Well I just found this group, so this will be my first official post...I gave birth to a baby boy November 1'st who has been diagnosed with the 3-Beta Salt waisting form of CAH..To date Jacob is doing well, He spent his first week in an NICU unit, and it wasn't until he was two weeks old that we were given his diagnoses..Jacob so far hasn't had any set backs, although at immunization time I was a mess worrying about a fever from the shots..He did great...wish I could say the same for myself..Ugh, does this ever get any easier to deal with? Granted I am only 9 weeks into this but every time he feels even a little warm to me Im right there with a thermometer up his butt..I feel so terrible for him, He gets weekly bloodwork drawn, and has been pricked prodded and poked too many times for me to count...Presently his meds are full tablet of florinef in the A.M., then half in the afternoon and another half at night, as well as 1/2 mil. cortef twice daily..He has been on this dose for about three weeks now, we along with his Endo, have found that any less of florinef and his sodium drops dangerously low, although at this doseage he has developed high blood pressure....it feels as though were damned if we do and damned if we don't...Will it always be a battle to keep his levels where they should be? I don't even want to think about the year ahead with teething, my older son developed a fever with each new tooth...Please forgive me if I have complained too much, don't get me wrong, I would and will do anything I have to, to assure my little guy has everything needed to keep him happy and healthy..He is my little miracle, and I only hope with gods help that I can give him the life he was sent here to have...It is all so overwhelming at times, and I would appreciate any advice you may have to offer me..thanks so much....