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adrenal_hyperplasia · CONGENITAL ADRENAL HYPERPLASIA

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84 Tiggerifficluv@... Send Email Dec 12, 2000
1:58 am
Hi, I have been taking Dexamethasone for over a month now, I was wondering how long it might take for me to start getting my period? I only take 5mg a night,...
85 preston
preston@... Send Email
Dec 14, 2000
5:02 am
If you have CAH then you will need to take Dex forever and go to the endo to have your blood monitored. Be aware that if you are ever injured, in surgery, or...
86 jenannlynn@... Send Email Dec 15, 2000
8:41 am
Just wantd to let everyone know who helped me out that my baby had her "exploratory" surgery last week, and it went VERY well. The scariest part was having...
87 preston
preston@... Send Email
Dec 15, 2000
8:42 am
I meant to say that most adults with CAH take DEX at least twice a day or usually 3 times a day. Roberta...
88 Georgianna Copeland
georgiannac@... Send Email
Dec 17, 2000
1:54 pm
Thi is very encouraging. Thanks for sharing how well she did. I will be needing to have that surgery done soon as well. God took very good care of her. I thank...
89 Debbie Doyle
doyle@... Send Email
Dec 17, 2000
1:55 pm
What a great X-mas present!! I'm so happy all went well with your little girl. We also got the same news you got about the second surgery, basically, it not...
90 preston
preston@... Send Email
Dec 17, 2000
1:55 pm
God blessings! I hope that everything goes fine for her. Roberta...
91 jenannlynn@... Send Email Dec 18, 2000
7:46 am
In a message dated 12/17/00 5:55:39 AM Pacific Standard Time, doyle@... writes: << We also got the same news you got about the second surgery, ...
92 Georgianna Copeland
georgiannac@... Send Email
Dec 18, 2000
7:46 am
Tig, Hi there! Guess what? I am also on dex for the same reason. They didnt catch my CAH early enough and so I found out later while I was in college why I...
93 Debbie Doyle
doyle@... Send Email
Dec 20, 2000
6:34 am
Jenny: We did the reconstructive surgery on her clitoris. I'm all for, and if were in the same situation again, would go ahead and do it all now. This way, ...
94 MinnieHerf@... Send Email Dec 20, 2000
6:34 am
Hey there.. My name is Katie.. I was also not diagnosed until I was a Senior in college.. I've been on Dex for about a year and a half.. .The pills.. I have ...
95 Tiggerifficluv@... Send Email Dec 20, 2000
6:34 am
Georgianna, Thank You so much for the info, I go back to see my endo in February, I can feel the pills working, my body gets feeling like im going to start my ...
96 Ridley
andrew.ridley@... Send Email
Dec 20, 2000
6:35 am
Hi, Can you tell me what dex is short for and also if you had any problems with putting on weight with it. my 10 year old daughter is on prednisone and...
97 preston
preston@... Send Email
Dec 22, 2000
9:45 am
I would thinkt the thought of waiting would be terrible (or not doing it at all).... just my two cents. Roberta...
98 preston
preston@... Send Email
Dec 23, 2000
1:06 pm
Again - I have boys with CAH so I don't know first hand what it is like to have to go through with such a decision. I hope that the best for your CAH girls...
99 jenannlynn@... Send Email Dec 27, 2000
9:52 am
In a message dated 12/20/2000 4:41:51 AM US Eastern Standard Time, doyle@... writes: << I never thought twice about it. I would go ahead w/your...
100 Kim
sweetiee1@... Send Email
Dec 29, 2000
9:33 am
She will even ... What do they mean when they do this? how is it done and why? Kim ===== Get free stuff just for surfing the net! www.mypoints.com ...
101 jenannlynn@... Send Email Dec 30, 2000
10:38 am
In a message dated 12/29/2000 4:37:12 AM US Eastern Standard Time, sweetiee1@... writes: << She will even ... What do they mean when they do this? how...
102 preston
preston@... Send Email
Jan 1, 2001
8:44 am
I think that you are great for doing this now!! Again I have boys with CAH but I think I know what you are dealing with because of all thinks I worry about...
103 Kim
sweetiee1@... Send Email
Jan 5, 2001
5:19 pm
OK. This is what I thought it might mean. Seems kind of scary to know you have to continue doing that until they are older. It would seem better to start...
104 jenannlynn@... Send Email Jan 6, 2001
6:27 am
In a message dated 1/5/2001 12:20:55 PM US Eastern Standard Time, sweetiee1@... writes: << OK. This is what I thought it might mean. Seems kind of...
105 Jenny
jenannlynn@... Send Email
Jan 6, 2001
6:27 am
Okay, I have yet another question. I am looking into getting some kind of medical bracelet or necklace for my daughter--she will be one in February, and I...
106 chrissyzim@... Send Email Jan 7, 2001
12:24 am
The MAGIC foundation has info on the sports medical bracelet, that is what I have for my daughter. She was rough on bracelets, she has been wearing one since...
107 Kim
sweetiee1@... Send Email
Jan 7, 2001
12:24 am
I am looking ... I remember having one as a child because I was allergic to penicillin. Yes, I know I need to be wearing one now too... Anyway, I had a...
108 preston
preston@... Send Email
Jan 7, 2001
12:24 am
This one is great - it is a soft sports ID. Adam and Stephen always wear it. I never take it off. We also have the metal ones too - but during an adrenal...
109 Curtis
curtisg@... Send Email
Jan 7, 2001
12:25 am
My 14 Month old son wheres a bracelet with his condition on it.He had a pendent on a neclace but it was a chokeing hazzard.We were told that in a emergency...
110 preston
preston@... Send Email
Jan 8, 2001
5:51 am
Another thing about the metal IDs - they get so scatched up that they become hard to read (and are hard to read to start with), so that is why I think the...
111 Kim
sweetiee1@... Send Email
Jan 8, 2001
10:12 pm
... Wow! I've never heard of these! I think I might look into ordering some for my students. I have Special Ed and we always have to have ID when in the...
112 chrissyzim@... Send Email Jan 10, 2001
12:05 pm
In a message dated 1/8/01 4:30:13 PM Central Standard Time, ... I tried this website and it wouldn't let me in...
113 Georgianna Copeland
georgiannac@... Send Email
Jan 11, 2001
3:32 am
Christie, What is the html address for MAGIC foundation? I think I have joined it but not sure what the address is...cause I am looking for a sports one for...
Messages 84 - 113 of 208   Oldest  |  < Older  |  Newer >  |  Newest
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