My little, 8 mo. old baby girl has just been diagnosed with CAH-- after several months of saying to the doctors "something is not right" and the majority of...
Jenny
jenannlynn@...
Oct 30, 2000 6:01 am
31
Hello everyone. You are a God send to me. Up until a few months ago I never had a computer. So I had no way of finding any support groups. I live here in...
Robyn
carolecathlynann@...
Oct 31, 2000 10:34 pm
32
No vomiting is not an reaction to the cortef. She should go into the hospital right away until she is no longer vomiting. Because of dehydration and a...
preston
preston@...
Oct 31, 2000 10:37 pm
33
Jenny, I also have a little girl born with CAH, however, she was diagnosed at birth and started her meds at day 4 of her precious life. I have never ...
Debbie Doyle
doyle@...
Oct 31, 2000 10:38 pm
34
Debbie, I SO appreciated your email. Yes, we feel very fortunate that our little girl has done so well considering everything. The doctor's can't believe it ...
jenannlynn@...
Nov 1, 2000 1:42 am
35
Thanks Roberta for the information. Yesterday was a much better day, and we were able to keep all of the medication down. I think she did not like the ...
jenannlynn@...
Nov 1, 2000 9:10 pm
36
Exuse my ignorance, but what is "pseudo" and your DNA karotype is 46xx, what does all that mean? No child or person with CAH should ever feel like a "freak"....
Debbie Doyle
doyle@...
Nov 2, 2000 6:23 am
37
My name is Carole in regards to your question what pseudo means and 46XX. I am a Nonadrenal female pseudohermaphrodite. One of the causes is CAH. I am 58...
carolecathlynann@...
Nov 2, 2000 9:50 pm
38
jenny - I am glad that she is better. How creative of you to put it in her food and her not know it. Mine would know because they watched everything I do (even...
preston
preston@...
Nov 3, 2000 2:44 pm
39
Thank you, thank you, thank you for those websites! They are exactly what I have been searching for, but no search engine gave me them! :) I have a few ...
jenannlynn@...
Nov 4, 2000 5:54 am
40
Dear Jenny, That is a good idea...I like that idea. What is the medication that she is on called? I am on dexamethasine (decadron) for mine nightly and they...
Georgianna Copeland
georgiannac@...
Nov 4, 2000 5:55 am
41
Carole - I am sorry about your childhood. Were you born with CAH - classical salt wasting CAH? Did you every have an adrenal crisis? Where were you born?...
preston
preston@...
Nov 4, 2000 5:57 am
42
Hello Preston this is Carole how are you. As to your questions yes I was born with (CAH) and as for treatment I had a very sick childhood. Like I said in my...
carolecathlynann@...
Nov 5, 2000 8:23 am
43
http://congenitaladrenalhyperplasia.org/mb/page1.htm Jenny - Here is another web site for CAH - this one is a message board for parents for CAH children. Danny...
preston
preston@...
Nov 5, 2000 8:23 am
44
When to give the injection of solu-cortef or triple the cortef ? My ped endo said 101 fever but 100 fever is and can be just as bad. For one thing the...
preston
preston@...
Nov 5, 2000 8:24 am
45
i am a 37 year old who was diagnosed with CAH in 1990. does anyone know the statistics of how many people actually suffer from this? i know it is hereditary,...
shoppathemaster@...
Nov 5, 2000 8:24 am
46
In a message dated 11/4/2000 12:56:28 AM US Eastern Standard Time, georgiannac@... writes: << What is the medication that she is on called? I am on...
jenannlynn@...
Nov 6, 2000 7:09 am
47
In a message dated 11/5/2000 3:26:54 AM US Eastern Standard Time, preston@... writes: <<...
jenannlynn@...
Nov 6, 2000 7:09 am
48
In a message dated 11/5/2000 3:26:54 AM US Eastern Standard Time, preston@... writes: << Print out this pamplet from the National Institute of...
jenannlynn@...
Nov 6, 2000 7:09 am
49
I am the father of a son, who will be 17 in two weeks. He has CAH and is a salt-waster. I well remember putting my son into the NICU in a New Orleans...
Jeffrey Lawson
Laugesen@...
Nov 6, 2000 7:09 am
50
Its nice to hear a happy story. I am a mother of a 6 yr. old daughter who was born and diagnosed at birth w/CAH. She has and continues to do beautifully...
Debbie Doyle
doyle@...
Nov 7, 2000 7:40 am
51
I too, can't get that website to work....
Debbie Doyle
doyle@...
Nov 7, 2000 7:41 am
52
In a message dated 11/7/2000 2:42:01 AM US Eastern Standard Time, doyle@... writes: << giving them their medicine on time and regularly. >> How...
jenannlynn@...
Nov 8, 2000 9:29 am
53
Angela, who is 6, also gets her meds every 8 hrs. (the cortef). Since she is older now, she has it in pill form. But when she was younger, she had the liquid...
Debbie Doyle
doyle@...
Nov 9, 2000 5:43 am
54
Jenny, I give Kassandra, who is now 7 years old, her medicine at 6am, 2pm and 10pm. It works well, she got used to taking her medsin the evening that she would...
chrissyzim@...
Nov 9, 2000 5:43 am
55
I am sure you are giving the meds (cortef) on time. But it is important that the morning dose be given between 6 am and 8am because of the hormonal and ...
preston
preston@...
Nov 9, 2000 5:44 am
56
In a message dated 11/9/2000 12:46:13 AM US Eastern Standard Time, preston@... writes: << But it is important that the morning dose be given between...
jenannlynn@...
Nov 10, 2000 3:04 pm
57
That is about the same time I give meds too. Usually at 7, 2 and 9. The only time I would watch it more closely is if they are sick - then don't wait for the...
preston
preston@...
Nov 13, 2000 6:19 am
58
Jenny, Personally, I would not wait 12 hours inbetween. I've always been told, its okay to give them their meds an hour before or after the regular time, but...
Debbie Doyle
doyle@...
Nov 13, 2000 6:20 am
59
In a message dated 11/13/2000 1:20:16 AM US Eastern Standard Time, preston@... writes: << I would watch it more closely is if they are sick - then...
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