adrenal_hyperplasia : Messages : 3-32 of 208

Messages: Simplify \| Expand (Group by Topic)		Author	Sort by Date

3	"david hughes" <egroups_moderato-@...> wrote: original article:http://www.egroups.com/group/adrenal_hyperplasia/?star t=1 ... "Congenital Adrenal...	n.hession@...	Oct 19, 1999 6:50 pm
4	minnieher-@... wrote: original article:http://www.egroups.com/group/adrenal_hyperplasia/?star t=2 ... CAH and I dont really know what it is all about...	n.hession@...	Oct 26, 1999 6:54 am
5	My grandchild was just diagnosed with CAH .She is 1 week old and I really need to talk to someone with a child who has this so i can understand it. Please help...	n.hession@...	Oct 26, 1999 6:54 am
6	Hi Katie, My name is Dot Gronn I am the co-ordinator of the CAH Support Group in Australia. If you have just been disgnosed with CAH, this tells me that you...	Dorothy Gronn cahdot@...	Oct 26, 1999 7:15 am
7	Dear Phyllis, Is this your first grandchild from your children??? If I can reassure you that with good monitoring your granddaughter will lead and very full...	Dorothy Gronn cahdot@...	Oct 26, 1999 7:46 am
8	thanks so much for the letter.No she is my second grandchild. First granddaughter.She was born one month early.she is also salt losing CAH.I can't wait until...	nicholas hession n.hession@...	Oct 27, 1999 4:19 pm
9	Well I just found this group, so this will be my first official post...I gave birth to a baby boy November 1'st who has been diagnosed with the 3-Beta Salt...	Anna Miller almiller@...	Jan 10, 2000 2:37 am
10	First of all congratulations on your baby boy.I have to tell you that when we found out about my granddaugher having cah we also were devastated.We had very...	nicholas hession n.hession@...	Jan 10, 2000 3:16 pm
11	Oh, my gosh, your letter brought great tears to my eyes, and are still there as I am writing you. Bless you and your little baby boy, and rest assured you and...	Debbie Doyle doyle@...	Jan 10, 2000 8:41 pm
12	MY 9 1/2 YEAR OLD DAUGHTER IS BEING CHECKED BY A PEDIATRIC ENDOCRINOLOGIST HERE ON LONG ISLAND FOR POSSIBLE ADRENAL HYPERPLASIA (PRECOCIOUS PUBERTY). DOES...	JERRYPRIDE@...	Feb 2, 2000 8:21 pm
13	Hi. I am the mother of a 16 year old bay with saltwasting CAH. When he was born, his Dad and I had no where to get any info except from his Doctor. Now I'm...	Jeffrey Lawson Laugesen@...	Jun 8, 2000 3:36 pm
14	hi, iam the mother of an 9 year old boy with cah/salt- wasting, and am curious about what to expect with the onset of puperty. i would love to hear about ant...	shauna banks snmdb@...	Jun 9, 2000 3:14 am
15	Well It has been nearly eight months since I wrote my first post in this group, and since then my Jacob has been doing great.. He is nearly eight months old...	Anna almiller@...	Jun 9, 2000 3:14 am
16	Hi again, Well after reading my last post I see that I was a bit ahead of myself on dates; as Jacob is just now reaching his 8th month... (Hey it was 3 am when...	Anna almiller@...	Jun 26, 2000 5:48 pm
17	Dear Anna: Glad to hear you made it through his first fever. After a few times, you will become a pro. Angela had lots of ear infections with mild fevers,...	Debbie Doyle doyle@...	Jun 27, 2000 5:13 pm
18	http://www.cc.nih.gov/ccc/patient_education/pepubs/mngadrins.pdf I just posted this on the CAH message board (danny's CAH message board). It has pictures step...	Roberta Preston preston@...	Jul 19, 2000 5:19 am
19	Hi, I was born with the classical salt wasting CAH 45 years ago,when not much was known about this illness.Growing up was not fun at all. My mother and father...	Denise G. Breezy6692@...	Jul 30, 2000 8:50 am
20	I could not begin to imagine how hard it must have been for you having to try and deal with so many issues at such a young age. Not to mention having to go...	Anna almiller@...	Jul 30, 2000 1:02 pm
21	... Not ... morning ... say ... look ... through ... concern. We all have our cross to bear and each one is heavy enough for us.It doesn't lesson burdens in...	Denise G. Breezy6692@...	Jul 31, 2000 2:26 am
22	At 35 I was told I had cataracts but they weren't that bad then, now 10 years later, I have what they call(typical steriod cataracts).I been using reading...	Denise G. Breezy6692@...	Aug 2, 2000 6:23 am
23	My name is Roberta - I have two children with CAH (boys). My daughter (second child) died at age 2 and 1/2 years old. She had a fever and the doctor on call...	preston preston@...	Aug 2, 2000 6:24 am
24	Dear Roberta: How horrible. I can't even image. Sometimes this board scares me when I read of those sort of things, but I try to use it also as a wake-up...	Debbie Doyle doyle@...	Aug 3, 2000 3:35 am
25	Roberta, I'm so sorry for the great loss of your daughter you are suffering. Liquid Cortif was not available back in the 50's and thank God it wasn't. From all...	Breezy6692@...	Aug 3, 2000 3:36 am
26	Did anyone read about the experimental cure for diabetics. They transplant eyelet cells and then the diabetic does not need medication anymore. I wonder if...	preston preston@...	Aug 4, 2000 4:50 am
27	Hello again, and Thank Your for your Kind words in Reply to my post to you... Im writting you again to ask you to please reconsider your decision to stop...	Anna almiller@...	Aug 4, 2000 4:57 am
28	I agree totally. It would be taking another step back. Debbie ... From: Anna <almiller@...> To: <adrenal_hyperplasia@egroups.com> Sent: Thursday,...	Debbie Doyle doyle@...	Aug 4, 2000 4:42 pm
29	Anna and Debbie I am not sure what happened, but I your thoughts are very true. On the CAH board (Danny's Carlton started it). I have wrote something and it...	preston preston@...	Aug 5, 2000 8:30 pm
30	My little, 8 mo. old baby girl has just been diagnosed with CAH-- after several months of saying to the doctors "something is not right" and the majority of...	Jenny jenannlynn@...	Oct 30, 2000 6:01 am
31	Hello everyone. You are a God send to me. Up until a few months ago I never had a computer. So I had no way of finding any support groups. I live here in...	Robyn carolecathlynann@...	Oct 31, 2000 10:34 pm
32	No vomiting is not an reaction to the cortef. She should go into the hospital right away until she is no longer vomiting. Because of dehydration and a...	preston preston@...	Oct 31, 2000 10:37 pm

Yahoo! Groups Tips

Did you know...

Messages

Yahoo! My Yahoo! Mail
	Sign In New User? Sign Up
		Health - Groups - Help

Yahoo! Groups Tips

Did you know...

Best of Y! Groups

Messages