Sorry to hear shes having such a rough time. What type of seizures does she
have again? When Chad get's sick he doesn't run a fever either but gets the
shakes and chill's. I always found that to be kind of odd. Chad walks with
his knees almost touching all the time. Have they checked her levels of meds
yet? We have found that pain reliever and anitobics would increase Chads
levels of the normal medications. This would cause the drunkness,
irrability, sleepless nights etc. He only locks his knees up when he is
going down so he wont fall. I think it was about an 1yr ago now we took him
off the Lamitcal and put him on Gabrital. We have notice a difference in a
lot of things.

----- Original Message -----
From: <popcornkcv@...>
To: <afha@yahoogroups.com>
Sent: Friday, February 07, 2003 7:46 PM
Subject: [ahc] AHC and pneumonia


> Hi everyone,
>
> This is Karen V, mom to Addie Rose, 3.5yrs.
>
> Addie has had a very tough last 4 weeks. She came down with cold that
worked
> into bronchitis then onto a massive ear infection (1st one) and then onto
> pneumonia (left lower lobe).
>
> She was put on Zithromax 1st but developed ear infection while on it and
then
> moved on to pneumonia. She was then put on augmentin. Since the
augmentin
> or pneumonia (I don't know which is driving these symptoms we are seeing
alot
> of the following and it is going on the 4 th week of illness, missing
school
> and house bound activities. Please remember it appears Addie's main
symptoms
> requiring treatment are seizures....to date the AHC has seemed under good
> control...
>
> mouth quivering (is this choreathetosis?)
> shakiness
> off balance
> walking on toes and bent in half
> legs squeezed together as if she needs to pee but I think she is holding
> herself up
> hyperflexed/locked knees
> she pulls at her hands and lower arms alot as if they feel strange or
painful
> seizures
> sometimes big "deer eyes"where she looks scared but is not crying out
> tremors/shaking all over but not seizing
> tired all the time but agitated and often unable to sleep unless I drive
her
> in the car
> bursts of energy but her body starts to shake if she even runs around the
> house 2-3 laps
>
> Has anyone gone through such a long recovery and instability period? The
> neuros tried some med changes but I feel they onely made things worse.
There
> is not documented interaction whith her current meds and antibiotic. We
> often need to give her motrin in morning b/c she feels warm but has no
real
> temp. We have also had to occasionally use .5mg oral valium to help
through
> these rough periods. She is on lamictal, flunarazine, keppra and COQ10
> enzyme.
>
> thanks for your help!
>
> Karen and Addie Rose
>
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>