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adrenal_hyperplasia · CONGENITAL ADRENAL HYPERPLASIA
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Family Workshop on Congenital Adrenal Hyperplasia Please come to a CAH Family Workshop hosted by the CARES Foundation Inc. We give special thanks to the Texas...
3 Mar 11, 2002
2:34 am

chrissyzim@...
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In a message dated 3/8/2002 9:58:51 AM Central Standard Time, ... Hi everyone! We had our 3rd baby March 5th--Sophia Melissa was born at 4:52 AM and was 8 lbs...
4 Mar 9, 2002
3:04 pm

chrissyzim@...
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How wonderful - a new baby!! Would you believe I even miss being pregnant!! And I have 7 living children and one in heaven. Please let me know all the ...
1 Mar 7, 2002
2:12 am

preston
bertie7_98
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In a message dated 3/3/2002 7:26:16 AM Central Standard Time, ... Glad to hear that Anthony is doing well! I am still waiting! My due date is March...
1 Mar 3, 2002
3:05 pm

jenannlynn@...
jenannlynn
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Congrats Roberta!!!! :) That is fabulous to hear! How are you recovering? We just recently learned we are expecting a third baby in March now--it was a ...
2 Mar 3, 2002
3:16 am

bertie7_98
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Dear Friends, CARES Foundation, Inc. is proud to send you its first newsletter for individuals and families affected by CAH. I hope you will enjoy it. If you ...
1 Dec 9, 2001
3:53 am

preston
preston@...
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Kelly might have already emailed this to you but just in case you haven't seen her newsletter - here it is!! Roberta Preston preston@... ... From:...
1 Dec 9, 2001
12:26 am

preston
preston@...
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here is a search on the web = results of hypospadius I hope it helps eBility - Hypospadius Repair Read about this abnormality of the penis, repair, risks, and...
1 Dec 2, 2001
5:19 pm

preston
preston@...
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While meeting with the suregeon that will be doing Jacob's hypospadius repair he had mentioned that instead of the injections of Testosterone to bring growth...
1 Nov 29, 2001
11:29 pm

Anna
anna26_2
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I am so glad that you posted on this email loop because CAH is such a difficult condition to find really good doctors for proper treatment and management. I...
4 Nov 19, 2001
3:42 pm

Anna
anna26_2
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It is nice to hear from someone out there. I hate flu season. Do you have the dex injection kit - so do you just wait until the hospital gives it? I have...
2 Nov 15, 2001
2:55 am

Anna
anna26_2
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Hi All, It's been ages since I've been in the group discussions, with my oldest son in school now and youngest just turning 2 I'm up to my elbows with stuff to...
1 Nov 12, 2001
12:55 am

Anna
anna26_2
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I work for the Air Force at the Pentagon but I am not home on maternity... thank god!! And my three year was not at the Pentagon Daycare but it was safe and my...
1 Sep 13, 2001
4:29 pm

preston
preston@...
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HELLO TO EVERYONE;; My Name is Nancy, I am new to this Board. My Primary is Addison's, I also have Asthma, Fibromyalgia, Thyroid Disfunction, I Broke my...
1 Sep 8, 2001
6:56 am

Nancy Carwile
nancyl@...
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exactly.... and it is struggle to keep the med (cortef) balanced... and always be careful about adrenal crisis... here is a web site that is in memory of a...
1 Sep 6, 2001
6:17 pm

preston
preston@...
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My doctor is recommending the clitoplasty for my daughter Hunter, but I am not sure how I feel about this. I would appreciate anyones feelings, suggestions,...
8 Sep 6, 2001
1:08 am

Anne S.
redheada@...
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TO Laurel, I was would like to know if the maps where sent out yet?Who called my P.O....
3 Aug 23, 2001
2:09 pm

karen lange
kmlange27@...
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Jenny, We opted not to have this part of the surgery done for my daughter, though it was also recommended for her. You will find in researching this that it...
1 Aug 14, 2001
5:50 pm

jenannlynn@...
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I just had a new baby born 2 August 01 Anthony Roger Preston I had genetic testing for CAH (two other children - boys with CAH ages 7 and 3 years old). Anthony...
2 Aug 10, 2001
5:31 am

Nancy Carwile
nancyl@...
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The genetic testing that is the most accurate is done in a lab at Cornell University in New York City. Don't panic - you don't have to go to New York. The...
1 Jul 22, 2001
4:38 am

preston
preston@...
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I have just learned about CAH so please forgive me if this is a stupid question. We are planning a family and so gathering information about any hereditary ...
2 Jul 20, 2001
8:06 pm

karen lange
kmlange27@...
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I need to find web site to WI cah group.I got the letter,but can't remember it.I hope to see you all at Steven's Point on july 25.I'm going to try my best to...
3 Jul 7, 2001
2:22 pm

karen lange
kmlange27@...
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Just wantd to let everyone know who helped me out that my baby had her "exploratory" surgery last week, and it went VERY well. The scariest part was having...
13 Jun 21, 2001
6:26 pm

micebike@...
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I have two sons (one daughter died from Adrenal Crisis - our second child at age 2 years old because of fever). If you have an adrenal insufficiency and it is...
1 May 6, 2001
4:30 am

preston
preston@...
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I am looking for any information regarding the diagnosis and treatment of CAH. I have two cousins that have been diagnosed with this and I have some of the...
2 May 4, 2001
1:33 pm

chrissyzim@...
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I don't see any attachments.. or whatever. Roberta Preston preston@... ... From: <adrenal_hyperplasia@yahoogroups.com> To:...
1 May 4, 2001
1:33 pm

preston
preston@...
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I am interested to see if there are any studies regarding Hyperemesis Grav. and CAH. My previous pregnancies ended with hospitalization and a Hickman Catheter...
1 Apr 30, 2001
11:20 pm

rarediseases@...
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Hello my name is Jenny H and I had my second daughter on March 16th. She was diagnosed with severe salt wasting CAH. This came as a total shocker to my husband...
1 Mar 26, 2001
6:00 am

JHmphr3@...
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here is a picture of the medial alert ID (sports medical id). It is perfect for a baby. Roberta Preston preston@......
1 Mar 3, 2001
8:49 pm

preston
preston@...
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INDIVIDUAL ORDERS - Safety Sport I.D. Bands with one information insert can be purchased for $6.99 each. Additional information inserts are $.25 each. Please...
1 Mar 3, 2001
8:47 pm

preston
preston@...
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