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adrenal_hyperplasia · CONGENITAL ADRENAL HYPERPLASIA
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Reply | Forward Message #19 of 208 |
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Hi, I was born with the classical salt wasting CAH 45 years
ago,when not much was known about this illness.Growing up was not fun
at all. My mother and father were divorced and she had to work to
make a living.Then came all kinds of baby sitters and by the time I
started school I was called some horrible names because ppl said I
was half boy and half girl. What a childhood ! Dogs and other animals
were my only friends and consulation. Being in hospitals for weeks at
a time were a big part too. I remember as a child sneaking into the
nurses charts and seeing mine, and I read a part that said I was not
like other girls. That stayed with me to this day. It was a teaching
hospital so there were many interns around. One day , I was 5 years
old, by myself, and this group of drs. were with me in the exam room,
One of them ( a male) left saying , qoute- I cant saty here)
unquote,,, a lady dr. went after him and I heard her tell him, She's
only 5 years old for God's sake !





Sat Jul 29, 2000 4:33 pm

Breezy6692@...
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Message #19 of 208 |
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Hi. I am the mother of a 16 year old bay with saltwasting CAH. When he was born, his Dad and I had no where to get any info except from his Doctor. Now I'm...
Jeffrey Lawson
Laugesen@...
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Jun 8, 2000
3:36 pm

Hi, I was born with the classical salt wasting CAH 45 years ago,when not much was known about this illness.Growing up was not fun at all. My mother and father...
Denise G.
Breezy6692@...
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Jul 30, 2000
8:50 am

I could not begin to imagine how hard it must have been for you having to try and deal with so many issues at such a young age. Not to mention having to go...
Anna
almiller@...
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Jul 30, 2000
1:02 pm

... Not ... morning ... say ... look ... through ... concern. We all have our cross to bear and each one is heavy enough for us.It doesn't lesson burdens in...
Denise G.
Breezy6692@...
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Jul 31, 2000
2:26 am
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