... since it first came along. My nuro told me that because aides is nerve damage related that it may be that some of the other nerves are slightly damaged as...
I'm constantly surprised by how my Adie's eye seems to freeze up in a blurred position. I'll go along fine not thinking a lot about it and then it will just...
Hi Troy, I'm kinda new at this Adies syndrome thing. No one seems to know anything about it out here. I'm also technologically impaired so I got a friend to...
Hi Trish; Thanks for taking the time to email me. I guess this must be some sort of support group. I received a few emails from other sufferers. I am so...
Hi Jody Thanks for witing, I'm pretty new at this. Out of the few people that have emailed me, only one hasn't had it affect both eyes & she is a new...
Hi Trish, I'm not sure if this email was sent out so if it was ignore this. Mimi Delorme <md_gosselin@...> wrote: Hi Trish; Thanks for taking the time to...
My name is Amber and I was diagnosed with Adies in November. Since then I have gotten new glasses twice until a couple weeks ago when my doctor announced that...
Hi Amber, Thanks for emailing me. This is all pretty new to me & people around this small town don't know anything about this disease. I was just persistent...
Mimi Delorme <md_gosselin@...> wrote:Hi Amber, Thanks for emailing me. This is all pretty new to me & people around this small town don't know anything...
I'm 42 and I've been wearing glasses since I was 15. I just had my script changed for the 1st time and that was around the same time I found out I had adie's....
I've had Adies for around 2 years. I'll be 51 in July. Most of my life I've been nearsighted, and with age, wear reading glasses as well. I noticed someone...
hi all i've recently moved from london to the seaside and i've found the condition has eased up a bit... not sure why but guess it could be to do with the pace...
Enter your vote today! A new poll has been created for the adie_syndrome group: as a child were you put on alot of medication prior to having adies? i.e...
adie_syndrome@yahoogr...
Jun 28, 2005 2:34 pm
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Hi I am fairly new to this diagnosis of adies in both eyes and have also been struggling w. 3rd nerve facial syndrome or trigeminal neuralgia (Originally...
Hi there My son Dante is two and a half and has just been discovered to have a tonic pupil, most probably Adies. We noticed it at lunch and rushed him to our...
Hi Rachael, Sorry to hear about Dante's illnesses and his eye (fantastic name by the way!) Just before my Adie's was diagnosed my children had chicken pox. It...
According to my doctor, one of two things have been linked to Adies. Mine was caused by blunt head trauma (a concussion I suffered about a year ago) or a...
Since we see cosmetic contact lenses in a variety of different designs, do contacts exist for an enlarged pupil that makes the eye appear to match the other...
Hi, I just discovered this group today and it is so nice to know that other people are out there with Adie's Tonic Pupil Syndrome. I was diagnosed w/it 3 yrs....
Hi, I have tried all kinds of contact lens' ranging from specialist ones to ordinary tinted ones. I found the specialist hard lens with a fixed pupil to match...
Hi Sarah. I'm going to my eye doctors tomorrow, and try on a variety of soft contacts, to see if there are any that will make my pupil sizes less obvious. I...
Hiya Linda, Sorry to have confused you, I meant a fixed pupil diameter. So there was paint around my iris but not over the pupil. I did not like those ones at ...
Hi, I've had Adies about 4 yrs now. I've read a lot of helpful advice on this group site. The best one I found for focusing up close is to try to focus with...
hi i did try this and used coloured contacts, it helped a bit but i found it irritated my eyes a bit and i think coloured contacts tend to look a bit obvious...
My left eye is the enlarged eye. What is more noticable, is my right eye. My right eye compensates for the left eye, so my right pupil is exceptionally...
I just found this site and I am suprised to see so many others with Adie's. With the condition being so rare, it's hard to find anyone who understands. I...
Since I was diagnosed with Adies I have an extreme sensitivity to fluorescent lights. I have Adies in both eyes and an eye patch is not an option. I cannot...