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adultslivingwithvcfs · Adults living with VCFS
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Group Information

  • Members: 7
  • Category: Other
  • Founded: Aug 12, 2007
  • Language: English
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Description

For Adults living with VCFS/DiGeorge syndrome. I am 33 yrs old just found out that I have this syndrome this spring. This Group is for other's with VCFS/DGS to come and talk about daily struggles of living with DiGeorge Syndrome. We also have sister group at:22q11syndromefor2ormoreaffected@yahoogroup.com
and 22q_exchange@yahoogroup.com

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Sherry
Just read your message - I do hope that you have had the following checked: - ionised calcium - parathyroid - magnesium - vitamin D. What you are suggesting
Posted - Wed May 28, 2008 6:45 pm
 fionawool
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Re: Common Variable Immunodeficiency (CVID)
Lisa, Hi this is Sherry Pickett. Hope you are doing well I have some news for you regarding adult with the Digeorge. I know that you have experienced some
Posted - Sun May 25, 2008 5:43 pm
 EPickett
urly001
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(No subject)
Posted - Mon Jan 21, 2008 12:39 am
 EPickett
urly001
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Holiday's
Been so busy these day's with the kids Dr apts and mine haven't had much time for the internet. Does it get that way for everyone else too. Trying to boggle
Posted - Sat Dec 29, 2007 5:08 pm
 digeorgemomofthree
digeorgemomo...
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Re: Seasons Greetings
Fionawool, Hi Happy Holidays to u. I do have a question for u. Does it seem like it gets any better for the adults whoe have the 22qdeletion. I have recently
Posted - Tue Dec 25, 2007 5:34 pm
 EPickett
urly001
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2008 1 2
2007 7 15 15 18 3
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