medication called Florinef. He is starting this med because on of his autonomic...
Once in a while before my daughter (Kiley age 4) has an episode, her lips turn white, her eyes go up into her head and she vomits. After that she is fine. Is...
i am no doctor, but as far as i have been told, autonomic disturbances have to do with whatever your body does automatically. TJ is on a heart/apnea monitor...
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