I have two sons (one daughter died from Adrenal Crisis - our second child at
age 2 years old because of fever). If you have an adrenal insufficiency and
it is not managed right or not treated and you get a high fever that will
not reduce, vomiting or diahrea, serious injury, surgery... you can die from
an adrenal crisis (like my Jessica - she had a fever and we knew she had an
andrenal insufficiency but the doctor did not tell us to give an injection
of the cortisol, which we should have and taken her to the hospital of IV
fluids (salt/sugars) and reduce the fever.... the doctor insisted to just
double the cortef and that was not enough during a high fever that would not
reduce....I called him three times that night.. same stupid answer... and he
even said to stop calling him... in the mornin she was in adrenal shock).
Symptoms of adrenal insufficiency include - weight lost; vomiting;
dizzy, tired; pain in the lower back, darken skin; low blood pressure;
fertility problems; acme - bad pimples in teenagers; hair lost; etc (one or
some of these.... not always all of these).
I suggest genetic testing and the 60 minute cortisol challenge test at
between 6 am and 8 am (have 60 minute cortisol challenge the done one month
and then the next month again ... because of accurancy and sluggish response
of the adrenal gland that has never been challenged). Genetic testing is a
blood sample taken and sent to Dr. Maria New at Cornell University. She is
the expert on DNA testing for Adrenal Insufficiencies. CAH can be onset or
occur in older people and so can Addisons. Addisons is typically found in
people over 40 years old. I would have your doctor take plasma renin blood
test, chem 8 blood test; testerone and 17OHP (at 8 am).

Roberta Preston
preston@...
----- Original Message -----
From: <adrenal_hyperplasia@yahoogroups.com>
To: <adrenal_hyperplasia@yahoogroups.com>
Sent: Saturday, May 05, 2001 7:22 AM
Subject: [adrenal_hyperplasia] Digest Number 69


> There are 2 messages in this issue.
>
> Topics in this digest:
>
> 1. Re: Digest Number 67
> From: "preston" <preston@...>
> 2. Re: Fwd: Message from Lisa
> From: chrissyzim@...
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1
> Date: Thu, 3 May 2001 20:56:10 -0400
> From: "preston" <preston@...>
> Subject: Re: Digest Number 67
>
> I don't see any attachments.. or whatever.
>
> Roberta Preston
> preston@...
> ----- Original Message -----
> From: <adrenal_hyperplasia@yahoogroups.com>
> To: <adrenal_hyperplasia@yahoogroups.com>
> Sent: Thursday, May 03, 2001 5:03 AM
> Subject: [adrenal_hyperplasia] Digest Number 67
>
>
> > There is 1 message in this issue.
> >
> > Topics in this digest:
> >
> > 1. Fwd: CAH and pregnancy
> > From: rarediseases@...
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> > Message: 1
> > Date: Mon, 30 Apr 2001 19:20:37 EDT
> > From: rarediseases@...
> > Subject: Fwd: CAH and pregnancy
> >
> >
> >
> >
> > [This message contained attachments]
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> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
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> > Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
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> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 2
> Date: Fri, 4 May 2001 09:20:41 EDT
> From: chrissyzim@...
> Subject: Re: Fwd: Message from Lisa
>
> Lisa.
> Hello my name is Christie and I have a 8 year old daughter with CAH. She
was
> diagnosed at the age of 6 weeks and has been on steroids since then and
takes
> it 3 times a day 6am 2pm and 10pm. She is also a severe salt waster and
> takes medicine for that also. You do need to get an appointment with an
> endocrinologist and he/she might be able to run some test to find out if
you
> do have CAH. Our endocrinologist runs testorone, estriadol, and a CAH 21
> test on my daughter. She is a normal 8 year old and has no side effects.
If
> you have any other questions, please don't hesitate and you are always
> welcome to email me anytime. Take care and have a nice weekend
> Christie
>
>
> [This message contained attachments]
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>