http://congenitaladrenalhyperplasia.org/mb/page1.htm Jenny - Here is another web site for CAH - this one is a message board for parents for CAH children. Danny...
preston
preston@...
Nov 5, 2000 8:23 am
When to give the injection of solu-cortef or triple the cortef ? My ped endo said 101 fever but 100 fever is and can be just as bad. For one thing the...
preston
preston@...
Nov 5, 2000 8:24 am
In a message dated 11/5/2000 3:26:54 AM US Eastern Standard Time, preston@... writes: <<...
jenannlynn@...
Nov 6, 2000 7:09 am
In a message dated 11/5/2000 3:26:54 AM US Eastern Standard Time, preston@... writes: << Print out this pamplet from the National Institute of...
jenannlynn@...
Nov 6, 2000 7:09 am
I am the father of a son, who will be 17 in two weeks. He has CAH and is a salt-waster. I well remember putting my son into the NICU in a New Orleans...
Jeffrey Lawson
Laugesen@...
Nov 6, 2000 7:09 am
Its nice to hear a happy story. I am a mother of a 6 yr. old daughter who was born and diagnosed at birth w/CAH. She has and continues to do beautifully...
Debbie Doyle
doyle@...
Nov 7, 2000 7:40 am
I too, can't get that website to work....
Debbie Doyle
doyle@...
Nov 7, 2000 7:41 am
In a message dated 11/7/2000 2:42:01 AM US Eastern Standard Time, doyle@... writes: << giving them their medicine on time and regularly. >> How...
jenannlynn@...
Nov 8, 2000 9:29 am
Angela, who is 6, also gets her meds every 8 hrs. (the cortef). Since she is older now, she has it in pill form. But when she was younger, she had the liquid...
Debbie Doyle
doyle@...
Nov 9, 2000 5:43 am
Jenny, I give Kassandra, who is now 7 years old, her medicine at 6am, 2pm and 10pm. It works well, she got used to taking her medsin the evening that she would...
chrissyzim@...
Nov 9, 2000 5:43 am
Hi, I have got a 10 year old daughter whow was diagnosed with CAH when she was about 4. She is on Fludrocortisone and 5mg of hydrocortisone in the morning,...
Ridley
andrew.ridley@...
Nov 17, 2000 3:38 am
My experience has been that dosage does not relate directly to age or body mass. The only way to determine an appropriate dose for a child is empirically - by...