Congrats - email me - preston@... My husband has a friend in
Indiana that he just visited last month. What wonderful news that she
doesn't need surgery. I guess the SV type usually doesn't need it but it
gets progessive worst if NOT treated. So you don't she she has CAH or not,
yet. I would recommend the genetic blood testing too. It can confirm the CAH
or whether or not she is a carrier. It is just a blood test taken locally
but sent to Dr. Maria New in New York. We had it done and the insurance paid
for it.
CONGRATS!! (again).... now if you can only get some rest, huh?
----- Original Message -----
From: <adrenal_hyperplasia@yahoogroups.com>
To: <adrenal_hyperplasia@yahoogroups.com>
Sent: Saturday, March 09, 2002 7:39 PM
Subject: [adrenal_hyperplasia] Digest Number 101


> There are 4 messages in this issue.
>
> Topics in this digest:
>
> 1. Re: Digest Number 100
> From: jenannlynn@...
> 2. Re: Digest Number 100
> From: chrissyzim@...
> 3. Re: Digest Number 100
> From: "Jeff and Debbie Doyle" <doyle@...>
> 4. Re: Digest Number 100
> From: chrissyzim@...
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1
> Date: Fri, 8 Mar 2002 13:50:08 EST
> From: jenannlynn@...
> Subject: Re: Digest Number 100
>
> In a message dated 3/8/2002 9:58:51 AM Central Standard Time,
> adrenal_hyperplasia@yahoogroups.com writes:
>
>
> > How wonderful - a new baby!! Would you believe I even miss being
pregnant!!
> > And I have 7 living children and one in heaven. Please let me know all
the
> > details!!! I am excited for you. Where do you live - (you can
personally
> > email if you don't want to post the details for the world or call me -
> > preston@... 703-370-4611.
>
> Hi everyone! We had our 3rd baby March 5th--Sophia Melissa was born at
4:52
> AM and was 8 lbs 5.8 oz., 21 inches long. She is beautiful and appears to
be
> healthy--we are still obviously waiting on the tests to come back to see
if
> she has CAH or not like her older sister, but her genitalia looks great,
so
> if she does have it, it looks like we will at least not be needingto worry
> about surgeries or anything. :) We are so happy and so excited! (We
live
> in Indiana, by the way!)
> Jenny
>
>
> [This message contained attachments]
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 2
> Date: Fri, 8 Mar 2002 14:17:01 EST
> From: chrissyzim@...
> Subject: Re: Digest Number 100
>
> Hello Jenny,
> I live in Indiana also, I have a soon to be 9 yo daughter with CAH
w/severe
> salt wasting. She is on Cortef, and fluorinef, and in the past year has
> started Peds Lupron Peds shot once a month. She is going to be going into
> surgery for reconstruction in the next year or so, hopefully later. So
that
> would be her only surgery needed for the time being. I have a son who is
> going to be 11, but is not a carrier. We had him tested as soon as my
> daughter was diagnosed. Well I saw your note and saw that you were from
> Indiana also, and congrats on your new baby. Take care and have a great
day.
> Keep in touch
> Christie
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 3
> Date: Sat, 9 Mar 2002 08:01:15 -0600
> From: "Jeff and Debbie Doyle" <doyle@...>
> Subject: Re: Digest Number 100
>
> What is Peds Lupron shot for? I have a almost 8 yr. old w/CAH who is also
> on florinef & cortef. She had her surgeries done at 3 mos & 18 mos. Just
> curious as to what Peds Lubron is.
> ----- Original Message -----
> From: <chrissyzim@...>
> To: <adrenal_hyperplasia@yahoogroups.com>
> Sent: Friday, March 08, 2002 1:17 PM
> Subject: Re: [adrenal_hyperplasia] Digest Number 100
>
>
> > Hello Jenny,
> > I live in Indiana also, I have a soon to be 9 yo daughter with CAH
> w/severe
> > salt wasting. She is on Cortef, and fluorinef, and in the past year has
> > started Peds Lupron Peds shot once a month. She is going to be going
into
> > surgery for reconstruction in the next year or so, hopefully later. So
> that
> > would be her only surgery needed for the time being. I have a son who
is
> > going to be 11, but is not a carrier. We had him tested as soon as my
> > daughter was diagnosed. Well I saw your note and saw that you were from
> > Indiana also, and congrats on your new baby. Take care and have a great
> day.
> > Keep in touch
> > Christie
> >
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >
> >
> >
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 4
> Date: Sat, 9 Mar 2002 10:04:43 EST
> From: chrissyzim@...
> Subject: Re: Digest Number 100
>
> Hello,
> Peds lupron depot shot is used to slow the process of puberty. My
daughter
> has not had any surgeries yet and she does need surgery but they are
trying
> to wait. She was starting to advance in her puberty stage. Everyone take
> care and have a beautiful day.
> Christie
>
>
> [This message contained attachments]
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>