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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)
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Re: [ahc] Reply to Rebecca and Potty training   Message List  
Reply | Forward Message #3140 of 7585 |
Re: [ahc] Reply to Rebecca and Potty training

Hi Jennifer,

Trevor just turned 5, he also has dry diapers at night but otherwise
is showing no interest other than telling me I should go to the potty
or telling me the dogs need to go out to potty we have read all the
potty books I can find and he loves them, he has lots of different big
boy undies to wear and I have tried that and talked to him about when
he is wet. All this with no success at all. The more I talk aobut
it the worse it gets until he doesn't even want me to change him. I
have tried the reverse and not pushed at all but we aren't getting
anywhere with this. HELP PLEASE !!
Karen and Trevor




- In afha@yahoogroups.com, "Jennifer" <jejeaja@k...> wrote:
> Hi, Karen
> This is Jennifer, Alaina's mom.
>
> We are getting serious about potty training this summer. How old is
Trevor
> again? Alaina turned 4 years old in April.
>
> I think mentally she is ready - she knows the feelings, has dry
diapers upon
> waking, shows interest, etc.
> I just don't know if she will be able to independently remove her
clothing,
> get on the toilet, etc.
>
> I also would love to hear any advice, tips, etc. from the other parents!
>
> Take care,
> Jennifer
>
> ----- Original Message -----
> From: "kluting1" <kluting1@y...>
> To: <afha@yahoogroups.com>
> Sent: Thursday, May 13, 2004 8:14 PM
> Subject: [ahc] Reply to Rebecca and Potty training
>
>
> > Hi Rebecca,
> >
> > I am trying to remeber back a few years but I believe when Trevor was
> > younger we would see the crunchy joints a lot more. Even now in a bad
> > week we see it lots but it has improved. I also was reluctant to try
> > the flunarazine and now feel horrible I didn't try it sooner we are
> > still weaning the nightmare drug phenobarb from Trevor. When we
> > started the flunarazine we had the first 30 days free of episodes I
> > mean nothing it was wonderful. Then we started seeing the episodes
> > that he did have shorter and much less of the eye nystagmus. We still
> > do see the weird eye movements regularly but much less then when he
> > was an infant. I also tried a few different medications but with much
> > reluctance and no good outcome we weaned him back off everything and
> > now only use valium to break severe episodes we have had wonderful
> > luck with this med it has given us back a life and we are able to
> > travel a few times a year. Trevor also does better on routines and
> > will forget words as someone I think Lee mentioned but the next day he
> > will spit out a word I haven't heard him say before and once we
> > practice saying the word he forgot he gets it back eventually. I
> > don't know if this helps or not. It took us almost 2 years to get the
> > AHC diagnosis and tons of tests so hang in there.
> >
> > To Everyone:
> >
> > On a different subject we are having a horrible time with potty
> > training!!! I have tried almost everything from toys after he goes in
> > the potty to cheerios in the toilet to watching other boys at
> > pre-school who are also learning potty training. We were on the right
> > track when he was 2 but we moved twice and now he has no interest at
> > all. Any advice would be greatly appreciated. Thank you,
> > Karen and Trevor
> >
> >
> >
> >
> > Send a mail to the AHC community :
> > Send a mail : afha@yahoogroups.com
> > Subscribe : afha-subscribe@yahoogroups.com
> > unsubscribe : afha-unsubscribe@yahoogroups.com
> > Owner of the list : afha-owner@yahoogroups.com
> >
> > Link to the URL :
> > http://groups.yahoo.com/group/afha
> > AHC Website :
> > http://www.afha.org
> > Yahoo! Groups Links
> >
> >
> >
> >
> >




Fri May 14, 2004 4:35 pm

kluting1
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Forward
Message #3140 of 7585 |
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Hi, Karen This is Jennifer, Alaina's mom. We are getting serious about potty training this summer. How old is Trevor again? Alaina turned 4 years old in...
Jennifer
jejeant
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May 14, 2004
1:32 am

Hi Jennifer, Trevor just turned 5, he also has dry diapers at night but otherwise is showing no interest other than telling me I should go to the potty or...
kluting1
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May 14, 2004
4:36 pm

Hi everyone, I also am in need of help with the potty issues. Jocelyn used to sit on the potty and went acouple times a yr ago. Now she doesn't want to sit...
Heather
hossanova2000
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May 15, 2004
12:49 pm

Heather, We have a handicap grip bar on the wall next to the toilets, and a small stool so she could step up holding on and we used those padded one piece ...
lee
homesofia
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May 15, 2004
1:03 pm

Heather, Emily just reminded me of something we used to do when she was younger, we used to read books while we were waiting, we used to sing the "potty song" ...
lee
homesofia
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May 15, 2004
1:20 pm

Lee (and Emily), Thanks for the great ideas. We will try the potty dance and next house try the bars on the wall (considering moving). We do have the soft...
Heather
hossanova2000
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May 15, 2004
10:35 pm
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