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Re: Digest Number 14   Message List  
Reply | Forward Message #52 of 208 |
Re: [adrenal_hyperplasia] Digest Number 14

In a message dated 11/7/2000 2:42:01 AM US Eastern Standard Time,
doyle@... writes:

<< giving them their medicine on time and regularly. >>
How "regularly" do you give the medicine? I was told about every 8 hours,
but if I were to truly do every 8 hours, I would be waking my baby in the
middle of the night. I have been doing it late in the evening and when she
wakes up in the morning and about mid-afternoon. Just curious how others
space the medication? I figure she has done really well for 8 months anyhow
without anything at all...maybe that is the wrong attitude to have?
Jenny




Tue Nov 7, 2000 7:36 pm

jenannlynn@...
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Message #52 of 208 |
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http://congenitaladrenalhyperplasia.org/mb/page1.htm Jenny - Here is another web site for CAH - this one is a message board for parents for CAH children. Danny...
preston
preston@...
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Nov 5, 2000
8:23 am

When to give the injection of solu-cortef or triple the cortef ? My ped endo said 101 fever but 100 fever is and can be just as bad. For one thing the...
preston
preston@...
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Nov 5, 2000
8:24 am

In a message dated 11/5/2000 3:26:54 AM US Eastern Standard Time, preston@... writes: <<...
jenannlynn@...
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Nov 6, 2000
7:09 am

In a message dated 11/5/2000 3:26:54 AM US Eastern Standard Time, preston@... writes: << Print out this pamplet from the National Institute of...
jenannlynn@...
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Nov 6, 2000
7:09 am

I am the father of a son, who will be 17 in two weeks. He has CAH and is a salt-waster. I well remember putting my son into the NICU in a New Orleans...
Jeffrey Lawson
Laugesen@...
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Nov 6, 2000
7:09 am

Its nice to hear a happy story. I am a mother of a 6 yr. old daughter who was born and diagnosed at birth w/CAH. She has and continues to do beautifully...
Debbie Doyle
doyle@...
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Nov 7, 2000
7:40 am

I too, can't get that website to work....
Debbie Doyle
doyle@...
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Nov 7, 2000
7:41 am

In a message dated 11/7/2000 2:42:01 AM US Eastern Standard Time, doyle@... writes: << giving them their medicine on time and regularly. >> How...
jenannlynn@...
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Nov 8, 2000
9:29 am

Angela, who is 6, also gets her meds every 8 hrs. (the cortef). Since she is older now, she has it in pill form. But when she was younger, she had the liquid...
Debbie Doyle
doyle@...
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Nov 9, 2000
5:43 am

Jenny, I give Kassandra, who is now 7 years old, her medicine at 6am, 2pm and 10pm. It works well, she got used to taking her medsin the evening that she would...
chrissyzim@...
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Nov 9, 2000
5:43 am

Hi, I have got a 10 year old daughter whow was diagnosed with CAH when she was about 4. She is on Fludrocortisone and 5mg of hydrocortisone in the morning,...
Ridley
andrew.ridley@...
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Nov 17, 2000
3:38 am

My experience has been that dosage does not relate directly to age or body mass. The only way to determine an appropriate dose for a child is empirically - by...
John Congleton
jconglet@...
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Nov 18, 2000
2:38 pm
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