I read your reply with a great deal of interest and can only offer
the following to you...

As far as waking up sore you can bet your life it is from nocturnal
seizures..I dislocated my shoulder once through the night and have
woken many, many times with muscle pulls, soreness etc.. I have had
a respite lately though with the nightime activity and am very
hopeful I can get the daytime stuff under control again as well. I
am off to the clinic tomorrow to hear the results of my monitioring
stay and see what options are open to me (possibly beyond medicine
but I am scared to death of that consideration right now).

Have you ever tried other medicines? For many years Tegretol was
very helpful for me and it is relatively inexpensive compared to the
latest generation of drugs.



--- In adultswithepilepsy@yahoogroups.com, merryville03
<no_reply@y...> wrote:
> I am also new here and this is my first posting. Your email
caught
> my attention because your problems sound almost exactly like mine.
>
> About 1.5 years ago after seeing a neurologist for migraines I was
> diagnosed with temporal lobe epilepsy. I currently take only
> Depakote, but until recently took that in combination with
> Neurontin. I no longr have insurance.
>
> I suffer from complex and simple partials, and although I've had
some
> simple partials during the day, all of my complex partials happen
> soon before falling asleep. My neurologist also thinks I am
having
> seizures during sleep, but since no one is there to witness then I
> cannot be sure.
>
> I am very very interested in hearing about the symptoms of others
> suffering from seizures like mine, because they seem so completely
> bizarre to me. Not to get into too much detail now, mine normally
> begin with a feel of electricity in my brain. This is sometimes
> preceded by auditory hallucinations. I then feel as though the
> electricity passes down to the rest of my body, I stop breathing,
am
> unable to move, and sometimes my arm jerks or lifts up toward my
body.
>
> During the day I also often experience the deja vu feeling, and
> symptoms of depersonalization.
>
> Once I lost the ability to speak or to understand language, and
that
> seizure lasted nearly 5 minutes. (this was during the day)
>
> Sometimes when I wake in the morning I feel sore (like I've been
> jogging) and have a horrible headache. The neurologist believes
this
> is a result of having seizures during sleep.
>
> My MRI was normal. I have had one EEG that showed seizure
activity,
> one inconclusive EEG that showed some abnormal spiking, and one
sleep
> EEG was normal.
>
> Anna
>
> --- In adultswithepilepsy@yahoogroups.com, timmyo_11
<no_reply@y...>
> wrote:
> > Hi. My name is Tim and this is the first time I have ever posted
> > anything in regard to my epilipsy. I've read through many of the
> > messages on the site and like most of you I was picked out of
the
> > crowd to deal with this problem when I was 18 and a freshmen in
> > college. I am now 38 and have lived with it for 20 years! For 18
of
> > those years I really considered myself lucky as far as epilepsy
> > went. I have simple partial seizures and have never once lost
> > consciousness or memory of the events. As I was saying
> > (writing),these spells ocurred 98% of the time as I was falling
> > asleep or during sleep. The seizure is primarily centered in my
> > right hand but there is a vocal component sometimes that depends
on
> > the magnitude of the event. For 18 years or so I tried to get
the
> > seizures 100% under control by trying numerous medicine combos
but
> > nothing seemed quite right. This past year though has seen a
> > dramatic change. 14 Months ago in an attempt to get the nightime
> > spells under control, I swithed med's with complete failure. I
> began
> > having daytime episodes and have never been able to regain
daytime
> > control (actually the seizures seem to just have shifted from
night
> > to day in prominence). I just spent 6 days in the clinic to try
to
> > pinpoint the focus of my seizure and went through all the normal
> > tests. My follow-up is next week but my gut feel is that I will
> > remain in the bottom percent of patients where the focus is
never
> > found and medicines are only somewhat helpful. Who knows.
Overall
> I
> > have a lot to be thankful for through these 20 years.. a great
> wife,
> > four sons and a good family but I sure would like to live the
next
> > 20 without the daily fear of having a seizure.
> >
> > This has gotten kind of long but I would like to hear from
anyone
> > that feels stress is a trigger for your seizure and whether your
> Doc
> > has prescribed anything in this regard to minimize the release
of
> > chemicals associated with stress in the brain. I take 2100mg of
> > Carbitrol right now but have been on almost everything through
the
> > years.
> >
> > Thanks,
> >
> > Tim