Hello everyone, I'm 21 years old & I was diagnosed with Adie's syndrome today. I have no idea what to expect. I have had horrible vision since the 4th grade...
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Magnus
sungamsweden
Oct 26, 2002 1:42 pm
Hi! I'm a new member to this group. I'm a 37 yrs male from Sweden that recently have been diagnosed Adie's syndrome. I'm waiting for a MRI to exclude any other...
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jeffusanyc
Nov 2, 2002 2:57 pm
Hi All... Had the chance to read through all these messages. Very nice to find a group like this. My background... First of all, I'm male (I think one of three...
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jeffusanyc
Nov 2, 2002 2:57 pm
The question has come up on the board about how to obtain the .125% pilocarpine. Has anyone been able to successfully obtain this concentration??? The...
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reneelewellyn
Nov 2, 2002 2:57 pm
I was diagnosed this morning. I am a 33year old female. My Ophthalmologist told me the same things that I have read from members of this group. I am grateful...
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MStafford@...
pea007nut
Nov 4, 2002 2:41 am
Hi...Welcome, Adie's since 1992. East Coast USA. You'll definitely have light sensitivity. As for as dangers? I'm assuming since the pupil won't constrict...
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jeffusanyc
Nov 4, 2002 8:52 pm
I'd like to see if anyone else has interest i helping me start-up a non-profit organization that would apply for a grant under the Food and Drug...
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Sokenunese Myles
adzaa_nez26
Nov 8, 2002 6:13 pm
Hey all, jeffusanyc <jeff@...> wrote: My big question: I'm hearing about people going outdoors, and experiencing vision problems after exposure to...
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Serranic
serranicole
Nov 8, 2002 6:15 pm
Hi all, I am Serra Nicole, I live in West Virginia, USA. I have Adie's Pupil in both eyes. My meds I take are Pilocarpine 1%, one drop per eye every morning....
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tumbleweeedz05
Nov 16, 2002 12:32 pm
I am so glad to have found other people out there who can relate, I am a mother of three - and have had people actually accuse me of being on drugs, etc....
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muffygirl2003
Nov 16, 2002 12:33 pm
Hi. I was finally diagnosed with Adie's eye about two weeks ago. It was quite stressful at the time. I've still got a CT scan booked although the...
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Gary Garb
garygarb@...
Nov 16, 2002 12:33 pm
Serranic, I find it very interesting that you contacted this thing while working in a casino. I was also working in a casino when it hit me. I wonder if...
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monicafaye1
Nov 16, 2002 12:33 pm
Hi, I just found this group and thought I would share my story. I was diagnosed with Adies in 1982 at the age of 27 after noticing my night vision was almost...
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muffygirl2003
Nov 16, 2002 12:33 pm
Hi everyone. I have read all the emails I found it interesting that a lot of people all have the problem with their left eye. I have read about the various...
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sarasaunt2002
Nov 16, 2002 12:34 pm
... interested ... headaches. I do ... that ... were ... opinion). ... perhaps ... no ... Hi Erin et al, I originated in the UK, but now live in the US. I ...
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Renee N. Papadenis
reneelewellyn
Nov 16, 2002 11:14 pm
I too have joint pain, especially in my fingers. I am 34 yo however, I still contributed it to arthritis and saw my physician about it. All tests came back neg...
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jeff tumbleson
tumbleweeedz05
Nov 16, 2002 11:26 pm
Same here, my doc said it was probably caused by a virus, and my night vision is also almost non existent. Yes, it is a benign condition, but it's also...
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jeff tumbleson
tumbleweeedz05
Nov 16, 2002 11:48 pm
My ct scan came back normal too, I didn't start wearing glasses untila few months before the adies was diagnosed. I am thinking about getting contacts becuase...
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Sokenunese Myles
adzaa_nez26
Nov 17, 2002 5:45 pm
Gary and new members, If you look through the message archive of this group, alot of people have done research, including myself, as the cause of this. I've...
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Sokenunese Myles
adzaa_nez26
Nov 17, 2002 5:46 pm
Check the archives, and start there. There is plenty of information to start yourself off with. monicafaye1 <jpb@...> wrote:Hi, I just found this group...
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Sokenunese Myles
adzaa_nez26
Nov 17, 2002 5:48 pm
I haven't read anywhere about a rash being one of the symptoms of aide's. As for contacts, I don't wear any, does anyone else? In my research I haven't seen...
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Sokenunese Myles
adzaa_nez26
Nov 17, 2002 5:54 pm
From my understanding from my neuro-opthomologist, Aide's affects the nerve tissues in the back of the eye as well. This same tissue area is also where...
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Rachel McLean
racmc2002
Nov 22, 2002 8:03 am
Hello Everyone, Something strange had happened to my Adie's eye and I wondered if anyone else has experienced this: My pupil seems to be shrinking! It isn't in...
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takfmly
sarasaunt2002
Nov 24, 2002 6:16 am
Hello Rachel, I understand this does happen sometimes, but so far as I know it has no relation to the aspirin. We are a rather select and strange group,...
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muffygirl2003
Nov 24, 2002 5:25 pm
I keep waking up and hoping my eye will be normal again. But I guess that is just wishful thinking. Iguess we should just be lucky that it doesn't seem to be...
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AutumnRose2
Nov 27, 2002 2:21 pm
Hello Everyone. I am new to this group. I was recently diagnosed with Adie Syndrome. I woke up from a nap one afternoon and as I was washing my face I ...
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Kathleen
muffygirl2003
Nov 28, 2002 12:16 am
Hi Autumn Rose, There doesn't seem to be alot of info out there on this. I was wondering, how your Doctor explained it to you. The neurologist I saw, didn't...
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AutumnRose2
Nov 28, 2002 1:07 am
Hi Kathleen My Doctor really didn't explain it to me very well. All he told me was that I had Adie's Syndrome and that it was likely that I would have it the...
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Kathleen
muffygirl2003
Nov 28, 2002 4:13 am
Hi AutumRose I was diagnosed in late October. I am 41. Apparently, it affects mostly women in the middle age. However, articles state it could be between...
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AutumnRose2
Nov 29, 2002 10:33 pm
Hey Kathleen I used to wear contacts, but when I went to the Optometrist back in April to get a new pair, he told me I couldn't wear them anymore because my...
