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adrenal_hyperplasia · CONGENITAL ADRENAL HYPERPLASIA
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Reply | Forward Message #31 of 208 |
Hello everyone. You are a God send to me. Up until a few months ago I
never had a computer. So I had no way of finding any support
groups. I live here in Oregon. My doctors up at Oregon Health
Science University could not or would not, I do not know which one
give me any help locating a support group.
Everytime when I asked if they knew of any support groups available
where I could meet someone who deals also with CAH they could not
refer me to anyone. They kept telling me they would search through
their computer and see if they could. Nothing ever came from it. I
am a 58 year old female pseudo. as I have stated in my subscription
MY DNA karotype is 46XX. I am married to a wondeful husband. All
through out my life even with his love I have felt like a freak and
mostly treated as such. During my life I have tried many suicidal
attempts. On several occassions nearly successful. I belong to the
Intersex support group and the reassignment intersex support group.
Through out my life I have been teased and harrassed by my peers and
society for what I am. I am diffently lost in two Worlds. I would
love to hear from other members. All My life I have really felt all
alone and very lonesome. I have tried many therapists but each time
I have had to walk away from them. They just could not understand
what I was saying. I desperately need to talk to someone who has
walked in my shoes. So once again I will say hello. Carole Cathlyn
Ann





Mon Oct 30, 2000 5:59 pm

carolecathlynann@...
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Message #31 of 208 |
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Hello everyone. You are a God send to me. Up until a few months ago I never had a computer. So I had no way of finding any support groups. I live here in...
Robyn
carolecathlynann@...
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Oct 31, 2000
10:34 pm

Exuse my ignorance, but what is "pseudo" and your DNA karotype is 46xx, what does all that mean? No child or person with CAH should ever feel like a "freak"....
Debbie Doyle
doyle@...
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Nov 2, 2000
6:23 am

My name is Carole in regards to your question what pseudo means and 46XX. I am a Nonadrenal female pseudohermaphrodite. One of the causes is CAH. I am 58...
carolecathlynann@...
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Nov 2, 2000
9:50 pm
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