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adrenal_hyperplasia · CONGENITAL ADRENAL HYPERPLASIA
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#202 From: jenannlynn@...
Date: Fri Mar 8, 2002 1:50 pm
Subject: Re: Digest Number 100 		jenannlynn
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In a message dated 3/8/2002 9:58:51 AM Central Standard Time, adrenal_hyperplasia@yahoogroups.com writes:


How wonderful - a new baby!! Would you believe I even miss being pregnant!!
And I have 7 living children and one in heaven.  Please let me know all the
details!!! I am excited for you.  Where do you live - (you can personally
email if you don't want to post the details for the world or call me -
preston@... 703-370-4611.

Hi everyone!  We had our 3rd baby March 5th--Sophia Melissa was born at 4:52 AM and was 8 lbs 5.8 oz., 21 inches long.  She is beautiful and appears to be healthy--we are still obviously waiting on the tests to come back to see if she has CAH or not like her older sister, but her genitalia looks great, so if she does have it, it looks like we will at least not be needingto worry about surgeries or anything.  :)  We are so happy and so excited!  (We live in Indiana, by the way!)
Jenny

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#203 From: chrissyzim@...
Date: Fri Mar 8, 2002 2:17 pm
Subject: Re: Digest Number 100 		chrissyzim@...
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Hello Jenny,

I live in Indiana also, I have a soon to be 9 yo daughter with CAH w/severe

salt wasting.  She is on Cortef, and fluorinef, and in the past year has

started Peds Lupron Peds shot once a month.  She is going to be going into

surgery for reconstruction in the next year or so, hopefully later.  So that

would be her only surgery needed for the time being.  I have a son who is

going to be 11, but is not a carrier.  We had him tested as soon as my

daughter was diagnosed.  Well I saw your note and saw that you were from

Indiana also, and congrats on your new baby.  Take care and have a great day.

  Keep in touch

Christie


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#204 From: "Jeff and Debbie Doyle" <doyle@...>
Date: Sat Mar 9, 2002 2:01 pm
Subject: Re: Digest Number 100 		doyle@...
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What is Peds Lupron shot for?  I have a almost 8 yr. old w/CAH who is also

on florinef & cortef.  She had her surgeries done at 3 mos & 18 mos.  Just

curious as to what Peds Lubron is.

----- Original Message -----

From: <chrissyzim@...>

To: <adrenal_hyperplasia@yahoogroups.com>

Sent: Friday, March 08, 2002 1:17 PM

Subject: Re: [adrenal_hyperplasia] Digest Number 100





> Hello Jenny,

> I live in Indiana also, I have a soon to be 9 yo daughter with CAH

w/severe

> salt wasting.  She is on Cortef, and fluorinef, and in the past year has

> started Peds Lupron Peds shot once a month.  She is going to be going into

> surgery for reconstruction in the next year or so, hopefully later.  So

that

> would be her only surgery needed for the time being.  I have a son who is

> going to be 11, but is not a carrier.  We had him tested as soon as my

> daughter was diagnosed.  Well I saw your note and saw that you were from

> Indiana also, and congrats on your new baby.  Take care and have a great

day.

>  Keep in touch

> Christie

>

>

>

>

> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/

>

>

>


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#205 From: chrissyzim@...
Date: Sat Mar 9, 2002 10:04 am
Subject: Re: Digest Number 100 		chrissyzim@...
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Hello,
Peds lupron depot shot is used to slow the process of puberty.  My daughter has not had any surgeries yet and she does need surgery but they are trying to wait.  She was starting to advance in her puberty stage.  Everyone take care and have a beautiful day.
Christie

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