Dear Lisa:
Hi again! Mebaral is STILL around. Trust me. When I get this ID theft and
bank thing over with, I'll hunt on your site. Excuse any typos. You've had
it for 36 YEARS? Gee. You're almost close to my 48 years. I never thoufght
I'd bump into another person who had E a long time like me. I'm also
hypothyroid or a borderline case so that's why I take the other natural
meds - Sea Kelp Liquid Iodine, coenzyme B6 or P5P and L-Tyrosine. I'd rather
gain the weight than suffer simple partials. See - my body can't tolerate
Synthroid, Levoxyl, Armour or anything with Levothyroxine. It pushes my AEDs
out of my body & I suffered, from 2000 - 2003, simple partials 24/7. Yep
24/7.
I felt like I was witnessing my own death in my lifetime. my field of
vision got narrower & narrower, my memory was shot & I felt like someone
with Altzheimer's. Dhea helpsa my memory, adrenalsa & mood. I cvan't take
soy for menopause, as it drives down my blood pressure to 90 over 60. can't
partake & don't like cabbage, brussel sprouts, anything with soy, HUMUNGOUS
amouts of cauliflower (one of the few veggies I love) & I'm lactose
intolerant so I either use Pacific or Harmony Farms brand ENRICHED only Rice
or Almond Milk.
I see my neuro, have an EEG & blood level for Dilantin, cholesterol &
thyroid hormone annually. Epilepsy, Lactose Intolerance, thyroid issues &
menopause coming on- what a quartet! I think they want to form either a C&W
or rock band. HEE1 HEE! I try to be respectful yet use my humor although I'm
sorry that others have it much rougher than I. I really will get to
everybody as I can .
If the ID theft thing intrests you, a young lady & perfect stranger tried
forging my name & counterfeiting checks on my personal account last year.
They gave her probation, which she jumped, and she just did the same to me
again, even though I switched banks, this year. The reception at the local &
Ky. state levels was underwhelming so I went to the Secret Service, the FBI,
the Federal Trade Commission, all the credit bureaus & my bank. It's unkn
own how she got my banking information. I'm still waiting for my bank to
replace the money. Ever felt like you wanted to bite someone's leg off? Hey,
I'm only 5'1".
Anyway, forgive me for being so long winded. I like people &, as if you
couldn't tell, LOVE to "talk". Since I was DX when I was 2, I've always
wanted to get all about 4 million of us together at a real LIVE party. I
keep getting stuck on the logistics & geography & people's specific needs &
schedules. But my heart's in trhe right place. Have you or anyone checked
out the Andrews Reiter Epilepsy Clinic in santa Rosa, Calif ? They help 70
percent of the rough cases they take in through biofeedback. I think it's
www.andrewsreiter.com or you can do a google search. Just thought I'd add
my 2 cents worth. I put in my info about epilepsy & hypothyreoid "cos I
don't want someone to suffer as I did or be insulted by an internist or be
called crazy & dumb by family, the legal community or the medical community.
We ALL have to be advocates for our own health & not let the docs dictate to
us!
I may even be registered on your site. I'm not sure. Thanks for you &
everybody else lending me an ear. I'll be sure to wash it & put it back
where I found it. HEE! HEE! Some days I'll have back spasms & feel like I
could take a back in a 36 medium. Ho! Ho! I try but not all jokes succeed.
Some lay scrambled eggs. HEE! HEE! It's nice to meet you & I enjoyed your
message. I'll book mark the site. Take Care.
Janet janet.lynch@...
----- Original Message -----
From: "angel_lts" <no_reply@yahoogroups.com>
To: <adultswithepilepsy@yahoogroups.com>
Sent: Thursday, September 08, 2005 7:14 AM
Subject: Re: [Adults with Epilepsy] Where is the owner or moderator? Hi!
Janet Lou., Ky.


> Janet, Thanks for the info.
> I have had eilepsy for 36 years now.
> I used to take Mebaral. I had to get off of it many years ago, for
> they were doing away with that drug??? It is still around?
>
> I am suppose to get on DHEA too for homones. I take progesterone
> right now. I just have not got around to it. I was doing
> Neurofeedback and I had to wait. WHen I get my meds situated then I
> will do it.
>
> I take the synthroid not the generic like you do. It is always much
> safer to take the brand name only. My 15 year old daughter and I
> take it. There is a natural approach called Armour. There is also a
> support group for it.
>
> I take the omega and I got rid of nine seizures and 234 auras a
> month. ANd I do take some of the other vitamins too.
>
> I take the citracal with d, it absorbs better.
>
> I have heard of the name but not sure what you have to take them for
> the iodine, L-tyrosine..
>
> I have taken Pheno, dilantin..
>
> I am a little afraid to deal with the herbs for I dont know much
> about them. ANd they can interact with the meds too much so I dont
> touch them.
>
> You should check out my group we deal with alternatives and medical
> side of epilepsy.
>
> thanks
> Lisa
> http://health.groups.yahoo.com/group/EpilepsyApproach/
>
>
>
>
> --- In adultswithepilepsy@yahoogroups.com, "JanetLynch"
> <janet.lynch@i...> wrote:
>> Dear Lisa or angel_its :
>> The owner/moderator of one group is a lady named Jewl, with her
> present
>> seizure dog Tagert, who is in Lewisville, Texas. I think her group
> is
>> epilepsy@yahoogroups.com . I think you can just put a post with
> her name
>> on it or maybe her website is something like www.homestead.com
> The
>> owner/moderator of another like group is named Micah, but I'm not
> sure how
>> to reach him. One group seems to run into another.
>> My name is Janet and I'm in Lou., Ky. I just don't post too
> often. I'm
>> 50 (oh dear) and have had to go through E since I was 2 or 1957.
> Since I
>> grew up with E, I couldn't fathom people getting it any older than
> 2 years
>> old. I always thought it was the other 96 percent of folks
> populating the
>> world who were nuts. In my case, I had petit mal from ages 2 to 8,
> annual
>> grand mals during my high school years, seizure FREE for 30 YEARS,
> from 1971
>> to 2000, simple, partials due to an undiagnosed interaction
> between dilantin
>> and levothroxine (any type of thyroid meds) and have been seizure
> FREE once
>> again from 4/15/03 to now.
>> I take a once daily regimen of 390 mg Dilantin, 100 mg Mebaral
> (like
>> Phenobarb but no toxic side effects) and natural remedies for my
> hypothyroid
>> such as:
>> 1 5 mg capsule of DHEA before noon
>> 1 250 mg (bite a 500 mg in half) of non toxic, amino acid L-
> Tyrosine
>> 1 17 mg tablet o0f P5P or COENZYME B6
>> In water, 4 drops of Liquid Iodine sea Kelp
>> 1 Weight Smart by 1 a day multivitamin
>> 1000mg Ester C
>> supposed to be 500mg Caltrate + D & you can add
>> Omega 3 - good for the neurotransmitters & memory and Vitamin E.
>> My neuro says vitamins, minerals & non toxic amino acids for
> supporting
>> your systems are fine but BEWARE of herbals & OTC(over the counter
> drugs at
>> grocery or drug stores) BECAUSE there have been reports of a few
> people
>> getting seizures & he doesn't want me or you to take that chance &
> have to
>> "start over".
>> Anyway I love to chat & wanted to answer you. I just gave what
> I know.
>> I'm sorry if it winds up misdirecting you. Right now, I'm at
>> janet.lynch@i... Take Care! Janet
>>
>> ----- Original Message -----
>> From: "angel_lts" <no_reply@yahoogroups.com>
>> To: <adultswithepilepsy@yahoogroups.com>
>> Sent: Wednesday, September 07, 2005 4:07 PM
>> Subject: [Adults with Epilepsy] Where is the owner or moderator?
>>
>>
>> > does anyone know?
>> > lisa
>> >
>> >
>> >
>> >
>> >
>> >
>> > Yahoo! Groups Links
>> >
>> >
>> >
>> >
>> >
>> >
>> >
>> >
>> > --
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>> > Version: 7.0.344 / Virus Database: 267.10.19/92 - Release Date:
> 9/7/2005
>> >
>> >
>
>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>
>
>
> --
> No virus found in this incoming message.
> Checked by AVG Anti-Virus.
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