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adrenal_hyperplasia · CONGENITAL ADRENAL HYPERPLASIA
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Reply | Forward Message #162 of 208 |
Re: [adrenal_hyperplasia] surgery

My daughter had two surgeries. One at 3 mos. and one at 18 mos to correct
her genital area. I highly recommend it, especially when they are little as
they do not remember the surgeries and they bounce back so quickly. She
spent one night in the hospital for each surgery. They went well with no
complications. Healing time was only a couple of weeks, if that, and she
experienced no pain during that time. Her vaginal area looks like any other
little girl with minimal scarring. If you want your little girl to look
like all other little girls, its the only way to go. You don't want her to
be teased when she gets older or be ashamed of herself.

As far as sexual side effects when they get older, there may be some. I was
told she will need to go back in around puberty to be stretched, as their
hole opening is smaller than most girls. As far as our children having
kids, its anybody's guess. As long as our children have normal periods,
they should be able to conceive. I've spoken to a couple of teenagers by
e-mail, and they have said sex may be a bit more painful for them and
another one said she is afraid to have sex.

My feelings are is to give my daughter a normal life and correcting her
vaginal area was a big part of that. My husband and I will deal with
whatever else comes our way when she gets older, because at 7 years old,
there isn't a whole lot more we can do right now. I am just very thankful
for the wonderful doctors we have here in Pittsburgh that have kept my
daughter healthy and happy.

Good luck.

Debbie
----- Original Message -----
From: <JHmphr3@...>
To: <adrenal_hyperplasia@yahoogroups.com>
Sent: Tuesday, June 19, 2001 10:03 AM
Subject: [adrenal_hyperplasia] surgery


> My daughter's doctor is recommending that we have the clitoplasty
> done before too long. I would like to recieve others' opinions
> regaurding this before I make a decision. Are there serious sexual
> side effects? Has anyone had it done themselves? I just want to be as
> informed as possible before I agree to anything. Thank you
>
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>
>




Thu Jun 21, 2001 11:11 am

doyle@...
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Message #162 of 208 |
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Just wantd to let everyone know who helped me out that my baby had her "exploratory" surgery last week, and it went VERY well. The scariest part was having...
jenannlynn@...
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Dec 15, 2000
8:41 am

Thi is very encouraging. Thanks for sharing how well she did. I will be needing to have that surgery done soon as well. God took very good care of her. I thank...
Georgianna Copeland
georgiannac@...
Send Email
Dec 17, 2000
1:54 pm

What a great X-mas present!! I'm so happy all went well with your little girl. We also got the same news you got about the second surgery, basically, it not...
Debbie Doyle
doyle@...
Send Email
Dec 17, 2000
1:55 pm

In a message dated 12/17/00 5:55:39 AM Pacific Standard Time, doyle@... writes: << We also got the same news you got about the second surgery, ...
jenannlynn@...
Send Email
Dec 18, 2000
7:46 am

Jenny: We did the reconstructive surgery on her clitoris. I'm all for, and if were in the same situation again, would go ahead and do it all now. This way, ...
Debbie Doyle
doyle@...
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Dec 20, 2000
6:34 am

In a message dated 12/20/2000 4:41:51 AM US Eastern Standard Time, doyle@... writes: << I never thought twice about it. I would go ahead w/your...
jenannlynn@...
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Dec 27, 2000
9:52 am

She will even ... What do they mean when they do this? how is it done and why? Kim ===== Get free stuff just for surfing the net! www.mypoints.com ...
Kim
sweetiee1@...
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Dec 29, 2000
9:33 am

In a message dated 12/29/2000 4:37:12 AM US Eastern Standard Time, sweetiee1@... writes: << She will even ... What do they mean when they do this? how...
jenannlynn@...
Send Email
Dec 30, 2000
10:38 am

OK. This is what I thought it might mean. Seems kind of scary to know you have to continue doing that until they are older. It would seem better to start...
Kim
sweetiee1@...
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Jan 5, 2001
5:19 pm

In a message dated 1/5/2001 12:20:55 PM US Eastern Standard Time, sweetiee1@... writes: << OK. This is what I thought it might mean. Seems kind of...
jenannlynn@...
Send Email
Jan 6, 2001
6:27 am

My daughter's doctor is recommending that we have the clitoplasty done before too long. I would like to recieve others' opinions regaurding this before I make...
JHmphr3@...
Send Email
Jun 19, 2001
2:03 pm

My daughter had two surgeries. One at 3 mos. and one at 18 mos to correct her genital area. I highly recommend it, especially when they are little as they do...
Debbie Doyle
doyle@...
Send Email
Jun 21, 2001
11:08 am

I'm 20yrs old and have gone through 2 surgeries due to CAH. one when i was 5? which i hardly remember at all, and then another minor one when i was 14. (i...
micebike@...
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Jun 21, 2001
6:26 pm
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