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adrenal_hyperplasia · CONGENITAL ADRENAL HYPERPLASIA
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Description

This is a Rare Disease Support Community eGroup available for anyone interested in making friends, sharing information and/or providing support for persons affected by "Congenital Adrenal Hyperplasia."

International Rare Disease Support Network
Caring for people affected by rare diseases
1437 Cool Springs Dr.
Mesquite, Texas USA 75181-4739
Telephone: (972)222-9153

Voice/Fax: (972) 993-2021 x1397
Email:Adrenal_Hyperplasia@raredisorders.com

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Re: Digest Number 101
She was diagnosed at the age of 6 weeks, and has been a salt waster since than also. Our son is not a carrier, we had him tested as soon as our daughter was
Posted - Mon Mar 11, 2002 2:34 am
 chrissyzim@...
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Re: Digest Number 101
Congrats - email me - preston@... My husband has a friend in Indiana that he just visited last month. What wonderful news that she doesn't need
Posted - Mon Mar 11, 2002 1:49 am
 preston
bertie7_98
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Re: Digest Number 101
Family Workshop on Congenital Adrenal Hyperplasia Please come to a CAH Family Workshop hosted by the CARES Foundation Inc. We give special thanks to the Texas
Posted - Mon Mar 11, 2002 1:42 am
 preston
bertie7_98
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Re: Digest Number 100
Hello, Peds lupron depot shot is used to slow the process of puberty. My daughter has not had any surgeries yet and she does need surgery but they are trying
Posted - Sat Mar 9, 2002 3:04 pm
 chrissyzim@...
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Re: Digest Number 100
What is Peds Lupron shot for? I have a almost 8 yr. old w/CAH who is also on florinef & cortef. She had her surgeries done at 3 mos & 18 mos. Just curious
Posted - Sat Mar 9, 2002 12:59 pm
 Jeff and Debbie Doyle
doyle@...
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2002 10
2001 15 33 6 1 4 3 6 14 4 8 3
2000 3 1 5 4 8 5 49 18
1999 1 1 6
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