--- In afha@yahoogroups.com, popcornkcv@a... wrote:
>
> Hi Karen and Steve
>
> Our daughter is 6yrs old and has AHC and seizures and her speech is
> significantly delayed. Addie did have behaviors act up
particularly at the end of her
> school year last year and early summer before her summer school
started.
> Looking back several things standout..
>
>
> She was much older and smarter than the school spec ed class she
was in. Her
> teacher for the last 3 yrs started having alot of problems with her
> inflexibility. We saw this at home too. Lots more melt downs,
fights with brother.
> Thought we were on a really bad track. However, she was in a great
summer
> class and fall class where more is expected of her and her
classmates (8 other
> ranging from 6-8yrs, k-3 grade) are a solid peer group for her.
Her teacher's
> approaches allows her to feel independent while staying with her
schedule and
> peers. She also had a big jump in her verbal communication.
Although she is
> still hard to understand her articulation, she went from 2-5 word
sentences to
> conversation and thoughts and feelings. So i thinkg her new
placement and
> structure has helped her self esteem as well as provided good
services.
>
> Our neuro in Boston had a family and then teacher/therapist,
symposium
> addressing epilepsy and schooling. One of the points made is that
across most kids
> with nuero issues espec. epilespy, inflexibility is a common
thread. These
> kids can get stuck and have a harder time tiwh lots of things from
transitions(
> of anykind) to brain processing speed, fatigue etc. But you have
to look at
> each child individually to see where their strengths and weakness
are. Easy to
> say but playing to the strengths while getting support/services to
address
> weaknesses is necessary.
>
> Medications can also cause behavior issues. Is Ashley on meds for
seizures
> and AHC?
>
>
> I hope this helps a little.
>
> karen and addie
>
>
>
> [Non-text portions of this message have been removed]
>



> Hi Karen And Abbie
Thanks for the letter. Yes, Ashley is on meds for Seizures and for
ahc. She is taking Flunarizine, Trileptal, Lamictal, clonazepam, and
Guanfacine. Three of those meds are for seizures, although this new
doctor that she is seeing, does not think alot of the things that we
think are seizures, really are. They want to put her in the hospital
for 2-5 days and watch her to see if that is what they are or not.
They also think that she has autism. i don't know alot about that,
but i am going to do some research on it. Ashley has hemoplegia
episodes, but are not nearly as bad as they used to be. She may have
one every 2-4 weeks, but they don't last long. The lamictal that her
doctor put her on is for seizures, but for some reason has also
helped with the episodes. She is in a regular school, but is in a
special class with kids with all kinds of problems. I have to go now
thanks.
Karen and ashley