Hello everyone, I'm 21 years old & I was diagnosed with Adie's syndrome today. I have no idea what to expect. I have had horrible vision since the 4th grade...
Hi! I'm a new member to this group. I'm a 37 yrs male from Sweden that recently have been diagnosed Adie's syndrome. I'm waiting for a MRI to exclude any other...
Hi All... Had the chance to read through all these messages. Very nice to find a group like this. My background... First of all, I'm male (I think one of three...
The question has come up on the board about how to obtain the .125% pilocarpine. Has anyone been able to successfully obtain this concentration??? The...
I was diagnosed this morning. I am a 33year old female. My Ophthalmologist told me the same things that I have read from members of this group. I am grateful...
Hi...Welcome, Adie's since 1992. East Coast USA. You'll definitely have light sensitivity. As for as dangers? I'm assuming since the pupil won't constrict...
Hi all, I am Serra Nicole, I live in West Virginia, USA. I have Adie's Pupil in both eyes. My meds I take are Pilocarpine 1%, one drop per eye every morning....
I am so glad to have found other people out there who can relate, I am a mother of three - and have had people actually accuse me of being on drugs, etc....
Serranic, I find it very interesting that you contacted this thing while working in a casino. I was also working in a casino when it hit me. I wonder if...
Gary Garb
garygarb@...
Nov 16, 2002 12:33 pm
106
Hi, I just found this group and thought I would share my story. I was diagnosed with Adies in 1982 at the age of 27 after noticing my night vision was almost...
Hi everyone. I have read all the emails I found it interesting that a lot of people all have the problem with their left eye. I have read about the various...
... interested ... headaches. I do ... that ... were ... opinion). ... perhaps ... no ... Hi Erin et al, I originated in the UK, but now live in the US. I ...
I too have joint pain, especially in my fingers. I am 34 yo however, I still contributed it to arthritis and saw my physician about it. All tests came back neg...
Same here, my doc said it was probably caused by a virus, and my night vision is also almost non existent. Yes, it is a benign condition, but it's also...
My ct scan came back normal too, I didn't start wearing glasses untila few months before the adies was diagnosed. I am thinking about getting contacts becuase...
Gary and new members, If you look through the message archive of this group, alot of people have done research, including myself, as the cause of this. I've...
Check the archives, and start there. There is plenty of information to start yourself off with. monicafaye1 <jpb@...> wrote:Hi, I just found this group...
I haven't read anywhere about a rash being one of the symptoms of aide's. As for contacts, I don't wear any, does anyone else? In my research I haven't seen...
From my understanding from my neuro-opthomologist, Aide's affects the nerve tissues in the back of the eye as well. This same tissue area is also where...
Hello Everyone, Something strange had happened to my Adie's eye and I wondered if anyone else has experienced this: My pupil seems to be shrinking! It isn't in...
Hello Rachel, I understand this does happen sometimes, but so far as I know it has no relation to the aspirin. We are a rather select and strange group,...
I keep waking up and hoping my eye will be normal again. But I guess that is just wishful thinking. Iguess we should just be lucky that it doesn't seem to be...
Hello Everyone. I am new to this group. I was recently diagnosed with Adie Syndrome. I woke up from a nap one afternoon and as I was washing my face I ...
Hi Autumn Rose, There doesn't seem to be alot of info out there on this. I was wondering, how your Doctor explained it to you. The neurologist I saw, didn't...
Hi Kathleen My Doctor really didn't explain it to me very well. All he told me was that I had Adie's Syndrome and that it was likely that I would have it the...
Hi AutumRose I was diagnosed in late October. I am 41. Apparently, it affects mostly women in the middle age. However, articles state it could be between...
Hey Kathleen I used to wear contacts, but when I went to the Optometrist back in April to get a new pair, he told me I couldn't wear them anymore because my...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
