I think that you are great for doing this now!! Again I have boys with CAH but I think I know what you are dealing with because of all thinks I worry about...
preston
preston@...
Jan 1, 2001 8:44 am
103
OK. This is what I thought it might mean. Seems kind of scary to know you have to continue doing that until they are older. It would seem better to start...
Kim
sweetiee1@...
Jan 5, 2001 5:19 pm
104
In a message dated 1/5/2001 12:20:55 PM US Eastern Standard Time, sweetiee1@... writes: << OK. This is what I thought it might mean. Seems kind of...
jenannlynn@...
Jan 6, 2001 6:27 am
105
Okay, I have yet another question. I am looking into getting some kind of medical bracelet or necklace for my daughter--she will be one in February, and I...
Jenny
jenannlynn@...
Jan 6, 2001 6:27 am
106
The MAGIC foundation has info on the sports medical bracelet, that is what I have for my daughter. She was rough on bracelets, she has been wearing one since...
chrissyzim@...
Jan 7, 2001 12:24 am
107
I am looking ... I remember having one as a child because I was allergic to penicillin. Yes, I know I need to be wearing one now too... Anyway, I had a...
Kim
sweetiee1@...
Jan 7, 2001 12:24 am
108
This one is great - it is a soft sports ID. Adam and Stephen always wear it. I never take it off. We also have the metal ones too - but during an adrenal...
preston
preston@...
Jan 7, 2001 12:24 am
109
My 14 Month old son wheres a bracelet with his condition on it.He had a pendent on a neclace but it was a chokeing hazzard.We were told that in a emergency...
Curtis
curtisg@...
Jan 7, 2001 12:25 am
110
Another thing about the metal IDs - they get so scatched up that they become hard to read (and are hard to read to start with), so that is why I think the...
preston
preston@...
Jan 8, 2001 5:51 am
111
... Wow! I've never heard of these! I think I might look into ordering some for my students. I have Special Ed and we always have to have ID when in the...
Kim
sweetiee1@...
Jan 8, 2001 10:12 pm
112
In a message dated 1/8/01 4:30:13 PM Central Standard Time, ... I tried this website and it wouldn't let me in...
chrissyzim@...
Jan 10, 2001 12:05 pm
113
Christie, What is the html address for MAGIC foundation? I think I have joined it but not sure what the address is...cause I am looking for a sports one for...
Georgianna Copeland
georgiannac@...
Jan 11, 2001 3:32 am
114
http://www.safetysportid.com ... Try it again. It worked for me. Kim ===== Get free stuff just for surfing the net! www.mypoints.com www.startsampling.com use...
Kim
sweetiee1@...
Jan 11, 2001 3:34 am
115
Call, write, fax, or email them: Safety Sport I.D., Inc. 4546 Rutherford Drive Marietta, GA 30062 Phone 770/650-0091 Fax 770/664-8863 Email:...
preston
preston@...
Jan 13, 2001 3:52 am
116
I contacted them about purchasing them for my Special Ed students. They are supposed to send a sample. My director wants to see themand if they are a good ...
Kim
sweetiee1@...
Jan 14, 2001 10:40 pm
117
I am pregnant. Since my boys have CAH. I had genetic testing and my new baby is fine... no CAH or chromosomal problems. I am due 8 August. I had CVS genetic...
preston
preston@...
Feb 10, 2001 4:07 am
118
Roberta, I had no idea you were pregnant!! WOW!! Such GREAT news!! I'm so happy for you! Selena...
Bruce Vincent
batmanv@...
Feb 10, 2001 9:30 pm
119
Roberta, I am so happy to hear that you are expecting and your new baby doesn't have CAH. I have an 8 year old (Jake) who doesn't have CAH and a 4 year old ...
Goolsby4@...
Feb 10, 2001 9:30 pm
120
Congratulations Roberta, that is great news!! Hope you get a little girl your boys can love & protect! Debbie...
Debbie Doyle
doyle@...
Feb 10, 2001 9:31 pm
121
congrats Roberta glad to hear your new baby is fine. Since I just join the group I'm a little behind on the current events. ... ...
dsschuttler@...
Feb 10, 2001 9:32 pm
122
Rachael: Your feelings are similar to mine. I have a 6-1/2 yr. old girl, Angela, who was borne with CAH. Angela is doing great too! However, I never had ...
Debbie Doyle
doyle@...
Feb 11, 2001 10:16 pm
123
I am really glad that this is such good news. Im overflowed with joy of hearing that great news. I have CAH and fear so badly if I have kids that they will get...
Georgianna Copeland
georgiannac@...
Feb 11, 2001 10:18 pm
124
In a message dated 2/10/2001 4:31:41 PM US Eastern Standard Time, ... Ditto to that Rachel! My birthday too! Congrats Roberta! I am so excited for you on the...
jenannlynn@...
Feb 13, 2001 12:24 am
125
You know, my husband has also tended to be more apprehensive at the thought of more kids since our Jessie was diagnosed. (She turned oe last week) I think it...
jenannlynn@...
Feb 13, 2001 12:25 am
126
Hi all, I've been lurking on this list for a couple of months now, having found out about it while I was searching the internet for "what's new" on CAH. I've ...
Kathy Partridge
atelierk@...
Feb 13, 2001 12:26 am
127
Kathy, I enjoyed reading your story, thanks for sharing it. CAH had affected our decision not to have any more children. Mostly the cost. We do not qualify ...
Bruce Vincent
batmanv@...
Feb 14, 2001 12:46 am
128
Thank you everyone for their thoughts!! The genetic testing showed it is a boy and no CAH. I will admit that I was hoping for a girl because I have a boy that...
preston
preston@...
Feb 14, 2001 12:46 am
129
In a message dated 2/12/2001 7:28:02 PM US Eastern Standard Time, ... I have to say I agree whole-heartedly with you Kathy! It is good to hear that someone...
jenannlynn@...
Feb 14, 2001 12:47 am
130
Im glad that you are brave enough to have more kids and I am sure u do a good job of her meds and all. I would like to adopt children with many medical probs...
Georgianna Copeland
georgiannac@...
Feb 14, 2001 12:47 am
131
That was wonderful email from Kathy !! I wish that there was a cure for CAH and doctors knew more about it. Kathy - you were so lucky to have a good doctor...
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