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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)
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Re: [ahc] New member   Message List  
Reply | Forward Message #4238 of 7583 |
Re: [ahc] New member/good to hear from you!

--- In afha@yahoogroups.com, "Jennifer" <jejeaja@k...> wrote:
>
> Hi, Karen
>
> We are in Kansas City, MO...are you the family that also sees Dr
Torkelson
> at Children's Mercy?
> We also met at the AHC meeting in Chicago....
>
> Take care,
> Jennifer (mom to Alaina, 4/7/00 and Lydia, 9/8/05)
> jejeaja@k...
>

<> Hi, Jennifer
>Hello just wanted to thank you for the message. Hope to talk soon.
> Steve & Karen


<.>
>
> ----- Original Message -----
> From: "ashleynichole1997" <ashleynichole1997@y...>
> To: <afha@yahoogroups.com>
> Sent: Thursday, November 10, 2005 3:38 PM
> Subject: [ahc] New member
>
>
> > Hi, my name is Karen Newman and my husbands name is Steve. We
have a
> > daughter with AHC. She is 8 and she was diagnosed at 3 months of
age.
> > We also have 2 other children who are not affected. We live in
Topeka
> > Kansas. We are experiencing a lot of attitude problems with
Ashley,
> > Ashley also has seizures too. If there is anyone else out there
who
> > has a child with seizures it would be nice to hear from you.
> >
> >
> >
> >
> >
> >
> >
> > Send a mail to the AHC community :
> > Send a mail : afha@yahoogroups.com
> > Subscribe : afha-subscribe@yahoogroups.com
> > unsubscribe : afha-unsubscribe@yahoogroups.com
> > Owner of the list : afha-owner@yahoogroups.com
> >
> > Link to the URL :
> > http://groups.yahoo.com/group/afha
> > AHC Website :
> > http://www.afha.org
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
> >
>








Fri Nov 11, 2005 1:08 am

ashleynichol...
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Message #4238 of 7583 |
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Hi, Karen We are in Kansas City, MO...are you the family that also sees Dr Torkelson at Children's Mercy? We also met at the AHC meeting in Chicago.... Take...
Jennifer
jejeant
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Nov 10, 2005
9:54 pm

... Torkelson ... <> Hi, Jennifer ... <.> ... have a ... age. ... Topeka ... Ashley, ... who...
ashleynichole1997
ashleynichol...
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Nov 11, 2005
1:08 am

Hi Karen and Steve Our daughter is 6yrs old and has AHC and seizures and her speech is significantly delayed. Addie did have behaviors act up particularly at...
popcornkcv@...
popcornkcv
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Nov 11, 2005
1:31 pm

... particularly at the end of her ... started. ... was in. Her ... fights with brother. ... summer ... classmates (8 other ... Her teacher's ... schedule and...
ashleynichole1997
ashleynichol...
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Nov 11, 2005
9:50 pm

Hi all, this is Dave Ashley's dad just thought Id give an update. She is going to be 17 in Jan, hard to believe,however,she is now ending her first year at...
MANEEXP@...
Send Email
Nov 11, 2005
2:01 pm

... Dave It always sounds like you have such amazing strength. God bless ashley and your family it sounds like you found something that works for you all....
renny01@...
costedio
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Nov 11, 2005
5:41 pm

Hi Karen and Steve, Just a thought...if you haven't already done this you may want to have Ashley evaluated at some point by a neuropsychologist. The...
popcornkcv@...
popcornkcv
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Nov 12, 2005
2:02 pm

... have Ashley ... eval is just ... in the ... services to help with ... with ... diagnose autism. ... with children ... scripting and ... allow the kids ... ...
ashleynichole1997
ashleynichol...
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Nov 12, 2005
2:45 pm

Addie's little events also involve her mouth alot. She also has had lots of meds without responses for over 2-3 hrs. Docs say they are seizures but it does...
popcornkcv@...
popcornkcv
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Nov 12, 2005
5:56 pm

Hi Karen (KS) and Carol (CA), I was hoping to talk with you and compare notes about our children with AHC and seizures. It was clear to me at the BOston mtg...
popcornkcv@...
popcornkcv
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Nov 11, 2005
5:39 pm
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