hi Deanna,
Emily still has that problem after an extended episode, her regular routine
is once a day in the AM. if is notice she misses one day, I give her a
teaspoon of Flax seed oil, if she hasn't gone by the end of the day, I give
her a second teaspoon of oil, etc...It is really good for them, and it helps
soften things up when they stay in the track too long. I find the liquid
isn't bad tasting, it is kind of nutty flavored, Em can't swallow pills yet,
but it also comes in gel cap form. I buy it in the healthfood store in the
refrigerator section. Obu's oil formula is really great stuff, a little
more costly than straight flax oil, Spectrum is the most common brand I find
here. When Em was younger she would eat prunes, but as she got older she
started turning fruit away.

if it gets to the point where a few days have passed and "no production" I
have had to use a liquid glycerin and insert it anally with a dropper.
after about 10-20 minutes it softens the stool enough to pass without much
problems.
hope it helps,
Lee
-----Original Message-----
From: Deanna Huizing [mailto:dlh_36@...]
Sent: Thursday, March 11, 2004 1:17 PM
To: afha@yahoogroups.com
Subject: RE: [ahc] Digest Number 711Losing abilities



Hi all: David has had total loss of his abilities on several occassions.
None seemed related to antibiotics, but always after a severe and prolonged
AHC episode or a severe seizure. It has taken him anywhere from 2 weeks to
2months to slowly regain all abilities. Some things never fully returned,
ie. attention span. Also he used to suffer from alot of constipation when
he was very young and after episodes. Lately it has been a continual
problem,a nd the usual things like high fiber, increase liquids, etc. are
not working. Has anyone else experienced this and what worked for your
child? Deanna

>From: afha@yahoogroups.com
>Reply-To: afha@yahoogroups.com
>To: afha@yahoogroups.com
>Subject: [ahc] Digest Number 711
>Date: 9 Mar 2004 17:23:42 -0000
>
>
>There are 4 messages in this issue.
>
>Topics in this digest:
>
> 1. RE: Losing abilities
> From: lee <leesofia@...>
> 2. Re: Losing abilities
> From: "Lynda Burnham" <lynda.burnham@...>
> 3. RE: Losing abilities
> From: "Carol Presunka" <sunplace@...>
> 4. Re: Losing abilities
> From: "jamieangelasparks3" <jamieangelasparks3@...>
>
>
>________________________________________________________________________
>________________________________________________________________________
>
>Message: 1
> Date: Mon, 08 Mar 2004 16:28:55 -0500
> From: lee <leesofia@...>
>Subject: RE: Losing abilities
>
>Hi all,
>Just one quick question, were all these episodes of loss of use, during the
>use of Antibiotics, or before during the virus, illness, etc.?
>
>Emily's only long, loss of use happened after three doses of antibiotics,
>during an illness, that happened twice first at 8months old with an upper
>respiratory infection, and the second time when she was around 2 1/2 yrs
>old, also with a upper respiratory type infection. she recovered lost
>abilities back from both, after a long nail biting 22 days the first time
>and 18 days the second time of full body loss. We have avoided the use of
>antibiotics orally since then and she has not had a full body loss, more
>than 2-3 days since. I am just curious if others have seen a similar
>reaction. I know we all have different "stuff" but any metabolic
>similarities help me to clarify the line of what is AHC, and what might
>just
>be Emily's personal tolerances,and sensitivities.
>Thanks, Lee
>
>P.S. I am so happy to hear from someone who has 40 years experience with
>this...I pray every night for wisdom, strength, patience, energy and
>clarity
>for all of us in this challenging position of caretakers
> -----Original Message-----
> From: jamieangelasparks3 [mailto:jamieangelasparks3@...]
> Sent: Saturday, March 06, 2004 1:53 PM
> To: afha@yahoogroups.com
> Subject: [ahc] Losing ablities
>
>
> I have a 19 month old, Ashlynn, that has pneumonia. She was
> hospitalized a couple of days this week. She kept having eye
> nystimgus, which usually means that she's going to having paralysis,
> for those two days constantly. She could not move anything during
> the first day and started shaking so badly the second day that I
> thought she was seizing. They let me bring her home from the
> hospital since I have all the equipment needed to take care of her
> at home. Ashlynn cannot keep her head straight at all, she no
> longer will sit up, she can make only a couple of sounds, and her
> right side has very little movement. She was hopitalized in January
> for 6 days with RSV, but did not seem to lose any abilities.
>
> Has anyone ever had this happen with their child? Is this severe
> weakness or is this her losing abilities? How long has it taken for
> their child to recover?
>
> I really appreciate any help that can be given.
>
> Thanks,
> Angela Sparks :0)
>
>
>
> Send a mail to the AHC community :
> Send a mail : afha@yahoogroups.com
> Subscribe : afha-subscribe@yahoogroups.com
> unsubscribe : afha-unsubscribe@yahoogroups.com
> Owner of the list : afha-owner@yahoogroups.com
>
> Link to the URL :
> http://groups.yahoo.com/group/afha
> AHC Website :
> http://www.afha.org
>
>
>
>---------------------------------------------------------------------------
-
>--
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>
> a.. To visit your group on the web, go to:
> http://groups.yahoo.com/group/afha/
>
> b.. To unsubscribe from this group, send an email to:
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> c.. Your use of Yahoo! Groups is subject to the Yahoo! Terms of
>Service.
>
>
>
>[Non-text portions of this message have been removed]
>
>
>
>________________________________________________________________________
>________________________________________________________________________
>
>Message: 2
> Date: Mon, 8 Mar 2004 19:28:56 -0800
> From: "Lynda Burnham" <lynda.burnham@...>
>Subject: Re: Losing abilities
>
>
>Hi:
>
>Leslie's loss of mobility was always after a seizure or a very severe AHC
>episode. She has been on antibiotics without incident, except two years
>ago, where the dosage was so strong that it damaged her liver and we had
>some problems holding her drug levels. Not nice.
>
>
>-----
>
>
>
>________________________________________________________________________
>________________________________________________________________________
>
>Message: 3
> Date: Mon, 8 Mar 2004 17:58:32 -0800
> From: "Carol Presunka" <sunplace@...>
>Subject: RE: Losing abilities
>
>We've never had Alex on antibiotics so I can't blame the meds.
>
>Carol
>
>-----Original Message-----
>From: Lynda Burnham [mailto:lynda.burnham@...]
>Sent: Monday, March 08, 2004 7:29 PM
>To: afha@yahoogroups.com
>Subject: Re: [ahc] Losing abilities
>
>
>Hi:
>
>Leslie's loss of mobility was always after a seizure or a very severe AHC
>episode. She has been on antibiotics without incident, except two years
>ago, where the dosage was so strong that it damaged her liver and we had
>some problems holding her drug levels. Not nice.
>
>
>-----
>
>
>
>
>Send a mail to the AHC community :
> Send a mail : afha@yahoogroups.com
> Subscribe : afha-subscribe@yahoogroups.com
> unsubscribe : afha-unsubscribe@yahoogroups.com
> Owner of the list : afha-owner@yahoogroups.com
>
>Link to the URL :
> http://groups.yahoo.com/group/afha
>AHC Website :
> http://www.afha.org
>Yahoo! Groups Links
>
>
>
>
>
>
>
>________________________________________________________________________
>________________________________________________________________________
>
>Message: 4
> Date: Tue, 09 Mar 2004 16:47:49 -0000
> From: "jamieangelasparks3" <jamieangelasparks3@...>
>Subject: Re: Losing abilities
>
>Hi! I really appreciate all the responses! Ashlynn did have 4
>doses by IV of antibiotics in the 2 day span. She was full body
>paralysis before the antibiotics, so I don't know if the aggravated
>the AHC or not. It is definitely something to consider next time.
>She also had the pneumonia shot back in August, so I don't know what
>happened there!
>
>Thanks again,
>Angela Sparks :0)
>
>
>--- In afha@yahoogroups.com, lee <leesofia@o...> wrote:
> > Hi all,
> > Just one quick question, were all these episodes of loss of use,
>during the
> > use of Antibiotics, or before during the virus, illness, etc.?
> >
> > Emily's only long, loss of use happened after three doses of
>antibiotics,
> > during an illness, that happened twice first at 8months old with
>an upper
> > respiratory infection, and the second time when she was around 2
>1/2 yrs
> > old, also with a upper respiratory type infection. she recovered
>lost
> > abilities back from both, after a long nail biting 22 days the
>first time
> > and 18 days the second time of full body loss. We have avoided
>the use of
> > antibiotics orally since then and she has not had a full body
>loss, more
> > than 2-3 days since. I am just curious if others have seen a
>similar
> > reaction. I know we all have different "stuff" but any metabolic
> > similarities help me to clarify the line of what is AHC, and what
>might just
> > be Emily's personal tolerances,and sensitivities.
> > Thanks, Lee
> >
> > P.S. I am so happy to hear from someone who has 40 years
>experience with
> > this...I pray every night for wisdom, strength, patience, energy
>and clarity
> > for all of us in this challenging position of caretakers
> > -----Original Message-----
> > From: jamieangelasparks3 [mailto:jamieangelasparks3@m...]
> > Sent: Saturday, March 06, 2004 1:53 PM
> > To: afha@yahoogroups.com
> > Subject: [ahc] Losing ablities
> >
> >
> > I have a 19 month old, Ashlynn, that has pneumonia. She was
> > hospitalized a couple of days this week. She kept having eye
> > nystimgus, which usually means that she's going to having
>paralysis,
> > for those two days constantly. She could not move anything
>during
> > the first day and started shaking so badly the second day that I
> > thought she was seizing. They let me bring her home from the
> > hospital since I have all the equipment needed to take care of
>her
> > at home. Ashlynn cannot keep her head straight at all, she no
> > longer will sit up, she can make only a couple of sounds, and
>her
> > right side has very little movement. She was hopitalized in
>January
> > for 6 days with RSV, but did not seem to lose any abilities.
> >
> > Has anyone ever had this happen with their child? Is this severe
> > weakness or is this her losing abilities? How long has it taken
>for
> > their child to recover?
> >
> > I really appreciate any help that can be given.
> >
> > Thanks,
> > Angela Sparks :0)
> >
> >
> >
> > Send a mail to the AHC community :
> > Send a mail : afha@yahoogroups.com
> > Subscribe : afha-subscribe@yahoogroups.com
> > unsubscribe : afha-unsubscribe@yahoogroups.com
> > Owner of the list : afha-owner@yahoogroups.com
> >
> > Link to the URL :
> > http://groups.yahoo.com/group/afha
> > AHC Website :
> > http://www.afha.org
> >
> >
> >
> > -------------------------------------------------------------------
>---------
> > --
> > Yahoo! Groups Links
> >
> > a.. To visit your group on the web, go to:
> > http://groups.yahoo.com/group/afha/
> >
> > b.. To unsubscribe from this group, send an email to:
> > afha-unsubscribe@yahoogroups.com
> >
> > c.. Your use of Yahoo! Groups is subject to the Yahoo! Terms
>of Service.
> >
> >
> >
> > [Non-text portions of this message have been removed]
>
>
>
>________________________________________________________________________
>________________________________________________________________________
>
>
>Send a mail to the AHC community :
> Send a mail : afha@yahoogroups.com
> Subscribe : afha-subscribe@yahoogroups.com
> unsubscribe : afha-unsubscribe@yahoogroups.com
> Owner of the list : afha-owner@yahoogroups.com
>
>Link to the URL :
> http://groups.yahoo.com/group/afha
>AHC Website :
> http://www.afha.org
>------------------------------------------------------------------------
>Yahoo! Groups Links
>
>
>
>
>------------------------------------------------------------------------
>
>

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