I just had a new baby
born 2 August 01
Anthony Roger Preston

I had genetic testing for CAH (two other children - boys with CAH ages 7 and
3 years old). Anthony does not have CAH.

preston@...

----- Original Message -----
From: <adrenal_hyperplasia@yahoogroups.com>
To: <adrenal_hyperplasia@yahoogroups.com>
Sent: Sunday, July 22, 2001 5:07 AM
Subject: [adrenal_hyperplasia] Digest Number 76


> There is 1 message in this issue.
>
> Topics in this digest:
>
> 1. Re: Digest Number 75
> From: "preston" <preston@...>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1
> Date: Sun, 22 Jul 2001 00:38:53 -0400
> From: "preston" <preston@...>
> Subject: Re: Digest Number 75
>
> The genetic testing that is the most accurate is done in a lab at Cornell
> University in New York City. Don't panic - you don't have to go to New
York.
> The blood is taken locally and sent to New York. It is DNA testing for
CAH.
> It cost $600 a person. My insurance covered the testing. It takes two
> people with the CAH gene (carriers) to have a child with CAH and then it
is
> 1 in 4 chance. So both you and your partner would BOTH have to carry the
> gene for CAH.... odds are against it but it does happen and that is why we
> have two children with CAH.
>
> Roberta
> ----- Original Message -----
> From: <adrenal_hyperplasia@yahoogroups.com>
> To: <adrenal_hyperplasia@yahoogroups.com>
> Sent: Saturday, July 21, 2001 5:48 AM
> Subject: [adrenal_hyperplasia] Digest Number 75
>
>
> > There are 2 messages in this issue.
> >
> > Topics in this digest:
> >
> > 1. question from real novice
> > From: judy hastie <judyjhastie@...>
> > 2. Re: question from real novice
> > From: karen lange <kmlange27@...>
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> > Message: 1
> > Date: Fri, 20 Jul 2001 10:53:13 -0700 (PDT)
> > From: judy hastie <judyjhastie@...>
> > Subject: question from real novice
> >
> > I have just learned about CAH so please forgive me if
> > this is a stupid question. We are planning a family
> > and so gathering information about any hereditary
> > medical conditions that run in our families. There
> > was a female family member born in about 1928 who was
> > first thought to be male, given a boy's name, but soon
> > was found to be female. That's all I know. This girl
> > grew up, had children and leads a healthy, normal
> > life. She has not told family members that she suffers
> > from CAH or any hereditary medical condition. We do
> > not feel comfortable asking her about it. Are we crazy
> > to suspect the CAH gene? Or would it be prudent to
> > get genetic counselling on this issue? Is it an easy
> > test?
> > Thanks!
> >
> > __________________________________________________
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> > Message: 2
> > Date: Fri, 20 Jul 2001 13:04:59 -0700 (PDT)
> > From: karen lange <kmlange27@...>
> > Subject: Re: question from real novice
> >
> > --- judy hastie <judyjhastie@...> wrote:
> > > I have just learned about CAH so please forgive me
> > > if
> > > this is a stupid question. We are planning a family
> > > and so gathering information about any hereditary
> > > medical conditions that run in our families. There
> > > was a female family member born in about 1928 who
> > > was
> > > first thought to be male, given a boy's name, but
> > > soon
> > > was found to be female. That's all I know. This girl
> > > grew up, had children and leads a healthy, normal
> > > life. She has not told family members that she
> > > suffers
> > > from CAH or any hereditary medical condition. We do
> > > not feel comfortable asking her about it. Are we
> > > crazy
> > > to suspect the CAH gene? Or would it be prudent to
> > > get genetic counselling on this issue? Is it an
> > > easy
> > > test?
> > > Thanks!
> > >
> > > __Hi Judy
> > I'm only 28 so I only know a little about my cah. I
> > know it runs in the family. If I was you I would try
> > to ask her about cah and I think there is a test for
> > it.
> > Now one thing if you have a cah gene don't decide
> > not to have kids,because they are special people.
> >
> > Karen________________________________________________
> > > Do You Yahoo!?
> > > Get personalized email addresses from Yahoo! Mail
> > > http://personal.mail.yahoo.com/
> > >
> >
> >
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