Hello, and congratulations on your new baby, Anthony. I am so new to this
board, I know nothing about it, maybe when you get some free time, you will
explain some of it to me. I need to learn more.
How are you feeling? Tell me a little about yourself.
.

I was just released from the Hospital, second time since July 25, Pneumonia,
now they have found a cyst on my left Kidney, and it is shrinking and will
eventually shut down. I know I can live with my right Kidney as long as it
stays healthy.

I hope you will write often
Your friend
Nancy


-----Original Message-----
From: preston <preston@...>
To: adrenal_hyperplasia@yahoogroups.com
<adrenal_hyperplasia@yahoogroups.com>
Date: Thursday, August 09, 2001 8:16 PM
Subject: Re: [adrenal_hyperplasia] Digest Number 76


>I just had a new baby
>born 2 August 01
>Anthony Roger Preston
>
>I had genetic testing for CAH (two other children - boys with CAH ages 7
and
>3 years old). Anthony does not have CAH.
>
>preston@...
>
>----- Original Message -----
>From: <adrenal_hyperplasia@yahoogroups.com>
>To: <adrenal_hyperplasia@yahoogroups.com>
>Sent: Sunday, July 22, 2001 5:07 AM
>Subject: [adrenal_hyperplasia] Digest Number 76
>
>
>> There is 1 message in this issue.
>>
>> Topics in this digest:
>>
>> 1. Re: Digest Number 75
>> From: "preston" <preston@...>
>>
>>
>> ________________________________________________________________________
>> ________________________________________________________________________
>>
>> Message: 1
>> Date: Sun, 22 Jul 2001 00:38:53 -0400
>> From: "preston" <preston@...>
>> Subject: Re: Digest Number 75
>>
>> The genetic testing that is the most accurate is done in a lab at Cornell
>> University in New York City. Don't panic - you don't have to go to New
>York.
>> The blood is taken locally and sent to New York. It is DNA testing for
>CAH.
>> It cost $600 a person. My insurance covered the testing. It takes two
>> people with the CAH gene (carriers) to have a child with CAH and then it
>is
>> 1 in 4 chance. So both you and your partner would BOTH have to carry the
>> gene for CAH.... odds are against it but it does happen and that is why
we
>> have two children with CAH.
>>
>> Roberta
>> ----- Original Message -----
>> From: <adrenal_hyperplasia@yahoogroups.com>
>> To: <adrenal_hyperplasia@yahoogroups.com>
>> Sent: Saturday, July 21, 2001 5:48 AM
>> Subject: [adrenal_hyperplasia] Digest Number 75
>>
>>
>> > There are 2 messages in this issue.
>> >
>> > Topics in this digest:
>> >
>> > 1. question from real novice
>> > From: judy hastie <judyjhastie@...>
>> > 2. Re: question from real novice
>> > From: karen lange <kmlange27@...>
>> >
>> >
>> >
________________________________________________________________________
>> >
________________________________________________________________________
>> >
>> > Message: 1
>> > Date: Fri, 20 Jul 2001 10:53:13 -0700 (PDT)
>> > From: judy hastie <judyjhastie@...>
>> > Subject: question from real novice
>> >
>> > I have just learned about CAH so please forgive me if
>> > this is a stupid question. We are planning a family
>> > and so gathering information about any hereditary
>> > medical conditions that run in our families. There
>> > was a female family member born in about 1928 who was
>> > first thought to be male, given a boy's name, but soon
>> > was found to be female. That's all I know. This girl
>> > grew up, had children and leads a healthy, normal
>> > life. She has not told family members that she suffers
>> > from CAH or any hereditary medical condition. We do
>> > not feel comfortable asking her about it. Are we crazy
>> > to suspect the CAH gene? Or would it be prudent to
>> > get genetic counselling on this issue? Is it an easy
>> > test?
>> > Thanks!
>> >
>> > __________________________________________________
>> > Do You Yahoo!?
>> > Get personalized email addresses from Yahoo! Mail
>> > http://personal.mail.yahoo.com/
>> >
>> >
>> >
________________________________________________________________________
>> >
________________________________________________________________________
>> >
>> > Message: 2
>> > Date: Fri, 20 Jul 2001 13:04:59 -0700 (PDT)
>> > From: karen lange <kmlange27@...>
>> > Subject: Re: question from real novice
>> >
>> > --- judy hastie <judyjhastie@...> wrote:
>> > > I have just learned about CAH so please forgive me
>> > > if
>> > > this is a stupid question. We are planning a family
>> > > and so gathering information about any hereditary
>> > > medical conditions that run in our families. There
>> > > was a female family member born in about 1928 who
>> > > was
>> > > first thought to be male, given a boy's name, but
>> > > soon
>> > > was found to be female. That's all I know. This girl
>> > > grew up, had children and leads a healthy, normal
>> > > life. She has not told family members that she
>> > > suffers
>> > > from CAH or any hereditary medical condition. We do
>> > > not feel comfortable asking her about it. Are we
>> > > crazy
>> > > to suspect the CAH gene? Or would it be prudent to
>> > > get genetic counselling on this issue? Is it an
>> > > easy
>> > > test?
>> > > Thanks!
>> > >
>> > > __Hi Judy
>> > I'm only 28 so I only know a little about my cah. I
>> > know it runs in the family. If I was you I would try
>> > to ask her about cah and I think there is a test for
>> > it.
>> > Now one thing if you have a cah gene don't decide
>> > not to have kids,because they are special people.
>> >
>> > Karen________________________________________________
>> > > Do You Yahoo!?
>> > > Get personalized email addresses from Yahoo! Mail
>> > > http://personal.mail.yahoo.com/
>> > >
>> >
>> >
>> > __________________________________________________
>> > Do You Yahoo!?
>> > Get personalized email addresses from Yahoo! Mail
>> > http://personal.mail.yahoo.com/
>> >
>> >
>> >
________________________________________________________________________
>> >
________________________________________________________________________
>> >
>> >
>> >
>> > Your use of Yahoo! Groups is subject to
>http://docs.yahoo.com/info/terms/
>> >
>> >
>>
>>
>>
>> ________________________________________________________________________
>> ________________________________________________________________________
>>
>>
>>
>> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>>
>>
>
>
>
>
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