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adultslivingwithvcfs · Adults living with VCFS
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Group Information

  • Members: 11
  • Category: Other
  • Founded: Aug 12, 2007
  • Language: English
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Description

For Adults living with VCFS/DiGeorge syndrome. I am 33 yrs old just found out that I have this syndrome this spring. This Group is for other's with VCFS/DGS to come and talk about daily struggles of living with DiGeorge Syndrome. We also have sister group at:22q11syndromefor2ormoreaffected@yahoogroup.com
and 22q_exchange@yahoogroup.com

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Re: 49 Year Old with DiGeorge/VCFS
Hi Roger This is Christopher Anderson from the Hypoparathyroid Asociation how are things. My Kidneys failed on me and I was in the hospital for three weeks
Posted - Sun May 31, 2009 2:52 am
 Christopher Anderson
crmn55433
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Re: 49 Year Old with DiGeorge/VCFS
Hi Roger, My name is Sherry and I also have the DiGeorge syndrome. Found out after my son was born he also has it. He has the severe heart condition TOF. I
Posted - Sat May 30, 2009 11:27 pm
 Eric L. Pickett
urly001
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Re: 49 Year Old with DiGeorge/VCFS
Hi; I am new to this group. I have DiGeorge Syndrome/VCFS and 22q. My main issues are the Immune System, Hypoparathyroidism WITH Severe Recurrent Tetany
Posted - Sat May 30, 2009 10:00 pm
 rogerevans60
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Sherry
Just read your message - I do hope that you have had the following checked: - ionised calcium - parathyroid - magnesium - vitamin D. What you are suggesting
Posted - Wed May 28, 2008 6:45 pm
 fionawool
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Re: Common Variable Immunodeficiency (CVID)
Lisa, Hi this is Sherry Pickett. Hope you are doing well I have some news for you regarding adult with the Digeorge. I know that you have experienced some
Posted - Sun May 25, 2008 5:43 pm
 EPickett
urly001
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Message History

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2009 3
2008 1 2
2007 7 15 15 18 3
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