MY DAUGHTER IS NOW 11 AND SHE HAS BECOME VERY OVER WEIGHT WITH THE MEDICATION. WE HAVE TRIED A HEALER OUT OF DESPERATION. IT WAS AMAZING WHAT HE WAS ABLE TO...
180
Debbie & Jeff Doyle
doyle@...
Aug 15, 2001 9:44 pm
Don't mean to offend anyone, but I have never heard about any child feeling raped. My daughter had 2 surgeries performed on her at 3 mos. and 18 mos. She...
181
kmlange27@...
Aug 23, 2001 3:26 am
TO Laurel, I was would like to know if the maps where sent out yet?Who called my P.O....
182
melmikmol@...
Aug 23, 2001 2:01 pm
Must've missed something...is there a picinic at Stevens Point? Thanks....
183
karen lange
kmlange27@...
Aug 23, 2001 2:09 pm
... Yes there is on the 24 of this month __________________________________________________ Do You Yahoo!? Make international calls for as low as $.04/minute...
184
Anne S.
redheada@...
Sep 6, 2001 1:08 am
My daughter is 9 1/2 - had surgery several years ago. I am finding much bigger issues with her height/weight than any other "appearance." ... ...
185
preston
preston@...
Sep 6, 2001 6:17 pm
exactly.... and it is struggle to keep the med (cortef) balanced... and always be careful about adrenal crisis... here is a web site that is in memory of a...
186
Nancy Carwile
nancyl@...
Sep 8, 2001 6:56 am
HELLO TO EVERYONE;; My Name is Nancy, I am new to this Board. My Primary is Addison's, I also have Asthma, Fibromyalgia, Thyroid Disfunction, I Broke my...
187
preston
preston@...
Sep 13, 2001 4:29 pm
I work for the Air Force at the Pentagon but I am not home on maternity... thank god!! And my three year was not at the Pentagon Daycare but it was safe and my...
Hi All, It's been ages since I've been in the group discussions, with my oldest son in school now and youngest just turning 2 I'm up to my elbows with stuff to...
189
preston
preston@...
Nov 12, 2001 8:49 pm
It is nice to hear from someone out there. I hate flu season. Do you have the dex injection kit - so do you just wait until the hospital gives it? I have...
Yeah I have the Dex Injection Kit, I didn't until his last episode though, I live in a small town In Upstate NY, See his Endo is in Syracuse but our local...
191
preston
preston@...
Nov 16, 2001 2:04 am
I am so glad that you posted on this email loop because CAH is such a difficult condition to find really good doctors for proper treatment and management. I...
Thank you so much for the Emergency letter, and my deepest sympathy goes out to you for the loss of your daughter, I can't even begin to imagine how that has...
P.s.. take note , though many states claim to test for CAH, there are many counties within those states that are not adhearing to these standards. This is...
Hope I didn't confuse anyone with my last P.S Note, I received an e- mail from a diff board, sorry and I just responded in this one too! Was regarding...
While meeting with the suregeon that will be doing Jacob's hypospadius repair he had mentioned that instead of the injections of Testosterone to bring growth...
196
preston
preston@...
Dec 2, 2001 5:19 pm
here is a search on the web = results of hypospadius I hope it helps eBility - Hypospadius Repair Read about this abnormality of the penis, repair, risks, and...
197
preston
preston@...
Dec 9, 2001 12:26 am
Kelly might have already emailed this to you but just in case you haven't seen her newsletter - here it is!! Roberta Preston preston@... ... From:...
198
preston
preston@...
Dec 9, 2001 3:53 am
Dear Friends, CARES Foundation, Inc. is proud to send you its first newsletter for individuals and families affected by CAH. I hope you will enjoy it. If you ...
... recovering? ... now--it was a ... how are you? did you have the baby? My baby born in August is doing fine... Anthony... he is teething and crawling......
How wonderful - a new baby!! Would you believe I even miss being pregnant!! And I have 7 living children and one in heaven. Please let me know all the ...
In a message dated 3/8/2002 9:58:51 AM Central Standard Time, ... Hi everyone! We had our 3rd baby March 5th--Sophia Melissa was born at 4:52 AM and was 8 lbs...
203
chrissyzim@...
Mar 8, 2002 8:32 pm
Hello Jenny, I live in Indiana also, I have a soon to be 9 yo daughter with CAH w/severe salt wasting. She is on Cortef, and fluorinef, and in the past year...
204
Jeff and Debbie Doyle
doyle@...
Mar 9, 2002 12:59 pm
What is Peds Lupron shot for? I have a almost 8 yr. old w/CAH who is also on florinef & cortef. She had her surgeries done at 3 mos & 18 mos. Just curious...
205
chrissyzim@...
Mar 9, 2002 3:04 pm
Hello, Peds lupron depot shot is used to slow the process of puberty. My daughter has not had any surgeries yet and she does need surgery but they are trying ...
Family Workshop on Congenital Adrenal Hyperplasia Please come to a CAH Family Workshop hosted by the CARES Foundation Inc. We give special thanks to the Texas...
Congrats - email me - preston@... My husband has a friend in Indiana that he just visited last month. What wonderful news that she doesn't need...
208
chrissyzim@...
Mar 11, 2002 2:34 am
She was diagnosed at the age of 6 weeks, and has been a salt waster since than also. Our son is not a carrier, we had him tested as soon as our daughter was...
