"david hughes" <egroups_moderato-@...> wrote: original article:http://www.egroups.com/group/adrenal_hyperplasia/?star t=1 ... "Congenital Adrenal...
4
n.hession@...
Oct 26, 1999 6:54 am
minnieher-@... wrote: original article:http://www.egroups.com/group/adrenal_hyperplasia/?star t=2 ... CAH and I dont really know what it is all about...
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n.hession@...
Oct 26, 1999 6:54 am
My grandchild was just diagnosed with CAH .She is 1 week old and I really need to talk to someone with a child who has this so i can understand it. Please help...
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Dorothy Gronn
cahdot@...
Oct 26, 1999 7:15 am
Hi Katie, My name is Dot Gronn I am the co-ordinator of the CAH Support Group in Australia. If you have just been disgnosed with CAH, this tells me that you...
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Dorothy Gronn
cahdot@...
Oct 26, 1999 7:46 am
Dear Phyllis, Is this your first grandchild from your children??? If I can reassure you that with good monitoring your granddaughter will lead and very full...
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nicholas hession
n.hession@...
Oct 27, 1999 4:19 pm
thanks so much for the letter.No she is my second grandchild. First granddaughter.She was born one month early.she is also salt losing CAH.I can't wait until...
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Anna Miller
almiller@...
Jan 10, 2000 2:37 am
Well I just found this group, so this will be my first official post...I gave birth to a baby boy November 1'st who has been diagnosed with the 3-Beta Salt...
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nicholas hession
n.hession@...
Jan 10, 2000 3:16 pm
First of all congratulations on your baby boy.I have to tell you that when we found out about my granddaugher having cah we also were devastated.We had very...
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Debbie Doyle
doyle@...
Jan 10, 2000 8:41 pm
Oh, my gosh, your letter brought great tears to my eyes, and are still there as I am writing you. Bless you and your little baby boy, and rest assured you and...
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JERRYPRIDE@...
Feb 2, 2000 8:21 pm
MY 9 1/2 YEAR OLD DAUGHTER IS BEING CHECKED BY A PEDIATRIC ENDOCRINOLOGIST HERE ON LONG ISLAND FOR POSSIBLE ADRENAL HYPERPLASIA (PRECOCIOUS PUBERTY). DOES...
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Jeffrey Lawson
Laugesen@...
Jun 8, 2000 3:36 pm
Hi. I am the mother of a 16 year old bay with saltwasting CAH. When he was born, his Dad and I had no where to get any info except from his Doctor. Now I'm...
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shauna banks
snmdb@...
Jun 9, 2000 3:14 am
hi, iam the mother of an 9 year old boy with cah/salt- wasting, and am curious about what to expect with the onset of puperty. i would love to hear about ant...
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Anna
almiller@...
Jun 9, 2000 3:14 am
Well It has been nearly eight months since I wrote my first post in this group, and since then my Jacob has been doing great.. He is nearly eight months old...
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Anna
almiller@...
Jun 26, 2000 5:48 pm
Hi again, Well after reading my last post I see that I was a bit ahead of myself on dates; as Jacob is just now reaching his 8th month... (Hey it was 3 am when...
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Debbie Doyle
doyle@...
Jun 27, 2000 5:13 pm
Dear Anna: Glad to hear you made it through his first fever. After a few times, you will become a pro. Angela had lots of ear infections with mild fevers,...
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Roberta Preston
preston@...
Jul 19, 2000 5:19 am
http://www.cc.nih.gov/ccc/patient_education/pepubs/mngadrins.pdf I just posted this on the CAH message board (danny's CAH message board). It has pictures step...
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Denise G.
Breezy6692@...
Jul 30, 2000 8:50 am
Hi, I was born with the classical salt wasting CAH 45 years ago,when not much was known about this illness.Growing up was not fun at all. My mother and father...
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Anna
almiller@...
Jul 30, 2000 1:02 pm
I could not begin to imagine how hard it must have been for you having to try and deal with so many issues at such a young age. Not to mention having to go...
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Denise G.
Breezy6692@...
Jul 31, 2000 2:26 am
... Not ... morning ... say ... look ... through ... concern. We all have our cross to bear and each one is heavy enough for us.It doesn't lesson burdens in...
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Denise G.
Breezy6692@...
Aug 2, 2000 6:23 am
At 35 I was told I had cataracts but they weren't that bad then, now 10 years later, I have what they call(typical steriod cataracts).I been using reading...
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preston
preston@...
Aug 2, 2000 6:24 am
My name is Roberta - I have two children with CAH (boys). My daughter (second child) died at age 2 and 1/2 years old. She had a fever and the doctor on call...
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Debbie Doyle
doyle@...
Aug 3, 2000 3:35 am
Dear Roberta: How horrible. I can't even image. Sometimes this board scares me when I read of those sort of things, but I try to use it also as a wake-up...
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Breezy6692@...
Aug 3, 2000 3:36 am
Roberta, I'm so sorry for the great loss of your daughter you are suffering. Liquid Cortif was not available back in the 50's and thank God it wasn't. From all...
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preston
preston@...
Aug 4, 2000 4:50 am
Did anyone read about the experimental cure for diabetics. They transplant eyelet cells and then the diabetic does not need medication anymore. I wonder if...
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Anna
almiller@...
Aug 4, 2000 4:57 am
Hello again, and Thank Your for your Kind words in Reply to my post to you... Im writting you again to ask you to please reconsider your decision to stop...
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Debbie Doyle
doyle@...
Aug 4, 2000 4:42 pm
I agree totally. It would be taking another step back. Debbie ... From: Anna <almiller@...> To: <adrenal_hyperplasia@egroups.com> Sent: Thursday,...
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preston
preston@...
Aug 5, 2000 8:30 pm
Anna and Debbie I am not sure what happened, but I your thoughts are very true. On the CAH board (Danny's Carlton started it). I have wrote something and it...
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Jenny
jenannlynn@...
Oct 30, 2000 6:01 am
My little, 8 mo. old baby girl has just been diagnosed with CAH-- after several months of saying to the doctors "something is not right" and the majority of...
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Robyn
carolecathlynann@...
Oct 31, 2000 10:34 pm
Hello everyone. You are a God send to me. Up until a few months ago I never had a computer. So I had no way of finding any support groups. I live here in...
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preston
preston@...
Oct 31, 2000 10:37 pm
No vomiting is not an reaction to the cortef. She should go into the hospital right away until she is no longer vomiting. Because of dehydration and a...
