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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)
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Re: [ahc] New member   Message List  
Reply | Forward Message #4242 of 7583 |
Re: [ahc] New member

Hi Karen (KS) and Carol (CA),

I was hoping to talk with you and compare notes about our children with AHC
and seizures. It was clear to me at the BOston mtg that my approach to my
daughter feels so different then most I met that w/e b/c of the seizure piece.
I
find I don't take her to big, public places b/c she usually will seize and
often those seizures require meds and oxygen.

Are you interested?

thanks Karen and Addie (MA)


[Non-text portions of this message have been removed]




Fri Nov 11, 2005 5:39 pm

popcornkcv
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Message #4242 of 7583 |
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Hi, Karen We are in Kansas City, MO...are you the family that also sees Dr Torkelson at Children's Mercy? We also met at the AHC meeting in Chicago.... Take...
Jennifer
jejeant
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Nov 10, 2005
9:54 pm

... Torkelson ... <> Hi, Jennifer ... <.> ... have a ... age. ... Topeka ... Ashley, ... who...
ashleynichole1997
ashleynichol...
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Nov 11, 2005
1:08 am

Hi Karen and Steve Our daughter is 6yrs old and has AHC and seizures and her speech is significantly delayed. Addie did have behaviors act up particularly at...
popcornkcv@...
popcornkcv
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Nov 11, 2005
1:31 pm

... particularly at the end of her ... started. ... was in. Her ... fights with brother. ... summer ... classmates (8 other ... Her teacher's ... schedule and...
ashleynichole1997
ashleynichol...
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Nov 11, 2005
9:50 pm

Hi all, this is Dave Ashley's dad just thought Id give an update. She is going to be 17 in Jan, hard to believe,however,she is now ending her first year at...
MANEEXP@...
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Nov 11, 2005
2:01 pm

... Dave It always sounds like you have such amazing strength. God bless ashley and your family it sounds like you found something that works for you all....
renny01@...
costedio
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Nov 11, 2005
5:41 pm

Hi Karen and Steve, Just a thought...if you haven't already done this you may want to have Ashley evaluated at some point by a neuropsychologist. The...
popcornkcv@...
popcornkcv
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Nov 12, 2005
2:02 pm

... have Ashley ... eval is just ... in the ... services to help with ... with ... diagnose autism. ... with children ... scripting and ... allow the kids ... ...
ashleynichole1997
ashleynichol...
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Nov 12, 2005
2:45 pm

Addie's little events also involve her mouth alot. She also has had lots of meds without responses for over 2-3 hrs. Docs say they are seizures but it does...
popcornkcv@...
popcornkcv
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Nov 12, 2005
5:56 pm

Hi Karen (KS) and Carol (CA), I was hoping to talk with you and compare notes about our children with AHC and seizures. It was clear to me at the BOston mtg...
popcornkcv@...
popcornkcv
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Nov 11, 2005
5:39 pm
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