Yeah I have the Dex Injection Kit, I didn't until his last episode
though, I live in a small town In Upstate NY, See his Endo is in
Syracuse but our local hospital is where I take him if there are any
problems, and on his last visit in there they seemed pretty clueless
as to how he needed to be treated. I had to have his endo call the
doc's here at our local hospital and talk them through his treatment
procedures.. well after having to do that I insisted that I have the
injection kit at home to save on the hassle of the 3 way call and the
informing process.. They didn't mention that there was a solu- cortef
injection kit, .. when I said that I would like the injecton he would
need they just prescribed the dex kit. And unless I actually open one
of the vials and use the required dose the shelf life on it says it's
good until 12/02, of course I have to throw away any unused portion
in the vial but it says it should be good until next year. Do you
know the difference between the two? If one is better than the other
I wish they would of told me. Im still learning as we go. good news
though he is feeling a bit better, wetting his diapers more and now
except for a nagging cough that gags him every now and then and
causes him to vomit he is good, his tummy is still a little off and I
think just coughing up the phlem is a bit much just yet, but his
fever seems to be fading slowly and he's just about back to his
normal happy go lucky self again. *sigh, whew! Im still finding it
amazing that local doctors are so unsure about adrenal patients, it
leaves me wondering if maybe I shouldn't move closer to his endo's,
but for now Im doing my best to educate myself and keep good records
of each visit to the hospital he may have. Now you got me wondering
why they gave him the dex and not the cortef kit though.Talk with you
soon. :o)
~Anna
-- In adrenal_hyperplasia@y..., "preston" <preston@K...> wrote:
> It is nice to hear from someone out there. I hate flu season. Do
you have
> the dex injection kit - so do you just wait until the hospital
gives it? I
> have solu-cortef injections kits. I guess because it can be kept a
long time
> and it milder than the dex. But I wish the doctors would give the
dex
> because it is stronger. I live in Washington DC area. Where do you
live?
>
> Roberta
> ----- Original Message -----
> From: <adrenal_hyperplasia@y...>
> To: <adrenal_hyperplasia@y...>
> Sent: Monday, November 12, 2001 4:21 AM
> Subject: [adrenal_hyperplasia] Digest Number 89
>
>
> > There is 1 message in this issue.
> >
> > Topics in this digest:
> >
> > 1. Been Awhile
> > From: "Anna" <anna26_2@y...>
> >
> >
> >
______________________________________________________________________
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> >
______________________________________________________________________
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> >
> > Message: 1
> > Date: Mon, 12 Nov 2001 00:55:44 -0000
> > From: "Anna" <anna26_2@y...>
> > Subject: Been Awhile
> >
> > Hi All, It's been ages since I've been in the group discussions,
with
> > my oldest son in school now and youngest just turning 2 I'm up to
my
> > elbows with stuff to do.. Well Bad news first Jacob has the flu
and
> > I'm finding it very nerve racking trying to determine wether he
is ok
> > or maybe I should take him in, or hmm is he wetting his diaper
enough
> > or am I just being paranoid.. Oye! I've been in constant contact
with
> > his endo and they seem to believe I have everything under control,
> > allot of help that is, Jacob had a bad spell a couple weeks back
with
> > a fever from an ear infection and he ended up in the ER having to
> > have 2 liters of IV to rehydrate him as well as an injection of
dex.
> > It seems this time around he is doing a bit better, Im doubleing
the
> > Cortef and he's getting fever meds, but trying to get him to want
a
> > drink and keep hydrated is not as easy as it seems it should be. I
> > went out and bought the Pedialyte pops but he says "ick" and
doesn't
> > want anything to do with them, luckily his appetite is still good
and
> > Im able to convince him every once & a while to have a regular pop
> > sickle, he is still attached to his bottle so I've had to water
down
> > his milk to that I say "ick" but he doesn't seem to mind, he wont
> > take juice from his cup or in his bottle so I'm just having to
watch
> > his diapers real close and I have his Dex Injection Out and ready
> > should I see any change in his attitude. Man oh man this is not
easy.
> > We just had our first consultation appt. with the surgeon
regarding
> > his hypospadius repair and it looks like there shooting for this
> > spring, maybe April-May, Im all nervous about that, I just put it
out
> > of my mind for now it worries me allot and I prey that things
will be
> > ok for him. I've added a photo of him to the group albulm, he is
my
> > lil sweetheart, but don't let the smile fool ya he is soooo
stuborn
> > and believe me when I tell ya he is trouble with a capital T ,
lol..
> > I just wanted to pop in, hope all is well with everyone & there
> > precious lil ones..Any advice anyone can give me regarding making
it
> > through the flu season, and fever's a little less stressfull I
think
> > I might just drive over and hug ya, lol best of wishes to all and
> > have a great holiday season.
> > ~Anna :o)
> >
> >
> >
> >
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> >
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> >
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> >