I just had a new baby born 2 August 01 Anthony Roger Preston I had genetic testing for CAH (two other children - boys with CAH ages 7 and 3 years old). Anthony...
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Nancy Carwile
nancyl@...
Aug 10, 2001 5:31 am
Hello, and congratulations on your new baby, Anthony. I am so new to this board, I know nothing about it, maybe when you get some free time, you will explain...
172
jenannlynn@...
Aug 10, 2001 5:48 pm
Congrats Roberta!!!! :) That is fabulous to hear! How are you recovering? We just recently learned we are expecting a third baby in March now--it was a ...
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JHmphr3@...
Aug 14, 2001 4:09 am
My doctor is recommending the clitoplasty for my daughter Hunter, but I am not sure how I feel about this. I would appreciate anyones feelings, suggestions,...
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karen lange
kmlange27@...
Aug 14, 2001 10:34 am
... Why is your doctor recommending this operation for your daughter.If I was a mother I would be the one making that dection and not the doctor.your daughter ...
175
bdavis1204@...
Aug 14, 2001 1:47 pm
Hi Jenny, when my daughter was 16 months old we had the clitoplasty done. We are so glad we had it done. She is 5 years old now and you would never know that...
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micebike@...
Aug 14, 2001 3:18 pm
I was born in 1980 and did have the clitoplasty done when I was very little. I also had to go back again when I was 14, but now they can do everything at once....
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jenannlynn@...
Aug 14, 2001 5:50 pm
Jenny, We opted not to have this part of the surgery done for my daughter, though it was also recommended for her. You will find in researching this that it...
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JHmphr3@...
Aug 14, 2001 6:14 pm
Thank you so much for your point of view. It is rare that I get to speak with someone that has cah themselves. My main concern with the surgery is whether or...
179
Ridley
andrew.ridley@...
Aug 15, 2001 8:51 pm
MY DAUGHTER IS NOW 11 AND SHE HAS BECOME VERY OVER WEIGHT WITH THE MEDICATION. WE HAVE TRIED A HEALER OUT OF DESPERATION. IT WAS AMAZING WHAT HE WAS ABLE TO...
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Debbie & Jeff Doyle
doyle@...
Aug 15, 2001 9:44 pm
Don't mean to offend anyone, but I have never heard about any child feeling raped. My daughter had 2 surgeries performed on her at 3 mos. and 18 mos. She...
181
kmlange27@...
Aug 23, 2001 3:26 am
TO Laurel, I was would like to know if the maps where sent out yet?Who called my P.O....
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melmikmol@...
Aug 23, 2001 2:01 pm
Must've missed something...is there a picinic at Stevens Point? Thanks....
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karen lange
kmlange27@...
Aug 23, 2001 2:09 pm
... Yes there is on the 24 of this month __________________________________________________ Do You Yahoo!? Make international calls for as low as $.04/minute...
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Anne S.
redheada@...
Sep 6, 2001 1:08 am
My daughter is 9 1/2 - had surgery several years ago. I am finding much bigger issues with her height/weight than any other "appearance." ... ...
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preston
preston@...
Sep 6, 2001 6:17 pm
exactly.... and it is struggle to keep the med (cortef) balanced... and always be careful about adrenal crisis... here is a web site that is in memory of a...
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Nancy Carwile
nancyl@...
Sep 8, 2001 6:56 am
HELLO TO EVERYONE;; My Name is Nancy, I am new to this Board. My Primary is Addison's, I also have Asthma, Fibromyalgia, Thyroid Disfunction, I Broke my...
187
preston
preston@...
Sep 13, 2001 4:29 pm
I work for the Air Force at the Pentagon but I am not home on maternity... thank god!! And my three year was not at the Pentagon Daycare but it was safe and my...
Hi All, It's been ages since I've been in the group discussions, with my oldest son in school now and youngest just turning 2 I'm up to my elbows with stuff to...
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preston
preston@...
Nov 12, 2001 8:49 pm
It is nice to hear from someone out there. I hate flu season. Do you have the dex injection kit - so do you just wait until the hospital gives it? I have...
Yeah I have the Dex Injection Kit, I didn't until his last episode though, I live in a small town In Upstate NY, See his Endo is in Syracuse but our local...
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preston
preston@...
Nov 16, 2001 2:04 am
I am so glad that you posted on this email loop because CAH is such a difficult condition to find really good doctors for proper treatment and management. I...
Thank you so much for the Emergency letter, and my deepest sympathy goes out to you for the loss of your daughter, I can't even begin to imagine how that has...
P.s.. take note , though many states claim to test for CAH, there are many counties within those states that are not adhearing to these standards. This is...
Hope I didn't confuse anyone with my last P.S Note, I received an e- mail from a diff board, sorry and I just responded in this one too! Was regarding...
While meeting with the suregeon that will be doing Jacob's hypospadius repair he had mentioned that instead of the injections of Testosterone to bring growth...
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preston
preston@...
Dec 2, 2001 5:19 pm
here is a search on the web = results of hypospadius I hope it helps eBility - Hypospadius Repair Read about this abnormality of the penis, repair, risks, and...
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preston
preston@...
Dec 9, 2001 12:26 am
Kelly might have already emailed this to you but just in case you haven't seen her newsletter - here it is!! Roberta Preston preston@... ... From:...
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preston
preston@...
Dec 9, 2001 3:53 am
Dear Friends, CARES Foundation, Inc. is proud to send you its first newsletter for individuals and families affected by CAH. I hope you will enjoy it. If you ...
... recovering? ... now--it was a ... how are you? did you have the baby? My baby born in August is doing fine... Anthony... he is teething and crawling......
