I am pregnant. Since my boys have CAH. I had genetic testing and my new baby is fine... no CAH or chromosomal problems. I am due 8 August. I had CVS genetic...
preston
preston@...
Feb 10, 2001 4:07 am
118
Roberta, I had no idea you were pregnant!! WOW!! Such GREAT news!! I'm so happy for you! Selena...
Bruce Vincent
batmanv@...
Feb 10, 2001 9:30 pm
119
Roberta, I am so happy to hear that you are expecting and your new baby doesn't have CAH. I have an 8 year old (Jake) who doesn't have CAH and a 4 year old ...
Goolsby4@...
Feb 10, 2001 9:30 pm
120
Congratulations Roberta, that is great news!! Hope you get a little girl your boys can love & protect! Debbie...
Debbie Doyle
doyle@...
Feb 10, 2001 9:31 pm
121
congrats Roberta glad to hear your new baby is fine. Since I just join the group I'm a little behind on the current events. ... ...
dsschuttler@...
Feb 10, 2001 9:32 pm
122
Rachael: Your feelings are similar to mine. I have a 6-1/2 yr. old girl, Angela, who was borne with CAH. Angela is doing great too! However, I never had ...
Debbie Doyle
doyle@...
Feb 11, 2001 10:16 pm
123
I am really glad that this is such good news. Im overflowed with joy of hearing that great news. I have CAH and fear so badly if I have kids that they will get...
Georgianna Copeland
georgiannac@...
Feb 11, 2001 10:18 pm
124
In a message dated 2/10/2001 4:31:41 PM US Eastern Standard Time, ... Ditto to that Rachel! My birthday too! Congrats Roberta! I am so excited for you on the...
jenannlynn@...
Feb 13, 2001 12:24 am
125
You know, my husband has also tended to be more apprehensive at the thought of more kids since our Jessie was diagnosed. (She turned oe last week) I think it...
jenannlynn@...
Feb 13, 2001 12:25 am
126
Hi all, I've been lurking on this list for a couple of months now, having found out about it while I was searching the internet for "what's new" on CAH. I've ...
Kathy Partridge
atelierk@...
Feb 13, 2001 12:26 am
127
Kathy, I enjoyed reading your story, thanks for sharing it. CAH had affected our decision not to have any more children. Mostly the cost. We do not qualify ...
Bruce Vincent
batmanv@...
Feb 14, 2001 12:46 am
128
Thank you everyone for their thoughts!! The genetic testing showed it is a boy and no CAH. I will admit that I was hoping for a girl because I have a boy that...
preston
preston@...
Feb 14, 2001 12:46 am
129
In a message dated 2/12/2001 7:28:02 PM US Eastern Standard Time, ... I have to say I agree whole-heartedly with you Kathy! It is good to hear that someone...
jenannlynn@...
Feb 14, 2001 12:47 am
130
Im glad that you are brave enough to have more kids and I am sure u do a good job of her meds and all. I would like to adopt children with many medical probs...
Georgianna Copeland
georgiannac@...
Feb 14, 2001 12:47 am
131
That was wonderful email from Kathy !! I wish that there was a cure for CAH and doctors knew more about it. Kathy - you were so lucky to have a good doctor...
preston
preston@...
Feb 15, 2001 2:09 pm
132
Sorry I had said in my statement of my fears, I was wrong. Please dont be mad! I seem to be saying and doing everything wrong right now. Sorry. Georgianna...
Georgianna Copeland
georgiannac@...
Feb 15, 2001 2:11 pm
133
Hello to all! I haven't read e-mails in the last couple of days and was surprised to see so many about CAH. I feel that my earlier e-mail has really started...
Goolsby4@...
Feb 17, 2001 3:07 pm
134
Hi I'm a new member to this group. I have two children with non-salt wasting CAH. Lauren is 5 and Ryan is 16 months. They are doing great. Lauren had...
bdavis1204@...
Feb 17, 2001 3:07 pm
135
There have been problems with the suspension liquid cortef and also the availablility of it. My daughter, 6-1/2, was switched to cortef pills last June. She...
Debbie Doyle
doyle@...
Feb 19, 2001 7:07 am
136
my son was just diagnosed with adrenal hyperplasia...except they dont know yet if is hyper or hypoplasia or something else i guess except his medicines are for...
adele543@...
Feb 25, 2001 6:01 am
137
Hi Debbie, My children go to their endo the end of April I'm going to ask him about cortef pills. I think my 5 year old can handle that but I don't know about...
bdavis1204@...
Feb 25, 2001 10:08 pm
138
Does anyone out there have medical ID bracelets for their children?...
bdavis1204@...
Feb 25, 2001 10:08 pm
139
Hello Adelle, My son, Luke, will be 5 years old in May. He has salt-wasting Congenital Adrenal Hyperplasia. I don't know much about the weight thing-we...
Goolsby4@...
Feb 25, 2001 10:09 pm
140
Hi. Your 5 year old should be able to take the pills just fine. My daughter, Angela, doesn't swallow them w/water, but instead chews the pill followed by a...
Debbie Doyle
doyle@...
Feb 27, 2001 2:26 am
141
Adelle. To back up Rachel's message to you, my daughter is 6-1/2 and is very, very active also. She plays softball, takes swim lessons , bike rides,...
Debbie Doyle
doyle@...
Feb 27, 2001 2:26 am
142
Adelle-- My daughter was diagnosed at 9 months old--just 3 months ago--and I have researched this a lot. SOme websites I have found helpful: <A...
jenannlynn@...
Feb 27, 2001 2:27 am
143
<A HREF="http://www.medicalert.org/">MedicAlert Foundation Home Page</A> <A HREF="http://www.missbrooke.com/silver.htm">Silver</A> <A...
jenannlynn@...
Feb 27, 2001 2:27 am
144
... Whoever sent that link on SportsID bracelets. Thanks. I sent off for a sample for our school. I was wanting to get them for our special ed kids. They are...
Kim
sweetiee1@...
Feb 27, 2001 2:27 am
145
Dear Adele, I am Georgianna and am 20 years old. I have congenital adrenal hyperplasis non salt waster I think. I also have many other probs thats just a small...
Georgianna Copeland
georgiannac@...
Feb 27, 2001 2:27 am
146
Thank you all so much for the links and information. It has been very helpful...our son had his circumcision today and is doing fine he was supposed to get his...
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