I need to find web site to WI cah group.I got the letter,but can't remember it.I hope to see you all at Steven's Point on july 25.I'm going to try my best to...
kmlange27@...
Jul 3, 2001 6:33 pm
165
Hi Karen, The web site address for the Wisconsin CAH support group is communities.msn.com/CAHFamiliesfromWisconsin. I look forward to seeing you there. Our...
Laurel Meier
lmeier68@...
Jul 4, 2001 4:06 am
166
... <HR> <html><DIV> <P><BR><BR></P> <DIV></DIV> <P><BR>Hi Karen,</P></DIV> <P>The web site address for the Wisconsin CAH support group is ...
karen lange
kmlange27@...
Jul 7, 2001 2:22 pm
167
I have just learned about CAH so please forgive me if this is a stupid question. We are planning a family and so gathering information about any hereditary ...
judy hastie
judyjhastie@...
Jul 20, 2001 5:53 pm
168
... I'm only 28 so I only know a little about my cah. I know it runs in the family. If I was you I would try to ask her about cah and I think there is a test...
karen lange
kmlange27@...
Jul 20, 2001 8:06 pm
169
The genetic testing that is the most accurate is done in a lab at Cornell University in New York City. Don't panic - you don't have to go to New York. The...
preston
preston@...
Jul 22, 2001 4:38 am
170
I just had a new baby born 2 August 01 Anthony Roger Preston I had genetic testing for CAH (two other children - boys with CAH ages 7 and 3 years old). Anthony...
preston
preston@...
Aug 10, 2001 1:16 am
171
Hello, and congratulations on your new baby, Anthony. I am so new to this board, I know nothing about it, maybe when you get some free time, you will explain...
Nancy Carwile
nancyl@...
Aug 10, 2001 5:31 am
172
Congrats Roberta!!!! :) That is fabulous to hear! How are you recovering? We just recently learned we are expecting a third baby in March now--it was a ...
jenannlynn@...
Aug 10, 2001 5:48 pm
173
My doctor is recommending the clitoplasty for my daughter Hunter, but I am not sure how I feel about this. I would appreciate anyones feelings, suggestions,...
JHmphr3@...
Aug 14, 2001 4:09 am
174
... Why is your doctor recommending this operation for your daughter.If I was a mother I would be the one making that dection and not the doctor.your daughter ...
karen lange
kmlange27@...
Aug 14, 2001 10:34 am
175
Hi Jenny, when my daughter was 16 months old we had the clitoplasty done. We are so glad we had it done. She is 5 years old now and you would never know that...
bdavis1204@...
Aug 14, 2001 1:47 pm
176
I was born in 1980 and did have the clitoplasty done when I was very little. I also had to go back again when I was 14, but now they can do everything at once....
micebike@...
Aug 14, 2001 3:18 pm
177
Jenny, We opted not to have this part of the surgery done for my daughter, though it was also recommended for her. You will find in researching this that it...
jenannlynn@...
Aug 14, 2001 5:50 pm
178
Thank you so much for your point of view. It is rare that I get to speak with someone that has cah themselves. My main concern with the surgery is whether or...
JHmphr3@...
Aug 14, 2001 6:14 pm
179
MY DAUGHTER IS NOW 11 AND SHE HAS BECOME VERY OVER WEIGHT WITH THE MEDICATION. WE HAVE TRIED A HEALER OUT OF DESPERATION. IT WAS AMAZING WHAT HE WAS ABLE TO...
Ridley
andrew.ridley@...
Aug 15, 2001 8:51 pm
180
Don't mean to offend anyone, but I have never heard about any child feeling raped. My daughter had 2 surgeries performed on her at 3 mos. and 18 mos. She...
Debbie & Jeff Doyle
doyle@...
Aug 15, 2001 9:44 pm
181
TO Laurel, I was would like to know if the maps where sent out yet?Who called my P.O....
kmlange27@...
Aug 23, 2001 3:26 am
182
Must've missed something...is there a picinic at Stevens Point? Thanks....
melmikmol@...
Aug 23, 2001 2:01 pm
183
... Yes there is on the 24 of this month __________________________________________________ Do You Yahoo!? Make international calls for as low as $.04/minute...
karen lange
kmlange27@...
Aug 23, 2001 2:09 pm
184
My daughter is 9 1/2 - had surgery several years ago. I am finding much bigger issues with her height/weight than any other "appearance." ... ...
Anne S.
redheada@...
Sep 6, 2001 1:08 am
185
exactly.... and it is struggle to keep the med (cortef) balanced... and always be careful about adrenal crisis... here is a web site that is in memory of a...
preston
preston@...
Sep 6, 2001 6:17 pm
186
HELLO TO EVERYONE;; My Name is Nancy, I am new to this Board. My Primary is Addison's, I also have Asthma, Fibromyalgia, Thyroid Disfunction, I Broke my...
Nancy Carwile
nancyl@...
Sep 8, 2001 6:56 am
187
I work for the Air Force at the Pentagon but I am not home on maternity... thank god!! And my three year was not at the Pentagon Daycare but it was safe and my...
preston
preston@...
Sep 13, 2001 4:29 pm
188
Hi All, It's been ages since I've been in the group discussions, with my oldest son in school now and youngest just turning 2 I'm up to my elbows with stuff to...
It is nice to hear from someone out there. I hate flu season. Do you have the dex injection kit - so do you just wait until the hospital gives it? I have...
preston
preston@...
Nov 12, 2001 8:49 pm
190
Yeah I have the Dex Injection Kit, I didn't until his last episode though, I live in a small town In Upstate NY, See his Endo is in Syracuse but our local...
I am so glad that you posted on this email loop because CAH is such a difficult condition to find really good doctors for proper treatment and management. I...
preston
preston@...
Nov 16, 2001 2:04 am
192
Thank you so much for the Emergency letter, and my deepest sympathy goes out to you for the loss of your daughter, I can't even begin to imagine how that has...
P.s.. take note , though many states claim to test for CAH, there are many counties within those states that are not adhearing to these standards. This is...
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