I am pregnant. Since my boys have CAH. I had genetic testing and my new baby is fine... no CAH or chromosomal problems. I am due 8 August. I had CVS genetic...
118
Bruce Vincent
batmanv@...
Feb 10, 2001 9:30 pm
Roberta, I had no idea you were pregnant!! WOW!! Such GREAT news!! I'm so happy for you! Selena...
119
Goolsby4@...
Feb 10, 2001 9:30 pm
Roberta, I am so happy to hear that you are expecting and your new baby doesn't have CAH. I have an 8 year old (Jake) who doesn't have CAH and a 4 year old ...
120
Debbie Doyle
doyle@...
Feb 10, 2001 9:31 pm
Congratulations Roberta, that is great news!! Hope you get a little girl your boys can love & protect! Debbie...
121
dsschuttler@...
Feb 10, 2001 9:32 pm
congrats Roberta glad to hear your new baby is fine. Since I just join the group I'm a little behind on the current events. ... ...
122
Debbie Doyle
doyle@...
Feb 11, 2001 10:16 pm
Rachael: Your feelings are similar to mine. I have a 6-1/2 yr. old girl, Angela, who was borne with CAH. Angela is doing great too! However, I never had ...
123
Georgianna Copeland
georgiannac@...
Feb 11, 2001 10:18 pm
I am really glad that this is such good news. Im overflowed with joy of hearing that great news. I have CAH and fear so badly if I have kids that they will get...
124
jenannlynn@...
Feb 13, 2001 12:24 am
In a message dated 2/10/2001 4:31:41 PM US Eastern Standard Time, ... Ditto to that Rachel! My birthday too! Congrats Roberta! I am so excited for you on the...
125
jenannlynn@...
Feb 13, 2001 12:25 am
You know, my husband has also tended to be more apprehensive at the thought of more kids since our Jessie was diagnosed. (She turned oe last week) I think it...
126
Kathy Partridge
atelierk@...
Feb 13, 2001 12:26 am
Hi all, I've been lurking on this list for a couple of months now, having found out about it while I was searching the internet for "what's new" on CAH. I've ...
127
Bruce Vincent
batmanv@...
Feb 14, 2001 12:46 am
Kathy, I enjoyed reading your story, thanks for sharing it. CAH had affected our decision not to have any more children. Mostly the cost. We do not qualify ...
128
preston
preston@...
Feb 14, 2001 12:46 am
Thank you everyone for their thoughts!! The genetic testing showed it is a boy and no CAH. I will admit that I was hoping for a girl because I have a boy that...
129
jenannlynn@...
Feb 14, 2001 12:47 am
In a message dated 2/12/2001 7:28:02 PM US Eastern Standard Time, ... I have to say I agree whole-heartedly with you Kathy! It is good to hear that someone...
130
Georgianna Copeland
georgiannac@...
Feb 14, 2001 12:47 am
Im glad that you are brave enough to have more kids and I am sure u do a good job of her meds and all. I would like to adopt children with many medical probs...
131
preston
preston@...
Feb 15, 2001 2:09 pm
That was wonderful email from Kathy !! I wish that there was a cure for CAH and doctors knew more about it. Kathy - you were so lucky to have a good doctor...
132
Georgianna Copeland
georgiannac@...
Feb 15, 2001 2:11 pm
Sorry I had said in my statement of my fears, I was wrong. Please dont be mad! I seem to be saying and doing everything wrong right now. Sorry. Georgianna...
133
Goolsby4@...
Feb 17, 2001 3:07 pm
Hello to all! I haven't read e-mails in the last couple of days and was surprised to see so many about CAH. I feel that my earlier e-mail has really started...
134
bdavis1204@...
Feb 17, 2001 3:07 pm
Hi I'm a new member to this group. I have two children with non-salt wasting CAH. Lauren is 5 and Ryan is 16 months. They are doing great. Lauren had...
135
Debbie Doyle
doyle@...
Feb 19, 2001 7:07 am
There have been problems with the suspension liquid cortef and also the availablility of it. My daughter, 6-1/2, was switched to cortef pills last June. She...
136
adele543@...
Feb 25, 2001 6:01 am
my son was just diagnosed with adrenal hyperplasia...except they dont know yet if is hyper or hypoplasia or something else i guess except his medicines are for...
137
bdavis1204@...
Feb 25, 2001 10:08 pm
Hi Debbie, My children go to their endo the end of April I'm going to ask him about cortef pills. I think my 5 year old can handle that but I don't know about...
138
bdavis1204@...
Feb 25, 2001 10:08 pm
Does anyone out there have medical ID bracelets for their children?...
139
Goolsby4@...
Feb 25, 2001 10:09 pm
Hello Adelle, My son, Luke, will be 5 years old in May. He has salt-wasting Congenital Adrenal Hyperplasia. I don't know much about the weight thing-we...
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Debbie Doyle
doyle@...
Feb 27, 2001 2:26 am
Hi. Your 5 year old should be able to take the pills just fine. My daughter, Angela, doesn't swallow them w/water, but instead chews the pill followed by a...
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Debbie Doyle
doyle@...
Feb 27, 2001 2:26 am
Adelle. To back up Rachel's message to you, my daughter is 6-1/2 and is very, very active also. She plays softball, takes swim lessons , bike rides,...
142
jenannlynn@...
Feb 27, 2001 2:27 am
Adelle-- My daughter was diagnosed at 9 months old--just 3 months ago--and I have researched this a lot. SOme websites I have found helpful: <A...
143
jenannlynn@...
Feb 27, 2001 2:27 am
<A HREF="http://www.medicalert.org/">MedicAlert Foundation Home Page</A> <A HREF="http://www.missbrooke.com/silver.htm">Silver</A> <A...
144
Kim
sweetiee1@...
Feb 27, 2001 2:27 am
... Whoever sent that link on SportsID bracelets. Thanks. I sent off for a sample for our school. I was wanting to get them for our special ed kids. They are...
145
Georgianna Copeland
georgiannac@...
Feb 27, 2001 2:27 am
Dear Adele, I am Georgianna and am 20 years old. I have congenital adrenal hyperplasis non salt waster I think. I also have many other probs thats just a small...
146
adele burich
adele543@...
Feb 28, 2001 5:45 pm
Thank you all so much for the links and information. It has been very helpful...our son had his circumcision today and is doing fine he was supposed to get his...
